Am I ON TRAC For Adult Care Youth Questionnaire

Transcript

1 Am I ON TRAC ? For Adult Care Questionnaire - A Youth Readiness Questionnaire for Youth 12 19 years of age Youth Version of Questionnaire Developed by BC Children’s Hospital ON TRAC Transition Initiative Validated in partnership with UBC School of Nursing Contacts: Dr. Elizabeth Saewyc, UBC School of Nursing [email protected] For validation of AM I ON TRAC Youth Readiness Questionnaire study Mary Paone , MSN , RN, Nursing Lead for ON TRAC Initiative [email protected] For opportunities for collaborative testing of t his tool or other ON TRAC tools, BC’s Children’s Hospital Research Team Members: Melissa Moynihan, MSN , RN, UBC School of Nursing artment of Pediatrics, UBC Dr. Sandy Whitehouse, Dep , ON TRAC Initiative This questionnaire has been designed to be used every year, or every few years, with adolescents who have , to assess their progress towards readiness to chronic health conditions and/ or disabilities transition to adult health care services. Instructions for how to score it are on the page following the questionnaire. While the instrument is available for use for free, we would appreciate being informed should you choose to use it, so that its usefulness, and so we can infor m you of any refinements or enhanced versions as they become we can track available. Suggested citation for the tool itself: Paone M., Moynihan M., Whitehouse S., Saewyc E. (2012). Am I ON TRAC for Adult Care? Youth readiness questionnaire, 2012 version. British Columbia Children’s Hospital, Vancouver, BC, Canada. Sugges ted citation for validation : Moynihan, M., Saewyc, E., Whitehouse, S., Paone, M., & McPherson, G. Assessing readiness for transition from paediatric to adult h ealth care: Revision and psychometric evaluation of the Am I ON TRAC for Adult Care Journal of Advanced Nursing, 71 (6), 1324 - Questionnaire. . DOI: 10.111/jan.12617 1355 For updated information on readiness tools and testing visit Projects section – www.ontrac.bc.ca

2 AM I ON TRAC For Adult Care Questionnaire (Version J anuary 201 2 ) – Youth Readiness Questionnaire For each of the following statements select the response that best describes you Strongly Strongly ndicators Disagree Knowledge I Agree agree disagree I can describe my health condition to others 1. 2. I know what my long - term health problems might be I know what patient confidentiality means 3. 4. I understand the risks and benefits of health care treatments before consenting to those treatments I know how to get my medical records 5. I know the names of my medications 6. 7. I know what each of my medications are for 8. I know the side effects of the medications I take 9. I can get to my clinic appointments on my own 10. I know how my condition might affect my sexual health 11. I know how to prevent sexual health risks such as pregnancy and sexually transmitted infections (STIs) 12. I know how my health condition might limit my career choices 13. I know how my health condition affects my physical activities I know how alcohol, drugs and tobacco can affect my 14. medications I have a family doctor 15. My family supports me in managing my health 16. Behavior al Indicators Never Rarely Sometimes Often Always I visit my family doctor when I need to (For example: to 17. have check ups, get birth control, or if I have the flu) - 18. I meet with my health care providers on my own 19. I participate in clubs, groups, sports or activities 20. I talk to my friend(s) about my problems or worries I participate in activities/exercise to stay healthy 21. I ask health care providers questions about my health at 22. my visits 23. medications on my own I take my When my symptoms are getting worse I contact the clinic 24. for help 25. I think about what I would like to do after high school

3 Scoring Guide for Revised Am I ON TRAC for Adult Care Questionnaire (January 2012) Version Youth 4 (items 15 and 16 are not part of the scale, but separate indicators) - Items 1 to 1 Knowledge Scale trongly agree = 4 Scoring: S trongly disagree = 1 Disagree = 2, Agree = 3, S Items 6 are not included in the score. 15 and 1 14 to 56 Sum item scores. Scores range from . , 6 , and 8 are not scored. *If youth indicate they are not taking any medications items 7 1 to 44 . Scores range from 1 Behaviour Index Items 17 to 25 – A lways = 5 Scoring: Never = 1, Rarely = 2, Sometimes = 3, Often = 4, Raw Score s range from 9 to 45 - sum item scores. Score *If youth indicate they are not taking any medications item 23 is not scored. Scores range from 8 to 40. Cut - off Score – items 17 to 25 are given a 0 if threshold is not met and a 1 if the threshold Behaviour Item thresholds: . is met Question 17 Often or higher – 18 Sometimes or higher Question – – Sometimes or higher Question 19 Question 20 Sometimes or higher – 21 – Sometimes or higher Question Question 22 – Often or higher Question 23 Often or higher – Question – Often or higher 24 Question 25 – Often or higher Threshold scores are summed. Youth need a cut - off score of at least 8 or 9 to be deemed ready for transition to adult care. * If youth indicate they are not taking any medications item 23 is not scored and youth need off score of at least 7 or 8 to be deemed ready for transition to adult care. a cut -

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