DDS RD 17 final web

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1 Department of Human Services Division of Disability Services RESOURCES New Jersey RESOURCES RESOURCES RESOURCES RESOURCES RESOURCES RESOURCES RESOURCES 2017 RESOURCES RESOURCES

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3 erviceS of epartment D H uman S 700 ox po B nJ 08625-0700 renton t e HriStie c c HriS onnoLLy LizaBetH c Governor a ctinG c ommiSSioner im G , uaDaGno K Governor . t L Dear Reader: Welcome! The New Jersey Resources 2017 directory is the seventeenth annual edition pub- lished by the New Jersey Department of Human Services’ Division of Disability Services (DDS). This publication continues to be one of the department’s most sought after resources for people with disabilities, their family members and advocates because of its comprehen- sive, statewide directory of programs and services. DDS has provided this consumer friendly, useful tool, which identifies all levels of govern- ment, community organizations and professionals working to assist people with disabilities. The publication provides access to up-to-date information that individuals with disabilities, along with their families, may need to flourish in their physical, professional and recreational lives. As in previous years, it will be made available online in English, Spanish, and in audio for- mat, so that individuals and agencies can access just the services they need and can make print copies, only as necessary. The website is www.state.nj.us/humanservices/dds. A certified Information and Referral Specialist can be reached to discuss any individual con- cerns, problems or issues, and can provide direct assistance by phone at 1-888-285-3036 (toll free). . Your interest and support is appreciated Regards, Elizabeth Connolly Acting Commissioner New Jersey Is An Equal Opportunity Employer 3

4 S D D NJ Division of Disability Services CONTACT INFORMATION (888) 285-3036 Joseph M. Amoroso, Director PO Box 705 Trenton, NJ 08625-0705 MAILING ADDRESS: (888) 285-3036 (Toll-Free) TELEPHONE: (609) 631-4365 FAX: www.state.nj.us/humanservices/dds INTERNET: WHAT’S NEW IN THE 2017 EDITION · The ABLE Act pages 2 & 8 NJ Reach Addictions Helpline pages 8 & 58 · Resources for Communication Disorder page 22 · USING RESOURCES 2017 Developed by the New Jersey Department of Human Services’ Division of Disability Services, New Jersey Resources 2017 provides easy access to information about programs and services available to residents liv- ing and working with disabilities, as well as families, advocates, and professional communities working to assist people with disabilities. New Jersey Resources is updated annually and released in May of each year. REPORTING CORRECTIONS AND UPDATES The programs and agencies listed in this directory are asked to report any changes as quickly as possible. Dianna Maurone Submit changes to: [email protected] NEED ADDITIONAL ASSISTANCE? Should you require additional information, please call the Division of Disability Services at 1-888-285- 3036 and speak with an Information and Referral Specialist. DISCLAIMER The Division of Disability Services reserves the right to publish items selectively, as space permits. Listed items are not necessarily under the jurisdiction of the Department of Human Services and the listing does not imply an endorsement of the program.

5 TABLE OF CONTENTS DIVISION OF DISABILITY SERVICES ... 1-2 STATE GOVERNMENT AGENCIES ... 3 I DISABILITY RELATED STATE GOVERNMENT RESOURCES ... II 4-15 III COUNTY RESOURCES ... 16-19 20-26 IV DISABILITY SPECIFIC RESOURCES ... V INTERNET RESOURCES ... 27-28 ADVOCACY AND LEGAL RESOURCES ... VI 29-30 VII PROFESSIONAL AND PROVIDER ORGANIZATIONS ... 31 VIII SERVICE DOG RESOURCES ... 31 IX 31 RECREATION RESOURCES ... 32 X TECHNOLOGY RESOURCES ... NATIONAL RESOURCES ... 32-33 XI XII RESEARCH RESOURCES ... 34 XIII RIGHTS AND LAWS ... 34-36 XIV HEALTH COVERAGE AND HEALTH CARE ASSISTANCE ... 37-41 XV FINANCIAL ASSISTANCE ... 42-43 XVI EARLY INTERVENTION RESOURCES ... 44 XVII EDUCATION RESOURCES ... 45 XVIII 46-49 EMPLOYMENT AND TRAINING RESOURCES ... HOUSING RESOURCES ... XIX 50 XX CAREGIVER RESOURCES AND PERSONAL ASSISTANCE SERVICES ... 51-52 XXI 53 TRANSPORTATION RESOURCES ... SERVICES FOR CHILDREN ... 54-55 XXII APPENDIX 1 Accessible Parking Placard or Plates ... 56 APPENDIX 2 Special Needs Adoption and Foster Care ... 56-57 APPENDIX 3 People First Language ... 57 APPENDIX 4 58 Addiction Resources ... 58 APPENDIX 5 Service Dogs ... Disaster Preparedness Checklist for People with Disabilities ... APPENDIX 6 59-60 APPENDIX 7 Traveling with a Disability ... 61 APPENDIX 8 Famous ADA Cases ... 62 APPENDIX 9 Hotlines & Toll-Free Numbers ... 63 APPENDIX 10 Accessible Communications ... 64 GLOSSARY ... 64-67 ABBREVIATIONS AND ACRONYMS ... 68 69-80 INDEX ... 5

6 tiate assessments for the determination of MLTSS DIVISION OF DISABILITY eligibility for children, 17 years old and younger, SERVICES (DDS) who are not otherwise eligible for NJ Medicaid. (For more information on MLTSS, see page 8) 1-888-285-3036 www.state.nj.us/humanservices/dds DDD/DDS Case Management Collaboration Continuing the collaborative effort that began MISSION STATEMENT - in 2009, DDS’ I & R Specialists remain the pri “The first place to call for disability-related mary contact for some adults registered with the information.” Division of Developmental Disabilities (DDD) - who live, either independently or with their fami Within the Department of Human Services, the - lies, and benefit from information regarding insur Division of Disability Services (DDS) provides a ance, benefits, transportation, education, future single point of entry for people seeking disability - employment and available resources that are pro related information in New Jersey. DDS works vided by organizations other than DDD. to streamline access to services and information that promote and enhance independent living for Traumatic Brain Injury Fund individuals with all disabilities by facilitating The TBI Fund provides New Jersey residents of coordination and cooperation among local, coun- any age, who have survived a Traumatic Brain ty, and state government agencies. DDS promotes Injury, the opportunity to access the brain injury maximum independence and the full participation related services and supports they need to live in of people with disabilities within all aspects of the community. The Fund purchases supports and community life. DDS serves individuals with all services to foster independence and maximize disabilities, statewide. quality of life when insurance, personal resources, and/or public programs are unavailable to meet OFFICE OF INFORMATION AND those needs. ASSISTANCE SERVICES Personal Assistance Services Program (PASP) Information and Referral Services PASP is a supplemental, personal care program, Nationally Certified Information and Referral designed for New Jersey residents, ages 18 to Specialists (I & R Specialists) are available during 70, who have a permanent physical disability, regular business hours, Monday through Friday, to are capable of directing their own services, and confidentially discuss issues, provide information, are either employed, preparing for employment, assist with problem solving, and connect individ- involved in community volunteer work, or attend- uals to appropriate agencies or services. Through ing school. PASP allows consumers to receive our toll free hotline, DDS responds to as many up to 40 hours of service per week, therefore as 15,000 requests each year for Information and enabling them to maintain their independence in Referral Assistance. In addition to providing live the community. Personal assistants help with such assistance over the phone, I & R specialists attend tasks as light housekeeping, bathing, dressing, public events throughout the State to disseminate meal preparation and shopping. (See Page 51) information and answer questions. Last year, DDS I & R specialists attended over 200 public (PPP) Personal Preference Program events. PPP offers an alternative way for individuals to receive their Medicaid Personal Care Assistance Managed Long Term Services and Supports (PCA) services. Using the “Cash & Counseling” (MLTSS) Enrollment Assistance model, PPP enables elderly and disabled Medicaid MLTSS refers to the delivery of long-term services recipients to self-direct their Medicaid PCA ser- and supports through New Jersey Medicaid’s NJ vices. Using a monthly budget, participants work FamilyCare managed care program. MLTSS is with a consultant to develop a Cash Management - designed to provide the long term supports and ser Plan (CMP) which identifies the services needed vices individuals need to remain in the community and the individuals/agencies they want to hire for as long as possible. DDS I & R Specialists ini - to provide those services. Fiscal management 1

7 services are provided to assist consumers with the Community Discharge Initiative financial aspects of the program including payroll, DDS Staff can assist individuals in hospital and nurs- bookkeeping, processing timesheets, and issuing pay- ing homes who have expressed a desire to return to checks. PPP requires greater individual responsibility the community to make attainable discharge plans and but, in return, offers participants greater control, flex- identify supports and resources. ibility, and choice over the services they receive. (See Page 51) I Choose Home New Jersey (also known as Money Follows the Person) SPECIAL PROJECTS AND INITIATIVES In collaboration with other State agencies, DDS is Sandy Relief Home Access Program working to promote I Choose Home – NJ, an initiative Through a Social Services Block Grant, DDS is admin- focused on providing opportunities for individuals who istering a program to replace, repair, or build a modular are eligible for Medicaid and have been living in an ramp for individuals whose primary residence was institutional setting for more than 90 days, to return impacted by Superstorm Sandy. Stair glides or vertical to an independent community setting with necessary platform lifts are also available where ramps are not supports and services. For more information: deemed feasible. This time limited program will oper- 1-855-466-3005 www.ichoosehome.nj.gov ate through September 2017. The Able Act NJ Workability The ABLE Act is a new law that allows accumulated The WorkAbility program offers people with dis- savings for disability related expenses without jeop- abilities who are working and whose income would ardizing entitlement services. Please contact DDS for otherwise make them ineligible for Medicaid, the more information. opportunity to pay a small premium and receive full NJ STATUTORY ADVISORY BOARDS AND COUNCILS Medicaid coverage. People with disabilities who are DDS serves as staff to the mandated advisory councils employed and are between the ages of 16 and 64 can listed below. qualify for the program with an annual gross earned (See Page 49) income of up to approximately $61,500. Traumatic Brain Injury Advisory Council Composed of 26 members, the TBI Council holds Disability Health and Wellness Initiatives quarterly public meetings to advise the Department (DH&W) of Human Services of issues relevant to brain injury The DH&W program, funded by various grant pro- services. grams, works to collaborate with policy makers, health educators, public and private agencies, and experts Personal Assistance Services Advisory in the field of health and wellness on projects that Council promote healthy living and prevention of secondary Composed of 19 members, the PASP advisory Council conditions for people with disabilities. The Division meets quarterly to serve as a means for consumers to continuously seeks funding for initiatives that will offer feedback that is used to review and evaluate the help meet those needs. Recent project topics have effectiveness of the PASP program and to recommend Addressing Violence Against included the following: changes on a statewide level. Women with Disabilities, Emergency Food Provider Accessibility Project, Emergency Planning and PUBLICATIONS Disaster Preparedness for People with Disabilities, DDS publishes several guides/informational brochures . and a Health & Wellness Guide which are available to you free of charge, including New Jersey Guide to and the New Jersey Resources Access and Functional Needs (AFN) Accessible Parking. Most publications are available in Within the Department of Human Services, DDS 1-888-285- English and Spanish. Please contact us at serves as the lead for implementation of emergency to request a guide by mail or visit our website at: 3036 preparedness and disaster response, recovery, and www.dhs.state.nj.us/humanservices/dds mitigation efforts that are inclusive of people with dis- abilities and others with access and functional needs. DDS provides guidance, tools, methods and strategies to assist in establishing equal physical, program, and communication access. 2

8 STATE GOVERNMENT AGENCIES I The Office of the Governor and all state departments are listed below. Detailed information on agencies that specifically address the concerns of people with disabilities can be found in the subsequent sections of the directory. DEPARTMENT OF LAW & PUBLIC SAFETY OFFICE OF THE GOVERNOR FAX: (609) 292-4925 Tel: (609) 292-3508 Telephone: (609) 292-6000 www.state.nj.us/lps FAX: (609) 292-3454 Chris Christie, Governor DEPARTMENT OF MILITARY & VETERANS Kim Guadagno, Lt. Governor AFFAIRS State of New Jersey Tel: (609) 530-7191 FAX: (609) 530-6957 www.state.nj.us/military State of New Jersey Homepage DEPARTMENT OF STATE www.state.nj.us www.nj.gov (609) 777-1764 Tel: FAX: (609) 984-1900 www.state.nj.us/state DEPARTMENTS DEPARTMENT OF TRANSPORTATION DEPARTMENT OF AGRICULTURE Tel: (609) 530-2000 FAX: (609) 530-2919 (609) 292-3978 Tel: (609) 292-3976 FAX: www.nj.gov/transportation www.state.nj.us/agriculture DEPARTMENT OF THE TREASURY DEPARTMENT OF BANKING & INSURANCE (609) 292-6748 Tel: (609) 984-3888 FAX: (609) 984-5273 FAX: Tel: (609) 292-7272 www.state.nj.us/treasury www.state.nj.us/dobi NJ STATE POLICE (609) 882-2000 Tel: DEPARTMENT OF CHILDREN & FAMILIES www.njsp.org Tel: (609) 984-2581 (609) 888-7900 FAX: www.state.nj.us/dcf NJ Homeland Security DEPARTMENT OF COMMUNITY AFFAIRS www.njhomelandsecurity.gov Tel: (609) 292-6420 FAX: (609) 984-6696 866-4-SAFE-NJ www.state.nj.us/dca NJ State Police www.njsp.org DEPARTMENT OF CORRECTIONS NJ Office of Emergency Management (609) 292-4036 FAX: Tel: (609) 292-9083 www.state.nj.us/njoem www.state.nj.us/corrections 609-882-2000 DEPARTMENT OF EDUCATION (for emergencies, call “911”) Tel: FAX: (609) 292-4469 (609) 777-4099 www.state.nj.us/education Office of Legislative Services 800-792-8630 DEPARTMENT OF ENVIRONMENTAL PROTECTION (609) 292-7695 FAX: (609) 292-2885 Tel: DID YOU KNOW? www.state.nj.us/dep The NJ Special Needs Registry collects infor- DEPARTMENT OF HEALTH mation emergency responders will need to Tel: (800) 367-6543 (609) 292-7837 help locate and evacuate people with special needs during an emergency. The registry is www.state.nj.us/health completely voluntary and does not disclose DEPARTMENT OF HUMAN SERVICES your information to anyone outside of the FAX: Tel: (609) 292-3717 (609) 292-3824 immediate emergency response community. www.state.nj.us/humanservices To register go to: www. registerready.nj.gov or call 211. DEPARTMENT OF LABOR & WORKFORCE DEVELOPMENT Tel: (609) 292-2323 FAX: (609) 633-9271 See pages 59-60 for more information on disas- lwd.dol.state.nj.us/labor ter preparedness for people with disabilities. 3

9 DISABILITY RELATED STATE GOVERNMENT RESOURCES II viduals with disabilities as equally entitled members FEDERALLY MANDATED DEVELOPMENTAL of society. DRNJ advocates for and provides educa- DISABILITY AGENCIES tion, training and technical assistance to individuals with disabilities, the agencies that serve them, attor- NEW JERSEY COUNCIL ON neys, professionals, courts and others regarding the DEVELOPMENTAL DISABILITIES rights of individuals with disabilities. The New Jersey Council on Developmental Disabilities is New Jersey’s planning body for devel- In addition to protection and advocacy services, opmental disability issues. Members are appointed DRNJ maintains the Assistive Technology Advocacy by the governor and approved by the New Jersey Center (ATAC), which works to make assistive Senate. The Council includes people with develop- devices and services more accessible to individuals mental disabilities, parents/guardians, non-govern- with disabilities throughout the state. mental service providers, and representatives from state agencies that provide services to people with Disability Rights New Jersey developmental disabilities and to their families. 210 South Broad Street, 3rd Floor Trenton, NJ 08608 The Council develops and monitors the State Plan for (609) 292-9742 Telephone: Services to People with Developmental Disabilities, (800) 922-7233 Toll Free: administers the federally assisted Basic State Grant (609) 633-7106 TDD: mag- Program, and publishes People and Families (609) 777-0187 FAX: azine. www.drnj.org New Jersey Council on Developmental Disabilities DISABILITY RIGHTS NEW JERSEY PO Box 700 AT A GLANCE Trenton, NJ 08625-0700 Telephone: (800) 792-8858 (toll free) • Protection and Advocacy for Persons with (609) 292-3745 Developmental Disabilities (PADD) TDD: (609) 777-3238 Protection and Advocacy for Individuals • FAX: (609) 292-7114 with Mental Illness (PAIMI) www.njcdd.org • Protection and Advocacy of Individual Rights (PAIR) NEW JERSEY COUNCIL ON DEVELOPMENTAL DISABILITIES Client Assistance Program (CAP) • AT A GLANCE • Protection and Advocacy for Assistive • Family Support • People First Technology (PAAT) New Jersey • Youth Leadership • Partners In Policymaking • Inclusive Education Healthcare Consumer Assistance Program • For Information: (609) 292-3745 (HCCAP) • Assistive Technology Advocacy Center (ATAC) DISABILITY RIGHTS NEW JERSEY • Protection and Advocacy for Individuals with Disability Rights New Jersey (DRNJ) is a private, Traumatic Brain Injury (PATBI) non-profit, consumer-directed organization that serves as New Jersey’s federally funded agency for • Protection and Advocacy for Beneficiaries of Social Security (PABSS) people with disabilities. • Protection and Advocacy for Voter Access The program was established to advocate for and (PAVA) advance the human, civil and legal rights of citizens of New Jersey with disabilities. DRNJ works to For Information: (800) 922-7233 promote public awareness and recognition of indi- 4

10 ELIZABETH M. BOGGS CENTER ON BOGGS CENTER AT A GLANCE DEVELOPMENTAL DISABILITIES The Boggs Center addresses the needs of com - munities, people with disabilities, and families “A UNIVERSITY CENTER FOR EXCELLENCE IN DEVELOPMENTAL DISABILITIES EDUCATION, - through training and the dissemination of infor RESEARCH, AND SERVICE” mation and research in the focus areas of: • Self-Determination • Early Intervention The Boggs Center, as a University Center for and Education • Employment Excellence in Developmental Disabilities, values • Community Supports • Health uniqueness and individuality and promotes the self-determination and full participation of people For Information: (732) 235-9300 with disabilities and their families in all aspects of www.rwjms.rutgers.edu/boggscenter community life. The Elizabeth M. Boggs Center on Through partnerships and collaborations, the Boggs Developmental Disabilities/Rutgers University Center prepares students through interdisciplinary Rutgers Robert Wood Johnson Medical School programs, provides community training and techni- 335 George Street, Suite 3500 3rd Floor cal assistance, conducts research, and disseminates PO Box 2688 information and educational materials. New Brunswick, NJ 08901-2688 Telephone: (732) 235-9300 FAX: (732) 235-9330 www.rwjms.rutgers.edu/boggscenter/ KEYS TO SUCCESSFUL SELF-ADVOCACY 0 Make sure you have an accurate understanding of what is needed - When advocating for equipment or services, make sure you have all the details and product information. If insurance is being used, ask if there are preset guidelines or requisite information. This will save time during the application process. Your family doctor may be great, but 0 Be prepared to assist professionals who may have limited experience - he or she may have little or no experience in writing prescriptions for wheelchairs. Add your productive two-cents by discussing your needs, and giving as much detail as possible about what you are looking for. Some consumers prefer to use agencies for equipment and service evaluations before approaching a doctor for authorization. Understand your insurance benefits 0 - Review the terms of each program and policy. Pay careful attention to co-pays, service limits, replacement, and equipment ownership. These issues become especially important for par- ents with children, who will outgrow equipment, or whose functional abilities may change with time. Remember, you may always appeal an insurance company’s decision in the event of a denial, even an HMO. - 0 Seek help from others who have succeeded Peer support is the greatest tool to an advocate. The information that you get from peers can be priceless. Learn from those who have done it before. Include dates, all contact names, and phone numbers. 0 Keep accurate notes - 0 Find the line between advocacy and aggression - Successful advocates let the system work for them. Allow professionals to do their jobs. Stay vigilant, but don’t be a pest. Be prepared to wait - Most agencies have waiting lists, processing periods, and lots of paperwork to be done. 0 This takes time, so be prepared for some delays. 5

11 DEPARTMENT OF HUMAN SERVICES OFFICE OF THE COMMISSIONER PO Box 700 DHS provides support services for people with disabili- Trenton, NJ 08625-0700 ties, seniors, individuals and families with low incomes; Telephone: (609) 292-3717 people with mental illnesses, people with addictions, FAX: (609) 292-3824 people who are blind, visually impaired, deaf, hard of www.state.nj.us/humanservices hearing, or deaf-blind; parents needing child care ser- HOTLINES vices, child support and/or healthcare for their children; PAAD/Senior Gold Hotline (800) 792-9745 and families facing catastrophic medical expenses for their children. NJ Addictions Hotline (800) 238-2333 COMMISSION FOR THE BLIND AND NJ Mental Health Cares (866) 202-HELP VISUALLY IMPAIRED (CBVI) Aging and Disability Resource Connection The Commission for the Blind and Visually Impaired (ADRC) (877) 222-3737 (CBVI), established in 1910, is one of the oldest, contin- ually operating agencies in New Jersey state government. NJ DHS Long Term Care Information Line CBVI provides a wide range of educational services for (877) 222-3737 children, vocational rehabilitation services for older teens and adults, and independent living services for peo- CBVI CENTRAL REGION OFFICE ple of all ages in New Jersey who are blind or visually FREEHOLD SERVICE CENTER (FSC): impaired. CBVI also offers a number of special programs 100 Daniels Way, Freehold, NJ 07728 and services that address specific needs of individuals Telephone: (732) 308-4001 Fax: (732) 308-4104 who are blind or visually impaired. CBVI programs and (Hunterdon, Monmouth, Mercer, Middlesex, Ocean, services are available to any New Jersey resident who Somerset, and Union counties) meets the vision criteria. Depending on family income, CBVI JOSEPH KOHN REHABILITATION CENTER (JKRC) some people who apply are required to pay a share of the 130 Livingston Avenue, New Brunswick, NJ 08901 cost of programs or services. (732) 937-6363 Fax: (732) 247-6628 Telephone: COMMISSION FOR THE BLIND AND VISUALLY IMPAIRED (CBVI) - CENTRAL DIVISION OF AGING SERVICES OFFICE The Division of Aging Services (DoAS), New Jersey’s PO Box 47017 lead agency for providing services to seniors, is respon- 153 Halsey Street, 6th Floor sible for many of the programs formerly held under the Newark, NJ 07101 Department of Health and Senior Services including (973) 648-3333 Fax: (973) 648-2043 Telephone: Pharmaceutical Assistance to the Aged and Disabled www.state.nj.us/humanservices/cbvi (PAAD), Senior Gold, Adult Protective Services, CBVI FIELD OFFICES: Lifeline Utility Assistance, and Hearing Aid Assistance to the Aged and Disabled. CBVI Metro/Northern Region Office Newark Service Center (NSC): DIVISION OF AGING SERVICES PO Box 47017 12D Quakerbridge Plaza 153 Halsey Street, 5th Floor PO Box 807 Newark, NJ 07101 Trenton, NJ 08625-0807 (973) 648-2111 Fax: (973) 648-7674 Telephone: Telephone: (800) 792-8820 (Bergen, Essex, Hudson, Morris, Passaic, Sussex, and www.state.nj.us/humanservices/doas/home Warren counties) Division of Aging Services at a Glance CBVI Southern Region Office • PAAD/Senior Gold Cherry Hill Service Center (CHSC): • Managed Long Term Services 2201 Route 38 East, Suite 600, Cherry Hill, NJ 08002 and Supports (MLTSS) (856) 482-3700 Fax: (856) 482-3770 Telephone: • Aging and Disability Resource Connection (Atlantic, Burlington, Camden, Cape May, Cumberland, (ADRC) / Area Agency on Aging (AAA) Gloucester, and Salem counties) • Alzheimer’s Day Services • Adult Protective Services Atlantic City Services Center • Lifeline Utility Assistance 1300 Atlantic Avenue, 3rd Floor • State Health Insurance Program (SHIP) Atlantic City, NJ 08401 • Specified Low - Income Medicare Beneficiary (SLMB) Telephone: (609) 441-3074 Fax: (609) 441-3079 6 (Atlantic, Cape May, Cumberland, and Salem counties)

12 DIVISION OF DEAF AND HARD OF HEARING DDD COMMUNITY SERVICES OFFICES: Through education, advocacy and direct services, the Division of the Deaf and Hard of Hearing (DDHH) Flanders Office works to eliminate barriers and promote increased acces- Morris, Sussex, Warren Counties sibility to programs, services, and information to individ- 1B Laurel Drive, Flanders, NJ 07836 uals who are deaf and/or hard of hearing. DDHH main- (973) 927-2600 FAX: (973) 927-2689 Telephone: tains up-to-date resources on hearing loss, and provides Paterson Office the following services: communication access referral, Bergen, Hudson, Passaic Counties equipment distribution programs, technical assistance, 100 Hamilton Plaza, 7th Floor stakeholder communications, and advocacy. Paterson, NJ 07505 (973) 977-4004 FAX: (973) 279-5069 Telephone: DIVISION OF DEAF AND HARD OF HEARING PO Box 074 Newark Office Trenton, NJ 08625-0074 Essex County Telephone (Voice/TTY):(800) 792-8339 153 Halsey Street, 2nd Floor FAX: (609) 588-2528 PO Box 47013, Newark, NJ 07101 www.state.nj.us/humanservices/ddhh/home Telephone: (973) 693-5080 FAX: (973) 648-3999 New Jersey Hearing Aid Project, See page 38 Plainfield Office DIVISION OF DEVELOPMENTAL Union, Somerset Counties- intake only DISABILITIES (DDD) 110 East Fifth Street The Division of Developmental Disabilities (DDD) pro- Plainfield, NJ 07060 vides funding for services and supports that assist adults, (908) 226-7800 FAX: (908) 412-7903 Telephone: age 21 and older, with developmental disabilities. Most services are offered in the community by community Somerset Office provider agencies. To receive DDD services, an individ- Somerset County- case management only ual must meet functional criteria eligibility and Medicaid 275 Greenbrook Road, 2nd Floor eligibility. Functional criteria consist of a severe, chronic Green Brook, NJ 08812 physical and/or intellectual disability that manifests in (732) 424-3301 Fax: (732) 968-8163 Telephone: the developmental years (before age 22), is life-long, Freehold Office and substantially limits at least three of these life Monmouth, Ocean Counties activities: self-care, learning, mobility, communication, Juniper Plaza, Suite 1-J self-direction, economic self-sufficiency and the ability 3499 Route 9 North, Freehold, NJ 07728 to live independently. All individuals must maintain (732) 863-4500 FAX: (732) 863-4406 Telephone: Medicaid eligibility in order to receive services through the Division. Trenton Office Hunterdon, Mercer, Middlesex Counties Qualifying conditions may include cerebral 120 South Stockton Street palsy, epilepsy, spina bifida, autism or a neuro- P.O. Box 706 logical impairment. Trenton, NJ 08625 DDD funds three types of services: Telephone: (609) 292-1922 FAX: (609) 292-2629 • Day services, including supports for people Voorhees Office who are employed Burlington, Camden, Gloucester Counties • Residential services that support an individual Echelon Plaza in the community 221 Laurel Road, Suite 210 • Services that support a family caring for a loved Voorhees, NJ 08043 one at home (856) 770-5900 FAX: (856) 770-5935 Telephone: DIVISION OF DEVELOPMENTAL Mays Landing Office DISABILITIES (DDD) - CENTRAL OFFICE Atlantic, Cape May, Cumberland, Salem Counties PO Box 726, Trenton, NJ 08625-0726 5218 Atlantic Avenue, Suite 205 (800) 832-9173 (609) 631-2200 Telephone: Mays Landing, NJ 08330 (609) 631-2221 FAX: (609) 476-5200 FAX: (609) 909-0656 Telephone: www.state.nj.us/humanservices/ddd/home 7

13 nization (MCO) contracted with New Jersey’s Medicaid DIVISION OF MENTAL HEALTH AND program, NJ FamilyCare. Previously, these services were ADDICTION SERVICES coordinated by various State and County offices. For more The Division of Mental Health and Addiction Services information: (DMHAS) serves adults with serious and persistent www.nj.gov/humanservices/dmahs/home/mltss.html mental illnesses and/or addiction. DMHAS operates psy- chiatric hospitals, monitors and helps fund psychiatric To apply for MLTSS: and substance abuse treatment and prevention services 18 years or older: Contact your County Aging and provided by a number of county hospitals, and contracts Disability Resource Center (ADRC) or your County Board with more than 120 agencies for a wide range of commu- of Social Services. See pages 19 and 17, respectively, for a nity mental health services. listing of those numbers by County. DIVISION OF MENTAL HEALTH AND 17 years old or younger: Contact the Division of Disability ADDICTION SERVICES Services at 1-888-285-3036 and follow the prompts to PO Box 700, Trenton, NJ 08625 speak with an Information and Referral Specialist. (See Telephone: (800) 382-6717 (609) 777-0702 Page 1) FAX: (609) 341-2302 For Medical Assistance Customer www.state.nj.us/humanservices/dmhas/home Centers (MACCs), See Page 39 NJMentalHealthCare s NJMentalHealthCares is New Jersey’s mental health infor - DIVISION OF FAMILY DEVELOPMENT mation and referral service. Our staff of mental health pro - PO Box 716 fessionals use their experiences and understanding of the Trenton, NJ 08625-0716 mental health system to connect you to the information and Telephone: (609) 588-2400 FAX: (609) 584-4404 services you need! www.state.nj.us/humanservices/dfd/home (866) 202-HELP (4357) TTY: (877) 294-4356 www.njmentalhealthcares.org DIVISION OF DISABILITY SERVICES 8:00 a.m. - 8:00 p.m. PO Box 705 Connects to mental health services, including: inpatient • Trenton, NJ 08625 and outpatient services, rehabilitation services, self-help (888) 285-3036 FAX: Telephone: (609) 631-4365 - services, legal, housing, employment, mental health educa tion, and more! www.state.nj.us/humanservices/dds/home Reach NJ Addictions Helpline See Page 1 and 2 for more information on DDS - This helpline provides an individualized assessment of call ers’ needs. The helpline offers service focused on addiction, and serves as a one-stop shop resource to residents seeking Central Registry of Offenders Against Individuals help. People can reach out 24 hours a day , seven days a week. with Developmental Disabilities (844) ReachNJ / (844) 732-2465 http://reachnj.gov A “Central Registry of Offenders Against Individuals For Addiction Resources, See Page 58 with Developmental Disabilities” was established in the Department of Human Services (DHS). It requires DIVISION OF MEDICAL ASSISTANCE AND DHS to maintain a confidential list of caregivers work- HEALTH SERVICES ing in these programs who have been determined to PO Box 712, Trenton, NJ 08625-0712 have abused, neglected, or exploited an individual with Telephone: (609) 588-2600 FAX: (609) 588-3583 www.nj.gov/humanservices/dmahs/home a developmental disability. The toll-free number to . report abuse is (800) 832-9173 MANAGED LONG TERM SERVICES AND SUPPORTS (MLTSS) The Managed Long Term Services and Supports pro- THE ABLE ACT gram or MLTSS is a New Jersey initiative intended to The ABLE Act allows families to set aside funds into provide a new and better way to help seniors and individ- a new kind of tax-free savings account, for individuals uals with disabilities live at home for as long as possible. who became disabled prior to the age of 26. The purpose The initiative uses managed care organizations to coordi- of an ABLE account is to enable people with disabilities nate support services according to a participant’s needs. and their families to save and pay for disability-related Participants will receive their primary, acute, behavioral expenses without jeopardizing entitlement services. Please and long term care needs through a managed care orga- contact DDS for more information. 8

14 DEPARTMENT OF HEALTH OFFICE OF THE COMMISSIONER PO Box 360 The Department of Health is responsible for protecting Trenton, NJ 08625 the public’s health, inspecting state health care facilities Telephone (609) 292-7837 and overseeing city and county health departments. Toll-Free: (800) 367-6543 www.nj.gov/health OFFICE OF MINORITY AND Statewide Family Centered HIV MULTICULTURAL HEALTH Care Network (609) 777-7795 PO Box 360 Trenton, New Jersey 08625 Telephone: (609) 292-6962 Newborn Screening and Genetic Services FAX: (609) 292-8713 (609) 292-1582 www.nj.gov/health/omh Special Child Health Services DIVISION OF HIV, STD, and TB SERVICES (609) 777-7778 PO Box 363 Also See Page 37 Trenton, NJ 08625-0363 Telephone: (609) 984-5874 (609) 633-2494 FAX: Special Supplemental Nutrition Program for www.nj.gov/health/aids Women, Infants, and Children (WIC) (609) 292-9560 • NJ AIDS/STD Hotline Also See Page 37 (800) 624-2377 DIVISION OF HEALTH FACILITIES • AIDS Drug Distribution Program (ADDP) EVALUATION AND LICENSING (877) 613-4533 PO Box 367 Trenton, NJ 08625-0365 Telephone: (609) 633-8977 • Health Insurance Continuation Program (HICP) FAX: (609) 633-9060 (800) 353-3232 www.nj.gov/health/healthfacilities DIVISION OF FAMILY HEALTH SERVICES Health Care Facility Consumer Complaint PO Box 364 (800) 792-9770 Hotline Trenton, NJ 08625-0364 (609) 292-4043 Telephone: (609) 292-9599 FAX: CENTER FOR HEALTH STATISTICS www.nj.gov/health/fhs/index.shtml PO Box 360 Trenton, NJ 08625-0360 Telephone: (609) 984-6702 Early Intervention Systems (EIS) (609) 984-7633 FAX: Project Child Find (888) 653-4463 Also See Page 44 9

15 DEPARTMENT OF COMMUNITY AFFAIRS OFFICE OF THE COMMISSIONER PO Box 800 The Department of Community Affairs provides a vari- Trenton, NJ 08625-0800 ety of services to low-income families, women, and Telephone: (609) 292-6420 people with disabilities. Services include assistance with FAX: (609) 984-6696 rentals, the federal Section 8 voucher program, emergen- www.state.nj.us/dca cy shelter grants and homelessness prevention. DIVISION OF HOUSING DIVISION OF CODES AND STANDARDS PO Box 051 PO Box 802 Trenton, NJ 08625-0051 Trenton, NJ 08625-0802 Telephone: (609) 633-6303 (609) 292-7899 Telephone: (609) 292-9653 FAX: FAX: (609) 633-6729 www.state.nj.us/dca/divisions/dhcr www.state.nj.us/dca/divisions/codes OFFICE OF RECREATION DIVISION OF FIRE SAFETY PO Box 811 PO Box 809 Trenton, NJ 08625-0811 Trenton, NJ 08625 (609) 292-5855 Telephone: Telephone: (609) 633-6106 FAX: (609) 292-9798 (609) 633-6134 FAX: www.state.nj.us/dca/divisions/dhcr/rec www.state.nj.us/dca/divisions/dfs/index.shtml For more information on the Division of Fire Safety, See Page 60 For information on the New Jersey Housing and Mortgage Finance Agency, See Page 50 For a list of Homelessness Prevention Programs by County, See Pages 50 DEPARTMENT OF COMMUNITY AFFAIRS OFFICE OF REGULATORY AFFAIRS The Office of Regulatory Affairs is responsible for the enforcement of the New Jersey Barrier Free Sub-Code. Complaints can be made verbally or in writing to: Supervisor of Investigations Department of Community Affairs Office of Regulatory Affairs PO Box 818 Trenton, NJ 08625 Telephone: (609) 984-7672 FAX: (609) 984-7718 www.state.nj.us/dca/divisions/codes/offices/regaffairs.html WHEN MAKING A COMPLAINT, PLEASE HAVE THE FOLLOWING INFORMATION: 0 The complete address of the building that is thought to be non-compliant. 0 A brief explanation of how the building seems to be non-compliant. 10

16 DEPARTMENT OF EDUCATION OFFICE OF THE COMMISSIONER PO Box 500 The Department of Education is responsible for over- Trenton, NJ 08625-0500 seeing more than 600 school districts and administering Telephone: (609) 292-4469 education programs to more than 1.4 million public and FAX: (609) 777-4099 nonpublic elementary and secondary school children. www.state.nj.us/education In January 2016, Governor Christie signed legisla- For information on the New Jersey tion establishing the Office of the Special Education Higher Education Student Ombudsman within this Department in an effort to offer Assistance Authority, See Page 45 valuable resources and support for parents with children in the special education system. At the time of this pub- lication, contact information for that office has not yet been made available. OFFICE OF STATE ASSESSMENTS DIVISION OF LEARNING SUPPORTS AND PO Box 500 SPECIALIZED SERVICES Trenton, NJ 08625-0500 PO Box 500 (609) 984-6311 Telephone: Trenton, NJ 08625-0500 FAX: (609) 984-6032 Telephone: (609) 292-9899 www.state.nj.us/education/assessment (609) 633-1046 FAX: www.state.nj.us/education/students/safety MARIE KATZENBACH SCHOOL FOR THE DEAF OFFICE OF SPECIAL EDUCATION POLICY PO Box 535 AND PROCEDURE West Trenton, NJ 08625-0535 PO Box 500 (609) 530-3100 Telephone: Trenton, NJ 08625-0500 (609) 530-6620 FAX: TDD: (609) 530-5791 (609) 292-0147 Telephone: www.mksd.org FAX: (609) 984-8422 www.state.nj.us/education/specialed LEARNING RESOURCE CENTERS AT A GLANCE Learning Resource Centers are funded through the Individuals with Disabilities Education Act (IDEA), Part B Funds. The centers provide research reports, curriculum guides, books, videos and audio tapes, as well as training and workshops, for www.state.nj.us/education/lrc parents and educators of students with disabilities. Learning Resource Center-Northern Region Learning Resource Center-Central Region 7 Glenwood Avenue, 2nd Floor, Suite 201 200 Riverview Plaza, First Floor East Orange, NJ 07017 P.O. Box 500 Trenton, NJ 08625 Telephone: (973) 414-4491 Telephone: (609) 633-8893 FAX: (973) 414-4496 Bergen, Essex, Hudson, Morris, Passaic, FAX: (609) 633-8968 Serving: Hunterdon, Mercer, Middlesex, Monmouth, Sussex, and Warren Counties Serving: Ocean, Somerset, and Union Counties Learning Resource Center-Northern Satellite Learning Resource Center-Southern Region Building 100 104 American Road, Samuel H. Jones Innovation Center Morris Plains, NJ 07950 107 Gilbreth Parkway, Suite 200 Telephone: (973) 631-6345 Mullica Hill, NJ 08062 FAX: (973) 631-6350 Telephone: (856) 582-7000 TDD: (973) 631-6490 FAX: (856) 582-4323 Morris, Sussex, and Warren Counties Serving: Serving: Atlantic, Burlington, Camden, Cape May, Cumberland, Gloucester, and Salem Counties 11

17 DEPARTMENT OF LABOR & WORKFORCE OFFICE OF THE COMMISSIONER DEVELOPMENT PO Box 110 Trenton, NJ 08625-0110 The Department of Labor & Workforce Development Telephone: (609) 292-2323 promotes economic activity, monitors labor standards, FAX: (609) 633-9271 and administers federally funded programs such as work- lwd.dol.state.nj.us ers compensation, temporary disability insurance and Division of Workers’ Compensation unemployment compensation. Within the Department, the (609) 292-2515 Division of Vocational Rehabilitation Services is responsi- ble for training and job placement of persons with disabili- State Temporary Disability Benefits ties who are within employable age. (609) 292-7060 WORKFORCE DEVELOPMENT Long Term Disability Determinations (866) 920-6997 (973) 648-2983 V/TTY PO Box 055 Trenton, NJ 08625 Unemployment Insurance Telephone: (609) 659-9045 FAX: (609) 777-0483 Northeast New Jersey (201) 601-4100 www.wnjpin.state.nj.us Northwest and Central New Jersey (732) 761-2020 DIVISION OF VOCATIONAL REHABILITATION SERVICES South Jersey (856) 507-2340 1 John Fitch Plaza PO Box 398 Out-of-State (888) 795-6672 Trenton, NJ 08625-0398 Telephone: (609) 292-5987 FAX: (609) 292-8347 www.jobs4jersey.com/jobs4jersey/jobseekers/disable VOCATIONAL REHABILITATION AT A GLANCE CRITERIA Any person with a physical or mental impairment which is a substantial impediment to employment may qualify - for vocational rehabilitation services. Each consumer is evaluated individually for eligibility and needed assis tance. Individuals who are blind or have a serious visual impairment are served by the Commission for the Blind (CBVI). All others receive service from the New Jersey Division of Vocational Rehabilitation Services (DVRS). SERVICES PROVIDED 0 Diagnostic Evaluation 0 Individual Vocational Counseling and Guidance 0 Job Seeking Skills Training and Selective Job Placement 0 Follow-Up Support Services 0 Post-Employment Services 0 Physical Restoration 0 Job Coaching, Vocational, Professional, or On the Job Training FEE FOR SERVICE Many of the services listed above are provided free of charge. Coverage of expenses for medical services, train - ing, books and supplies, tools, and other equipment are based on an individual’s ability to pay. DIVISION OF VOCATIONAL REHABILITATION SERVICES (609) 292-5987 www.jobs4jersey.com/jobs4jersey/jobseekers/disable FOR A LIST OF OFFICES, SEE PAGES 46-47 COMMISSION FOR THE BLIND & VISUALLY IMPAIRED (973) 648-3333 www.state.nj.us/humanservices/cbvi/services/vocation/index.html FOR A LIST OF OFFICES, SEE PAGE 6 12

18 DEPARTMENT OF CHILDREN & FAMILIES OFFICE OF THE COMMISSIONER PO Box 729 The New Jersey Department of Children and Families Trenton, NJ 08625 (DCF) is the state’s first comprehensive agency ded- Telephone: (609) 888-7900 icated to ensuring the safety, well-being and success FAX: (609) 777-2070 of children, youth, families and communities. Some of www.state.nj.us/dcf the divisions/offices DCF encompasses includes the following: Adolescent Services; Advocacy; Centralized For general information about Child Abuse/Neglect Hotline; Child Protection and DCF programs and services: Permanency (formerly Youth and Family Services); 1-855-INFO-DCF (1-855-463-6323) or Children’s System of Care (formerly Child Behavioral [email protected] Health Services); Family and Community Partnerships See also services for Children, page 54 (formerly Prevention and Community Partnerships); Specialized Education Services; and Division on Women DOMESTIC VIOLENCE HOTLINE (transferred from DCA). (800) 572-SAFE (7233) CHILDREN’S SYSTEM OF CARE (FORMERLY For other Hotlines and Helplines, CHILD BEHAVIORAL HEALTH SERVICES) www.state.nj.us/dcf/families/ please visit: DCF’s Division of Children’s System of Care, CSOC, hotlines (formerly the Division of Child Behavioral Health Services) serves children and adolescents with emotional and behavioral health care challenges and their families; the supports and services for children under the age and children with intellectual/developmental disability. of 21 with developmental/intellectual disabilities, for- www.state.nj.us/dcf/families/csc merly provided by the Department of Human Services - Division of Developmental Disabilities (DDD). For As of January 2013, the New Jersey Department of information on the transition and the application process, Children and Families - Division of Children’s System please call PerformCare. of Care (CSOC) assumed responsibility for providing What is PerformCare? The State of New Jersey has contracted with PerformCare to administer the publicly-funded developmental disabil- ity service delivery system for children up to age 21. This transition is a result of the state government restructuring initiated by Governor Christie, which moved the responsibility for providing services to children with develop- mental disabilities from the Department of Human Services’ Division of Developmental Disabilities (DDD) to the Department of Children and Families’ Children’s System of Care (CSOC). PerformCare has been administering the State’s Child Behavioral Health System of Care for many years. The expansion of this System of Care model to also serve children with intellectual and developmental disabilities is a significant step forward. This integrated approach will allow for better coordinated care. As of January 2013, PerformCare has become your point of contact to assist in coordinating the care for your child that had previously been managed by DDD. PerformCare 300 Horizon Drive, Suite 306 Robbinsville, NJ 08691 Toll-free: 1-877-652-7624 Fax: 1-877-736-9166 www.performcarenj.org 13

19 DEPARTMENT OF LAW AND OFFICE OF THE ATTORNEY GENERAL PUBLIC SAFETY PO Box 080 Richard J. Hughes Justice Complex The Department of Law & Public Safety houses the 25 Market Street Division on Civil Rights, which investigates allegations Trenton, NJ 08625-0080 of discrimination. The department also contains the Telephone: (609) 292-4925 Attorney General’s Office and divisions dealing with Fax: 609-292-3508 criminal justice, consumer affairs, monitoring of pro- www.nj.gov/oag fessional boards, and enforcement of the Wheelchair For information on the Lemon Law. Wheelchair Lemon Law, DIVISION ON CIVIL RIGHTS See Page 34 PO Box 089 DIVISION OF CONSUMER AFFAIRS PO Box 090 (Complaints) 124 Halsey Street, 7th floor Trenton, NJ 08625 Newark, NJ 07101 (609) 292-4605 Telephone: Telephone: (973) 504-6200 (609) 292-1785 TTY: (800) 242-5846 (609) 984-3812 FAX: (973) 273-8035 FAX: www.nj.gov/oag/dcr/index.html www.njconsumeraffairs.gov Disabilities and Public Accommodations Special The Division on Civil Rights has established a Investigations Unit (DPA) to work closely with advocacy groups for the disabled and pursue investigations that will have the greatest impact on addressing system-wide discrimination, partic- ularly in places of public accommodation. For Branch Offices, See Page 30 DEPARTMENT OF MILITARY AND OFFICE OF THE ADJUTANT GENERAL VETERANS AFFAIRS PO Box 340 Trenton, NJ 08625 In addition to serving as the headquarters for the New Telephone: (609) 530-6956 Jersey Army and Air National Guard, the New Jersey FAX: (609) 530-7191 Department of Military and Veterans Affairs, under the www.state.nj.us/military direction of the Adjutant General, is the government NJ Veterans Affairs agency responsible for the administration of state provid- www.state.nj.us/military/veterans ed veterans programs and services within the state. NJ Veterans Guide www.state.nj.us/military/veterans DIVISION OF VETERANS njguide/index.html HEALTHCARE SERVICES PO Box 340 NJ Veterans Hotlines: Benefits Hotline Trenton, NJ 08625-0340 888-8NJ-VETS (888-865-8387) (609) 530-6967 Telephone: (609) 530-6970 FAX: Counseling Hotline 866-VETS-NJ4 (866-838-7654) National Call Center for Homeless Veterans (877) 424-3838 Disabled Veterans Resources on the Web Wounded Warrior Project www.woundedwarriorproject.org Disabled American Veterans www.dav.org www.asdv.org Association for Service Disabled Veterans 14

20 DEPARTMENT OF TREASURY OFFICE OF THE STATE TREASURER PO Box 002 The Department of Treasury assumes responsibility Trenton, NJ 08625 for three major functions: generation and collection of Telephone: (609) 292-5031 revenue, management of assets, and statewide support FAX: (609) 292-6145 services. The Department also houses the Office on www.state.nj.us/treasury Disabilities Management that is responsible for issues of compliance with the Americans with Disabilities Act DIVISION OF TAXATION (ADA) in state owned buildings and state run programs. www.state.nj.us/treasury/taxation/email.shtml OFFICE OF DISABILITIES MANAGEMENT General Tax Information PO Box 034 (609) 826-4400 Trenton, NJ 08625-0034 Telephone: (609) 292-7299 (800) 323-4400 (609) 292-6525 TDD & FAX: www.state.nj.us/treasury/dpmc/Property_management_ Customer Service Center disabilities.shtml (609) 292-6400 OFFICE OF THE CORRECTIONS OMBUDSMAN Homestead Rebate Hotlines: PO Box 855 (888) 238-1233 Trenton, NJ 08625 (609) 633-2596 Telephone: Property Tax Reimbursement (609) 633-8644 FAX: (Senior Freeze) www.state.nj.us/correctionsombudsman (800) 882-6597 OFFICE OF THE OMBUDSMAN FOR THE INSTITUTIONALIZED ELDERLY PO Box 852 Trenton, NJ 08625-0852 Telephone: (877) 582-6995 FAX: (609) 943-3479 www.nj.gov/ooie THE OFFICE OF DISABILITIES MANAGEMENT AT A GLANCE The Office of Disabilities Management is responsible for the following areas: Barrier Free Compliance of state owned and operated facilities. 0 Implementation and assistance to allow access to all programs, services and activities offered by the State of New 0 Jersey. Technical assistance and advice concerning accessibility standards and adaptive devices to allow full inclusion by 0 persons with disabilities. Funding for modifications needed to ensure accessibility to all state owned and operated facilities. 0 15

21 COUNTY RESOURCES III COUNTY OFFICES FOR PEOPLE WITH DISABILITIES County Offices for the Disabled function as clearinghouses for information about programs and services, advocate for people with disabilities, and provide technical assistance at a local level. Offices identified with also serve as the County Aging and Disability Resource Connection/Area Agency on Aging (ADRC/ * an AAA). See page 19 for more information on ADRC/AAA. ATLANTIC COUNTY DIVISION OF INTERGENERATION- * * HUDSON COUNTY DEPARTMENT OF HEALTH AND AL SERVICES, AGING & DISABILITY RESOURCE HUMAN SERVICES, OFFICE OF DISABILITY SERVICES CONNECTION 830 Bergen Ave 4B Shoreview Building Jersey City, NJ 07306 101 South Shore Road (201) 369-5280 x4142 Telephone: Northfield, NJ 08225 Telephone: (888) 426-9243 * HUNTERDON COUNTY DIVISION OF SENIOR, Outside of NJ: (609) 645-5965 DISABILITY, AND VETERANS SERVICES PO Box 2900 BERGEN COUNTY DIVISION ON DISABILITY 4 Gauntt Place SERVICES Flemington, NJ 08822 One Bergen County Plaza, 2nd Floor (908) 788-1361 Telephone: Hackensack, NJ 07601 Telephone: (201) 336-6500 * MERCER COUNTY OFFICE FOR THE DISABLED TTY: (201) 336-6505 640 South Broad Street, PO Box 8068 Trenton, NJ 08611 BURLINGTON COUNTY OFFICE FOR THE DISABLED Telephone: (609) 989-6661 c/o Resources for Independent Living 351 High Street, Suite 103 MIDDLESEX COUNTY OFFICE ON AGING * Burlington City, NJ 08016 AND DISABILITY SERVICES Telephone: (609) 747-7745 75 Bayard Street, 5th Floor * CAMDEN COUNTY AGING AND DISABILITY New Brunswick, NJ 08901 RESOURCE CONNECTION Voice/TTY: (732) 745-3295 512 Lakeland Road Blackwood, NJ 08012 MONMOUTH COUNTY OFFICE ON DISABILITIES * Telephone: (856) 858-3220 3000 Kozloski Road Freehold, NJ 07728 CAPE MAY COUNTY DEPARTMENT OF * Telephone: (732) 308-3770 x7116 AGING AND DISABILITY SERVICES 4005 Route 9 South * MORRIS COUNTY DIVISION OF AGING, DISABILITY Rio Grande, NJ 08242 AND VETERANS SERVICES (609) 886-2784 Telephone: 340 West Hanover Avenue CUMBERLAND COUNTY OFFICE ON AGING * Morris Plains, NJ 07950 AND DISABLED PO Box 900, Morristown, NJ 07900-0900 800 E. Commerce Street (973) 285-6855 Voice: Bridgeton, NJ 08302 OCEAN COUNTY COMMISSION FOR INDIVIDUALS Voice/TTY: (856) 453-2220 WITH DISABILITIES ESSEX COUNTY OFFICE FOR THE DISABLED 1027 Hooper Avenue, Building 2, 3rd Floor 50 South Clinton Street, Suite 4300 PO Box 2191, Toms River, NJ 08754 Voice/TDD: (732) 506-5062 East Orange, NJ 07018 (973) 395-8494 Telephone: * PASSAIC COUNTY SENIOR, DISABILITY SERVICES, GLOUCESTER COUNTY DIVISION OF DISABILITY SERVICES * AND VETERANS AFFAIRS 930 Riverview Drive, Suite 200, Totowa, NJ 07512 115 Budd Blvd. (973) 569-4060 Telephone: West Deptford, NJ 08096 (856) 384-6841 Telephone: 16

22 SALEM COUNTY OF AGING AND DISABILITY SERVICES * * UNION COUNTY OFFICE FOR THE DISABLED 98 Market Street, Salem, NJ 08079 Union County Administration Building (856) 339-8622 Telephone: 4th Floor, 10 Elizabethtown Plaza Elizabeth, NJ 07207 * SOMERSET COUNTY AGING AND DISABILITY Voice/TDD: (908) 527-4845 RESOURCE CONNECTION 27 Warren Street, 1st floor WARREN COUNTY OFFICE FOR THE DISABLED PO Box 3000, Somerville, NJ 08876 c/o DAWN, Inc. Telephone: (908) 704-6346 66 Ford Road, Suite 121 Denville, NJ 07834 SUSSEX COUNTY DEPARTMENT OF HUMAN SERVICES, * Telephone: (973) 625-1940 DIVISION OF SENIOR AND DISABILITY SERVICES (888) 383-DAWN 1 Spring Street, 2nd Floor VRS 973-453-4689 Newton, NJ 07860 Telephone: (973) 579-0555 COUNTY BOARDS OF SOCIAL SERVICE COUNTY CRISIS INTERVENTION CONTACTS The Boards of Social Service deliver financial aid and The numbers listed below provide callers with access support to individuals and families. to emergency services and counseling for non-medical emergencies and crisis intervention: ATLANTIC COUNTY (609) 348-3001 BERGEN COUNTY (201) 368-4200 (609) 344-1118 ATLANTIC COUNTY (609) 261-1000 BURLINGTON COUNTY (201) 262-4357 BERGEN COUNTY CAMDEN COUNTY (856) 225-8800 (609) 835-6180 BURLINGTON COUNTY (609) 886-6200 CAPE MAY COUNTY CAMDEN COUNTY (856) 428-4357 (856) 691-4600 CUMBERLAND COUNTY (609) 465-5999 CAPE MAY COUNTY (856) 455-5555 CUMBERLAND COUNTY (973) 733-3000 ESSEX COUNTY ESSEX COUNTY (973) 266-4478 GLOUCESTER COUNTY (856) 582-9200 GLOUCESTER COUNTY (856) 845-9100 HUDSON COUNTY (201) 420-3000 (866) 367-6023 HUDSON COUNTY HUNTERDON COUNTY (908) 788-1300 (908) 788-6400 HUNTERDON COUNTY (609) 989-4320 MERCER COUNTY MERCER COUNTY (609) 396-4357 (732) 745-3500 MIDDLESEX COUNTY (855) 515-5700 MIDDLESEX COUNTY (732) 431-6000 MONMOUTH COUNTY MONMOUTH COUNTY (732) 923-6999 MORRIS COUNTY (973) 326-7800 (973) 625-0280 MORRIS COUNTY OCEAN COUNTY (732) 349-1500 OCEAN COUNTY (732) 886-4474 PASSAIC COUNTY (973) 881-0100 (973) 754-2230 PASSAIC COUNTY (856) 299-7200 SALEM COUNTY SALEM COUNTY (856) 299-3001 SOMERSET COUNTY (908) 526-8800 (908) 526-4100 SOMERSET COUNTY SUSSEX COUNTY (973) 383-3600 SUSSEX COUNTY (973) 383-0973 (908) 965-2700 UNION COUNTY (908) 994-7131 UNION COUNTY (908) 475-6301 WARREN COUNTY WARREN COUNTY (908) 454-5141 Social Services at a Glance Work First NJ • Emergency Assistance • Food Stamps Medicaid • Kinship Care • Supports for Working Families New Jersey’s 24/7 Peer Support & Suicide Home Energy Assistance • Homeless Sheltering Prevention Hotline Child Care • Child Support 1-855-NJ-HOPELINE (1-855-654-6735) NJHelps is a free and easy guide for you to Specialists are available for confidential determine the programs and assistance for telephone counseling and support which you and your family may be eligible. 24 hours a day, 7 day per week. www.mynjhelps.org 17

23 CENTERS FOR INDEPENDENT LIVING Centers for Independent Living (many funded through the Division of Vocational Rehabilitation Services) are communi- ty-based, consumer-driven organizations that provide peer counseling, skills training, advocacy, information and referral, and a variety of services based on individual needs. NEW JERSEY STATEWIDE INDEPENDENT LIVING COUNCIL DIAL, INC. (Essex and Passaic Counties) The New Jersey Statewide Independent Living Council 2 Prospect Village Plaza, First Floor (SILC) is a 17-member body appointed by the Governor Clifton, NJ 07013 which maximizes opportunities for people with (973) 470-8090 Telephone: disabilities through planning and advocacy. (973) 556-0226 VRS: www.njsilc.org www.dial-cil.org ALLIANCE CENTER FOR INDEPENDENCE HEIGHTENED INDEPENDENCE & PROGRESS (HIP) (Middlesex, Somerset, Union Counties) (Bergen County) 629 Amboy Avenue, 1st Floor, Suite 104 131 Main Street, Suite 120 Edison, NJ 08837 Hackensack, NJ 07601 (732) 738-4388 Telephone: Telephone: (201) 996-9424 (201) 996-9100 TDD: TDD: (732) 738-9644 www.hipcil.org www.adacil.org HEIGHTENED INDEPENDENCE & PROGRESS-HUDSON (Hudson County) ARTEMIS CENTER FOR INDEPENDENT LIVING 35 Journal Square, Suite 703 (Atlantic County) Jersey City, NJ 07306 4 Jimmie Leeds Road, Suite 7 Telephone: (201) 533-4407 TDD: (201) 533-4409 Galloway, NJ 08205 www.hipcil.org Telephone: (609) 748-2253 www.artemiscil.org MOCEANS CENTER FOR INDEPENDENT LIVING (Monmouth and Ocean County) CAMDEN CITY INDEPENDENT LIVING CENTER Monmouth County Branch: 279 Broadway, Suite 201 (City of Camden) Long Branch, NJ 07740 Virtua Camden (732) 571-4878 (732) 571-4884 TDD: Telephone: 1000 Atlantic Avenue Camden, NJ 08104 Ocean County Branch: 1027 Hooper Avenue, Building 6, 3rd Floor Telephone: (856) 966-0800 Toms River, NJ 08753 TDD: (856) 966-0830 (732) 505-2310 Telephone: www.camdencityilc.org www.moceanscil.org CENTER FOR INDEPENDENT LIVING OF SOUTH JERSEY, INC. (CIL-SJ) PROGRESSIVE CENTER FOR INDEPENDENT LIVING (PCIL) (Hunterdon and Mercer Counties) (Camden and Gloucester Counties) Mercer County Branch: 1150 Delsea Drive, Suite 1 & 2 3525 Quakerbridge Road, Suite 904 Westville, NJ 08093 Hamilton NJ 08619 (856) 853-6490 Telephone: (609) 581-4500 Telephone: (609) 581-4555 TDD: DAWN, INC. Hunterdon County Branch: (Morris, Sussex and Warren Counties) 4 Walter E. Foran Blvd., Suite 410 66 Ford Road, Suite 121 Flemington, NJ 08822 Denville, NJ 07834 Telephone: (908) 782-1055 (877) 376-9174 (973) 625-1940 (888) 383-DAWN Telephone: TDD: (908) 782-1081 VRS: (973) 453-4689 www.pcil.org www.dawncil.org RESOURCES FOR INDEPENDENT LIVING (RIL) (Burlington, Cape May, Cumberland, Salem Counties) 351 High Street, Suite 103 CENTERS FOR INDEPENDENT LIVING AT A GLANCE Burlington City, NJ 08016 • Peer Support (609) 747-1875 (609) 747-7745 TDD: Telephone: • Individual and System Advocacy www.rilnj.org • Independent Living Skills Training • Development of Independent Living Plans 18

24 PROGRAM OF ALL INCLUSIVE CARE FOR THE ELDERLY (PACE) PACE Centers: PACE is an innovative program, funded by Medicare and LIFE St. Francis: 609-599-5433 (serving Mercer • Medicaid, that provides frail individuals, age 55 and older, County, Bordentown, Florence, and Roebling) comprehensive medical and social services coordinated www.stfrancismedical.org/LIFE/Overview.aspx and provided by a team of professionals in a communi- • LIFE at Lourdes: 856-675-3675 (serving most Camden ty-based center and in their homes, helping program par- County communities) ticipants delay or avoid long-term nursing home care. To www.lourdesnet.org/programs-and-services/life-at- participate in PACE, an individual must be 55 years of age lourdes or older, require nursing home level of care but be able to • Lutheran Senior LIFE: 877-543-3188 (serving most of live safely in the community at time of enrollment with the Hudson County) services of PACE, and reside in the service area of a PACE www.lsmnj.org/how-we-help/senior-healthcare-retire- organization. You can leave a PACE program at any time. ment-living/lutheran-senior-life-jersey-city/ Four PACE agencies are currently operating in New Jersey • Inspira LIFE: 855-295-5433 (serving portions of and you must live in their coverage area (see zip codes) to s) Cumberland, Gloucester, and Salem Countie participate. For more information, contact the PACE agen- http://www.inspirahealthnetwork.org/life-center cy serving your area. • Beacon of LIFE: 732-592-3400 (serving portions of http://www.state.nj.us/humanservices/doas/services/pace Monmouth County) http://www.beaconhss.com www.adrcnj.org Aging and Disability Resource Connection (ADRC)/Area Agency on Aging (AAA) Through the Division of Aging Services, in partnership with County Government, the Aging and Disability Resource Connection/Area Agency on Aging (AAA) serves as the lead agency for seniors and their caregivers to access information, community services, and long term services and supports. Services available to eligible individuals may include: outreach, case management, transportation, senior centers, volunteer opportunities, health promotion, nutrition programs, education, health insurance counseling, adult protective services, senior employment, respite care options, and information on housing and long-term care options. For more information, contact your county ADRC/AAA at the numbers below. (732) 745-3295 Atlantic County ... Middlesex County ... (609) 645-5965 Monmouth County ... (732) 431-7450 Bergen County ... (201) 336-7400 Morris County ... (973) 285-6848 (609) 265-5069 Burlington County ... (856) 858-3220 (732) 929-2091 Ocean County ... Camden County ... (609) 886-2784 Passaic County ... (973) 569-4060 Cape May County ... (856) 453-2220 Cumberland County ... Salem County ... (856) 339-8622 (973) 395-8375 Essex County ... Somerset County ... (908) 704-6346 Gloucester County ... (856) 384-6900 Sussex County ... (973) 579-0555 Union County ... Hudson County ... (201) 369-4313 (908) 527-4870 (908) 475-6591 Hunterdon County ... (908) 788-1361/1362/1363 Warren County ... (609) 989-6661 Mercer County ... ADULT PROTECTIVE SERVICES The role of Adult Protective Services (APS) is to investigate complaints of suspected abuse, neglect, and/or exploitation of vulnerable adults aged 18 or older. A complaint to APS will generate a thorough assessment, which will include a private face-to-face interview with the potentially at-risk adult, to determine if intervention is warranted. All information generated by the investigation is confidential. A report of suspected abuse may be made to the Aging and Community Services Information and Referral toll-free number at 800-792-8820 or to the APS office in the county in which the indi- vidual lives. County Adult Protective Services Middlesex County ... (732) 745-3635 Atlantic County ... (609) 645-5965 Bergen County ... (201) 368-4300 Monmouth County ... (732) 531-9191 (973) 326-7282 (609) 518-4793 Burlington County ... Morris County ... (732) 349-1500 Ocean County ... (856) 225-8178 Camden County ... (973) 881-2616 Passaic County ... Cape May County ... (609) 886-6200 (856) 339-8622 Cumberland County ... (856) 825-0255 x208 Salem County ... Essex County ... (973) 596-1146 (908) 526-8800 Somerset County ... (856) 582-9200 Gloucester County ... (973) 383-3600 Sussex County ... (908) 497-3902 (201) 537-5631 Union County ... Hudson County ... Hunterdon County ... Warren County ... (908) 788-1300 (908) 475-6591 Mercer County ... (609) 989-4346 19

25 DISABILITY SPECIFIC RESOURCES IV The following agencies are categorized by target disability as a matter of reference, although some may serve multiple populations. Where a local website was not available, a national website has been provided. Most agencies provide services statewide. AIDS/HIV AUTISM/ASPERGERS/ASD Hyacinth AIDS Foundation Asperger Autism Spectrum Education Network 317 George Street, Suite 203 (ASPEN) New Brunswick, NJ 08901 9 Aspen Circle, Edison, NJ 08820 Telephone: (800) 433-0254 (Toll-Free) Telephone: (732) 321-0880 (732) 246-0204 (outside NJ) FAX: (732) 744-1622 www.hyacinth.org www.aspennj.org [email protected] email: ALZHEIMER’S DISEASE Autism Family Services of New Jersey Alzheimer’s New Jersey 1 AAA Drive, Suite 203 400 Morris Avenue, Suite 251 Trenton, NJ 08691 Denville, NJ 07834 (877) 237-4477 (Toll-Free) Telephone: Telephone: (800) 883-1180 (Toll-Free) FAX: (609) 392-5621 (973) 586-4300 www.autismfamilyservicesnj.org (973) 586-4342 FAX: www.alznj.org Autistic Self Advocacy Network PO Box 66122 Delaware Valley Chapter Washington, DC 20035 3 Eves Drive, Suite 310 (202) 596-1056 Telephone: Marlton, NJ 08053 New Jersey Chapter (856) 797-1212 Telephone: www.autisticadvocacy.org (856) 797-1818 FAX: Autism New Jersey www.alz.org/nj/ 500 Horizon Drive, Suite 530 AMYOTROPHIC LATERAL SCLEROSIS (ALS) Robbinsville, NJ 08691 Neuromuscular and ALS Center (609) 588-8200 Telephone: Rutgers-Robert Wood Johnson Medical School (800) 4-AUTISM (Toll-Free) 125 Paterson Street, Suite 6100 (609) 588-8858 FAX: New Brunswick, NJ 08901 www.autismnj.org Telephone: (732) 235-7331 POAC (Parents of Autistic Children) web.rwjms.rutgers.edu/nmalsweb/ 1989 Route 88 ALS Association Brick, NJ 08724 Greater Philadelphia Chapter Telephone: (732) 785-1099 321 Norristown Rd. Suite 260 FAX: (732) 785-1003 Ambler, PA 19002 www.poac.net (215) 643-5434 Telephone: FAX: (215) 643-9307 AUTOIMMUNE DISORDERS www.alsphiladelphia.org American Autoimmune Related Diseases Association ARTHRITIS/FIBROMYALGIA 22100 Gratiot Avenue Arthritis Foundation-New Jersey Chapter Eastpointe, MI 48021 555 Route 1 South, Suite 220 (586) 776-3900 Telephone: Iselin, NJ 08830 www.aarda.org (888) 467-3112 (Toll-Free) Telephone: (732) 283-4300 For a list of National Resources, FAX: (732) 283-4633 See Pages 32 and 33 www.arthritis.org Local website: www.arthritis.org/new-jersey 20

26 Cerebral Palsy League BLIND/VISUALLY IMPAIRED (908) 709-1800 For the NJ Commission for the Blind and www.thecplinc.org Visually Impaired (CBVI), See page 6 LADACIN Network National Federation of the Blind-NJ (732) 493-5900 254 Spruce Street www.ladacin.org Bloomfield, NJ 07003 Telephone: (973) 743-0075 Cerebral Palsy of North Jersey www.nfbnj.org (973) 763-9900 www.cpnj.org Eyes Like Mine, Inc PO Box 10125 North Jersey Elks Developmental Disabilities Agency Newark, NJ 07101 (NJEDDA) (862) 600-2144 Telephone: (973) 772-2600 www.eyeslikemine.org www.njedda.org Parents of Blind Children-NJ United Cerebral Palsy of Hudson County 23 Alexander Avenue Madison, NJ 07940 721 Broadway 973-377-0976 Telephone: Bayonne, NJ 07702 Email: [email protected] (201) 436-2200 www.blindchildren.org www.ucpofhudsoncounty.org New Jersey Council of the Blind New Jersey Institute for Disabilities (NJID) 153 Franklin Corner Road 10A Oak Drive Lawrenceville, NJ 08648-2501 Edison, NJ 08837 Telephone: (609) 912-0657 Telephone: (732) 549-6187 www.njcounciloftheblind.org FAX: (732) 549-0629 www.cpamc.org Mercer County Association of the Blind PO Box 55042 Githens Center Trenton NJ 08638 (Burlington County Cerebral Palsy Association) 40 Cedar Street Vision Loss Alliance of NJ Mount Holly, NJ 08060 155 Morris Ave, Suite 2 Telephone: (609) 261-1667 Denville, NJ 07834 FAX: (609) 261-1844 (973) 627-0055 Telephone: www.githenscenter.org (973) 627-1622 FAX: www.vlanj.org CANCER American Cancer Society-NJ The Friends of the NJ Library for the Blind and www.cancer.org Handicapped (NJLBH) PO Box 434 Northern Region: 20 Mercer Street Woodbridge NJ 07095-0434 Hackensack, NJ 07601 Telephone (609) 888-5459 Telephone: (201) 343-2222 www.friendsnjlibraryfortheblind.org Metro NJ Region: 986 South Springfield Ave Springfield, NJ 07081 CEREBRAL PALSY Telephone: (973) 379-2830 Alliance for the Betterment of Citizens with Disabilities 2600 US Highway 1 Central Region: (ABCD) North Brunswick, NJ 08908 US Highway 206, Suite 18 127 Telephone: (732) 297-8000 Hamilton, NJ 08610 FAX: (732) 297-9043 Telephone: (609) 581-8375 FAX: (609) 581-8512 Jersey Shore Region: 2310 Route 34 Suite 1D www.abcdnj.org Manasquan NJ 08736 Telephone: (732) 292-3112 For the Division of Developmental Disabilities, See Page 7 21

27 1851 Old Cuthbert Rd South Jersey Region: University Communication Disorder Centers Cherry Hill NJ 08034 Telephone: (856) 616-1650 Kean University Center for Communication • Disorders (908) 737-5816 CARDIAC/HEART DISEASE • Monmouth University Center for Speech and American Heart and Stroke Association Language Disorders (732) 923-4547 1 Union Street, Suite 301 • Montclair University Center for Audiology and Robbinsville, NJ 08691 Speech-Language Pathology Audiology Clinic Telephone: (609) 208-0020 (973) 655-3934 FAX: (609) 208-2906 Speech Clinic (973) 655-6917 www.heart.org Stockton University Speech and Hearing Clinic • CHRONIC DISEASE SELF (609) 652-4920 MANAGEMENT PROGRAM William Paterson University Speech and Hearing • www.state.nj.us/humanservices/doas/home/cds- Clinic mpprograms.html (973) 720-2207 CHRONIC FATIGUE SYNDROME CROSS-DISABILITY NJCFSA (New Jersey Chronic Fatigue Syndrome Advancing Opportunities Association, Inc.) 1005 Whitehead Road Ext., Suite 1 PO Box 477 Ewing, NJ 08638 Florham Park, NJ 07932 Telephone: (609) 882-4182 Email: [email protected] (888) 322-1918 (Toll-free) www.njmecfsa.org TTY: (609) 882-0620 (609) 882-4054 FAX: CROHN’S DISEASE www.advopps.org Crohn’s and Colitis Foundation of America New Jersey Chapter Elizabeth M. Boggs Center on Developmental 45 Wilson Avenue Disabilities Manalapan, NJ 07726 335 George Street, Suite 3500, PO Box 2688 Telephone: (732) 786-9960 New Brunswick, NJ 08903-2688 FAX: (732) 786-9964 Telephone: (732) 235-9300 www.ccfa.org FAX: (732) 235-9330 www.rwjms.rutgers.edu/boggscenter COGNITIVE/INTELLECTUAL DISABILITY The Arc of New Jersey Community Access Unlimited 985 Livingston Avenue 80 West Grand Street, Elizabeth, NJ 07202 North Brunswick, NJ 08902 (908) 354-3040 Telephone: Telephone: (732) 246-2525 FAX: (908) 354-2665 FAX: (732) 214-1834 www.caunj.org www.arcnj.org Community Options, Inc. To Find a Local Chapter of the Arc of New Jersey, 16 Farber Road, Princeton, NJ 08540 Click on Find a Chapter www.arcnj.org visit: Telephone: (609) 951-9900 FAX: (609) 951-9112 COMMUNICATION DISORDER www.comop.org Adler Aphasia Center 60 West Hunter Avenue Easter Seals New Jersey Maywood, NJ 07607 25 Kennedy Blvd., Suite 600 Telephone: (201) 368-8585 East Brunswick, NJ 08816 (732) 257-6662 Telephone: www.AdlerAphasiaCenter.org (732) 257-7373 FAX: www.easterseals.com/nj 22

28 Alexander Graham Bell Association Spectrum for Living PO Box 161 210 Rivervale Road, Suite 3 Glen Rock, NJ 07452 River Vale, NJ 07675 Email: [email protected] Telephone: (201) 358-8000 www.agbellnj.org (866) 367-7732 FAX: (201) 358-8089 Better Hearing Institute www.spectrumforliving.org 1444 I Street, NW, Suite 700 Washington, DC 20005 Statewide Parent Advocacy Network (SPAN) Voice: (800) 327-9355 (202) 449-1100 35 Halsey Street, 4th Floor www.betterhearing.org Newark, NJ 07102 (800) 654-7726 Telephone: Hearing Loss Association of America (973) 642-8100 New Jersey State Association FAX: (973) 642-8080 Telephone (732) 475-7399 www.spanadvocacy.org www.hearingloss-nj.org CYSTIC FIBROSIS The New Jersey Chapter of the Association of Cystic Fibrosis Foundation Late-Deafened Adults-Garden State (ALDA-GS) Greater New Jersey Chapter www.aldagardenstate.com/ 1719 Rt. 10, Suite 229 Parsippany, NJ 07054 North West Jersey Association for the Deaf (NWJAD) Telephone 973-656-9200 www.nwjad.org www.cff.org NJ Association of the Deaf, Inc. (NJAD) DEAF/BLIND www.deafnjad.org American Association of the Deaf-Blind c/o Mark Gasaway DIABETES 3825 LaVista Road, W-2 American Diabetes Association Tucker, GA 30084 NJ Chapter Email: [email protected] 1160 Route 22 E., Suite 103 www.aadb.org Bridgewater, NJ 08807 (732) 469-7979 Telephone: For the NJ Commission for the Blind and (888) DIABETES Visually Impaired (CBVI), See page 6 FAX: (908) 722-4887 www.diabetes.org Helen Keller National Center Diabetes Self Management Program 141 Middle Neck Rd. www.state.nj.us/humanservices/doas/home/cds- Sands Point, NY 11050 mpprograms.html (516) 944-8900 Voice: DOWN SYNDROME (516) 944-8637 TTY: Bringing Up Down Syndrome (BUDS) (516) 570-3646 Video phone: 504 Centennial Blvd. #1444 www.hknc.org Voorhees, NJ 08043 (856) 985-5885 Telephone: TCNJ Center for Sensory & Complex Disabilities www.bringingupdownsyndrome.org PO BOX 7718 Ewing, NJ 08628 The Down Syndrome Association of Central NJ (DACNJ) Telephone: (609) 771-3083 180 Ewingville Road www.njcscd.org Ewing, NJ 08638 (866) Down Syn (866) 369-6796 Telephone: DEAF/HARD OF HEARING www.dsacnj.org New Jersey Division of Deaf and Hard of Hearing (800) 792-8339 Telephone The Down Syndrome Group of Northwest New Jersey www.nj.gov/humanservices/ddhh/home www.dsgnwnj.org 23

29 HUNTINGTON’S DISEASE Jersey Shore Down Syndrome Association www.jsdsa.org Huntington’s Disease Society of America PO Box 2103 Knowledge and Information about Individuals with Clifton, NJ 07015 Down Syndrome (K.I.I.D.S) (973) 250-6660 Telephone: www.kiids.info www.hdsanj.org DWARFISM LEARNING DISABILITIES Little People of America The International Dyslexia Association (888) LPA (572)-2001 Telephone: New Jersey Branch lpaonline.org PO Box 32 Long Valley, NJ 07853 EATING DISORDERS Email only: [email protected] Food Addicts Anonymous www.njida.org (732) 244-4324 NJ Helpline www.foodaddictsanonymous.org Learning Disabilities Association of America New Jersey Chapter National Eating Disorders Association 614 Cranbury Road P.O. Box 6268 (800) 931-2237 East Brunswick, NJ 08816 www.nationaleatingdisorders.org Telephone: (732) 645-2738 www.ldanj.org EPILEPSY Epilepsy Foundation of New Jersey LUPUS 1 AAA Drive, Suite 203 Lupus Foundation of America Trenton, NJ 08691 NJ Chapter (800) 336-5843 Telephone: PO Box 1184 (609) 392-4900 150 Morris Avenue, Suite 102 FAX: (609) 392-5621 Springfield, NJ 07081 www.efnj.com Telephone: (800) 322-5816 (973) 379-3226 HEAD INJURY/TRAUMATIC BRAIN INJURY (TBI) FAX: (973) 379-1053 Brain Injury Alliance of New Jersey www.lupusnj.org 825 Georges Road, Second Floor North Brunswick, NJ 08902 Philadelphia TriState Chapter (732) 745-0200 Telephone: 101 Greenwood Ave, Suite 200 (800) 669-4323 Jenkintown, PA 19046 (732) 745-0211 FAX: Telephone: (215) 517-5070 www.bianj.org FAX: (215) 517-8483 www.lupus.org/tristate DID YOU KNOW? MENTAL ILLNESS The Division of Disability Services Mental Health Association in New Jersey administers the TBI Fund and is the lead 673 Morris Ave, Suite 100 state agency for services to individuals Springfield, NJ 07081 with brain injury. See Pages 1 and 2. (973) 571-4100 Telephone: (800) 367-8850 (Toll-free) FAX: (973) 218-0636 HEPATITIS www.mhanj.org Hepatitis Foundation International National Headquarters NAMI NJ (National Alliance on Mental Illness 8121 Georgia Avenue, Suite 350 of New Jersey) Silver Spring, MD 20910 1562 Route 130 Telephone: (800) 891-0707 North Brunswick, NJ 08902 FAX: (301) 565-9414 (732) 940-0991 Telephone: www.hepatitisfoundation.org (732) 940-0355 FAX: www.naminj.org 24

30 National Coalition for Mental Health Recovery Multiple Sclerosis Association of America 611 Pennsylvania Ave, SE # 133 National Headquarters Washington, DC 20003 733 3rd Avenue, 3rd floor Telephone: (877) 246-9058 New York, NY 10017 www.ncmhr.org Telephone: (800) 344-4867 (Toll Free) (800) 532-7667 (Toll Free) National Mental Health www.mymsaa.org/ Consumer’s Self-Help Clearinghouse 1211 Chestnut Street, Suite 1100 PARKINSON’S DISEASE Philadelphia, PA 19107 New Jersey American Parkinson Disease Association (800) 553-4539 (Toll-free) Telephone: 100 Kirkpatrick Street P.O. Box 910 (267) 507-3810 New Brunswick, NJ 08901 (215) 636-6312 FAX: (732) 745-7520 x1 Telephone: www.mhselfhelp.org (732) 745-3114 FAX: www.apdanj.org For the Division of Mental Health and Addiction Services, See Page 8 POLIO/POST-POLIO New Jersey Polio Network MUSCULAR DYSTROPHY PO Box 537 Muscular Dystrophy Association Martinsville, NJ 08836 5940 Hamilton Blvd., Suite F Telephone: (201) 845-6860 Allentown, PA 18106 www.njpolio.org (610) 391-1977 Telephone: (610) 391-0416 FAX: RESPIRATORY DISEASE www.mda.org American Lung Association Muscular Dystrophy Association New Jersey Chapter 600 Reed Rd, Suite 104 P.O. Box 10188 Broomall PA 19008 Newark, NJ 07101 Telephone: (610) 325-5758 (908) 685-8040 Telephone: FAX: (908) 685-8030 Muscular Dystrophy Association www.lung.org/associations/charters/mid-atlantic 25 E. Spring Valley Avenue, Suite 210 Maywood, NJ 07607 SICKLE CELL DISEASE (201) 843-4452 Telephone Sickle Cell Disease Association of America FAX: (201) 843-2324 SCDAA - Philadelphia/Delaware Valley Philadelphia Business and Technology Center 5070 Parkside Avenue, Suite 1404 MULTIPLE SCLEROSIS Philadelphia, PA 19131 National Multiple Sclerosis Society Telephone: (215) 471-8686 NJ Metro Chapter FAX: (215) 471-7441 Aspen Corporate Park 1 www.sicklecelldisorder.com 1480 U.S. Highway 9 North, Suite 301 Woodbridge, NJ 07095 Sickle Cell Association of NJ Telephone: (732) 660-1005 P.O. Box 9501 www.nationalmssociety.org/Chapters/NJM Newark NJ 07104 Multiple Sclerosis Society National (973) 482-9070 Telephone: Greater Delaware Valley Chapter 30 South 17th Street, Suite 800 SCLERODERMA Philadelphia, PA 19103 Scleroderma Foundation (Southern NJ) Telephone: (215) 271-2400 Delaware Valley Chapter FAX: (215) 271-6122 385 Kings Highway North www.nationalmssociety.org/Chapters/PAE Cherry Hill, NJ 08034 Telephone: (866) 675-5545 (856) 779-7266 Fax: www.scleroderma.org 25

31 Tri-State Chapter (Northern NJ) United Spinal Association 59 Front Street Resources Center Binghamton, NY 13905 (800) 962-9629 Telephone: Telephone: (607) 723-2239 (800) 867-0885 www.spinalcord.org FAX: (607) 723-2039 STROKE/CVA www.scleroderma.org American Stroke Association SENSORY IMPAIRMENTS 7272 Greenville Avenue Everas Community Services Dallas, TX 75231 (Formerly the New Jersey Association of the Deaf-Blind, Inc.) (888) 4-STROKE Telephone: 24 K World’s Fair Drive (888) 478-7653 Somerset, NJ 08873-1349 www.strokeassociation.org Telephone/TTY: (732) 805-1912 FAX: (732) 805-3088 TOURETTE SYNDROME www.everas.org New Jersey Center for Tourette Syndrome 50 Division Street, Suite 205 New Jersey Speech-Language-Hearing Association Somerville, NJ 08876 174 Nassau Street, Suite 337 (908) 575-7350 FAX: Telephone: (908) 575-8699 Princeton, NJ 08542 www.njcts.org (888) 729-3489 (888) 906-5742 FAX: Telephone: www.njsha.org Tourette Syndrome Association of New Jersey, Inc. PO Box 116 SPINA BIFIDA Somerville, NJ 08876 Spina Bifida Resource Network Telephone: (732) 972-4459 FAX: (908) 575-8699 (formerly Spina Bifida Association Tri-State Region) www.tsanj.org 84 Park Avenue, Suite G-106 Flemington, NJ 08822 TRANSPLANT (908) 782-6102 Telephone: (908) 782-7475 FAX: NJ Sharing Network www.thesbrn.org 691 Central Avenue New Providence, NJ 07974 SPINAL CORD INJURY (SCI) (800) 742-7365 Telephone: Christopher & Dana Reeve Paralysis Resource Center www.sharenj.org Short Hills Plaza 636 Morris Turnpike, Suite 3A Short Hills, NJ 07078 (800) 539-7309 FAX: Telephone: (973) 912-9433 www.christopherreeve.org NEW JERSEY SELF-HELP GROUP CLEARINGHOUSE Maintains information on thousands of local no-fee support groups in New Jersey, including many that address 0 disabilities, illnesses, caregiving, and parenting 0 Provides information about national and online support networks 0 Helps those interested in starting new support groups by providing free how-to materials, phone consultation, and training 0 Publishes an annual directory of support groups www.njgroups.org Telephone: (800) 367-6274 26

32 INTERNET RESOURCES V ADAPT (American Disabled for Attendant Disabled in Action Programs Today) www.disabledinaction.org www.adapt.org Disability History Museum www.disabilitymuseum.org Alliance for Inclusion in the Arts www.inclusioninthearts.org Disability Info American Association for Adapted Sports Programs www.disability.gov www.adaptedsports.org Disability Online www.disabilityonline.com American Association of People with Disabilities www.aapd.com Disability Social History Project www.disabilityhistory.org American Association on Intellectual & Developmental Disabilities Disabled Sports USA www.aaidd.org www.disabledsportsusa.org American Chronic Pain Association DO-IT Foundation www.theacpa.org www.washington.edu/doit American Disability Association (ADAnet) Eating Disorder Hope www.ADAnet.org http://www.eatingdisorderhope.com American Self-Help Clearinghouse Food Addicts in Recovery Anonymous (FA) www.selfhelpgroups.org www.foodaddicts.org Assistance Dogs International, Inc. www.assistancedogsinternational.org Genetic Alliance www.geneticalliance.org Center for an Accessible Society Harvard Law School Project on Disability www.accessiblesociety.org www.hpod.org Center for Hearing and Communication Health Care Coach www.chchearing.org www.healthcarecoach.org Children’s Disabilities Information Healthy Hearing www.childrensdisabilities.info www.healthyhearing.com Consortium for Citizens with Disabilities www.c-c-d.org I Am PWD www.nampwd.org Cornucopia of Disability Information www.codi.tamucc.edu Inclusion Daily Express www.inclusiondaily.com Council for Disability Awareness Independent Living Institute www.disabilitycanhappen.org www.independentliving.org 27

33 National Institutes of Health Institute for Community Inclusion www.nih.gov www.communityinclusion.org National Rehabilitation Information Center Institute on Disability Culture www.naric.com www.dimenet.com/disculture PACER Center International Center for Disability Resources Champions for Children with Disabilities www.icdri.org www.pacer.org International Paralympic Committee Parents with Disabilities Online www.m.paralympic.org www.disabledparents.net Job Accommodation Network Special Needs Answers www.askjan.org www.specialneedsanswers.com Mobility International USA Society for Accessible Travel and Hospitality www.miusa.org www.sath.org National Academy of Elder Law Attorneys, Inc. Society for Disability Studies www.naela.org www.disstudies.org National Arts and Disabilities Center TASH (formerly The Association for the Severely www.semel.ucla.edu/nadc Handicapped) www.tash.org National Center for Accessible Media www.ncam.wgbh.org Through the Looking Glass www.lookingglass.org National Center on Accessibility www.ncaonline.org Waisman Center www.waisman.wisc.edu National Center on Birth Defects and Developmental Disabilities World Institute on Disability www.cdc.gov/ncbddd www.wid.org National Clearinghouse on Postsecondary Education for United Nations Commission on Human Rights Individuals with Disabilities www.ohchr.org www.heath.gwu.edu U.S. International Council on Disabilities National Council on Disability www.usicd.org www.ncd.gov National Disability Rights Network Don’t See What You Need? www.ndrn.org Contact DDS at National Organization on Disability 1-888-285-3036 www.nod.org 28

34 ADVOCACY RESOURCES VI ADVOCACY-INFORMATION/RESEARCH ADVOCACY-GENERAL Advocates for Children of New Jersey United Spinal Association 120-34 Queens Blvd. Suite 320 35 Halsey Street, 2nd Floor, Newark, NJ 07102 (973) 643-3876 Telephone: Kew Gardens NY 11415 (718) 803-3782 (973) 643-9153 Telephone: FAX: www.acnj.org (718) 803-0414 FAX: www.unitedspinal.org Association for Special Children and Families ADVOCACY- LEGAL SERVICES PO Box 494 American Civil Liberties Union (ACLU) Hewitt, NJ 07421-0494 PO Box 32159 Telephone: (973) 728-8744 Newark, NJ 07102 www.ascfamily.org Telephone: (973) 642-2084 New Jersey Self-Advocacy Project www.aclu-nj.org 985 Livingston Avenue Education Law Center North Brunswick, NJ 08902 60 Park Place, Suite 300 (732) 743-8345 Telephone: Newark, NJ 07102 (732) 743-8345 FAX: (973) 624-1815 Telephone: www.arcnj.org (973) 624-7339 FAX: ADVOCACY-EDUCATION (973) 624-4618 TDD: Statewide Parent Advocacy Network (SPAN) www.edlawcenter.org 35 Halsey Street, 4th Floor Newark, NJ 07102 Legal Services of New Jersey (800) 654-7726 Telephone: 100 Metroplex Dr. (973) 642-8100 PO Box 1357 FAX: (973) 642-8080 Edison, NJ 08818 www.spanadvocacy.org Telephone: (888) 576-5529 (732) 572-0066 ADVOCACY-FAMILY SUPPORT www.lsnj.org The Family Support Center of New Jersey 35 Beaverson Blvd. Building 11 New Jersey State Bar Association Brick, NJ 08723 One Constitution Square (800) 372-6510 Telephone: New Brunswick, NJ 08901 (732) 262-4373 FAX: Telephone: (732) 249-5000 www.fscnj.org (732) 249 2815 FAX: www.njsba.com The Family Resource Network 1 AAA Drive, Suite 203 Community Justice Center Trenton, NJ 08691 310 W. State Street, Third Floor (800) 376-2345 Telephone: Trenton, NJ 08618 (609) 392-4900 Telephone: (609) 218-5120 FAX: (609) 392-5621 FAX: (609) 218-5126 www.familyresourcenetwork.org www.nj-communityjusticecenter.org 29

35 Community Health Law Project Division on Civil Rights (Central Regional Office) 185 Valley Street 140 East Front Street, 6th Floor South Orange, NJ 07079 PO Box 090 (973) 275-1175 Telephone: Trenton, NJ 08625 (973) 275-5210 FAX: Telephone: (609) 292-4605 www.chlp.org (609) 292-1785 TTY: (609) 292-3812 FAX: BRANCH OFFICES www.NJCivilRights.org Community Health Law Project (North Jersey) BRANCH OFFICES 650 Bloomfield Avenue, Suite 210 Division on Civil Rights Bloomfield, NJ 07003 (Northern Regional Office) Telephone: (973) 680-5599 31 Clinton Street, 3rd Floor FAX: (973) 680-1488 Newark, NJ 07102 (973) 680-1116 TDD: Telephone: (973) 648-2700 Community Health Law Project (Central Jersey) (973) 648-4405 FAX: 225 East State Street, Suite 5 Trenton, NJ 08608 Division on Civil Rights (609) 392-5553 Telephone: (South Shore Regional Office) FAX:/TDD: (609) 392-5369 1325 Boardwalk at Tennessee Avenue, 1st Floor Atlantic City, NJ 08401 Community Health Law Project (East Jersey) (609) 441-3100 Telephone: 65 Jefferson Avenue, Suite 402, TTY: (609) 441-7648 Elizabeth, NJ 07201 FAX: (609) 441-3578 Telephone: (908) 355-8282 (908) 355-3724 FAX: Division on Civil Rights (Southern Regional Office) Community Health Law Project (Shore Area) 5 Executive Campus Suite 107 1 Main Street, Suite 413 Cherry Hill, NJ 08034 Eatontown, NJ 07724 486-4080 (856) Telephone: Telephone: (732) 380-1012 Fax: (856) 486-2255 FAX: (732) 380-1015 SUPPORT GROUPS Community Health Law Project (South Jersey) New Jersey Self-Help Group Clearinghouse Station House Office Building 673 Morris Avenue 900 Haddon Avenue, Suite 400 Springfield, NJ 07081 Collingswood, NJ 08108 Telephone/TDD: (856) 858-9500 (800) 367-6274 Telephone: (856) 858-9545 FAX: FAX: (973) 218-0636 www.njgroups.org Disability Rights New Jersey (DRNJ) (formerly New Jersey Protection and Advocacy, Inc.) 210 South Broad Street, 3rd Floor For more information , see page 26 Trenton, NJ 08608 (800) 922-7233 Telephone: (609) 292-9742 FAX: (609) 777-0187 www.drnj.org 30

36 PROFESSIONAL AND PROVIDER ORGANIZATIONS VII New Jersey Association of Community Providers, Inc. ASAH 140 Scotch Road 2125 Route 33 Ewing, NJ 08638 Lexington Square (609) 406-1400 Telephone: Hamilton Square, NJ 08690 FAX: (609) 406-1442 (609) 890-1400 Telephone: www.njacp.org FAX: (609) 890-8860 www.asah.org Accses NJ Inc, CNA services 150 West State Street, Suite 120 New Jersey Association for Persons in Supported Trenton, NJ 08608 Employment (NJAPSE) (609) 392-1255 Telephone: www.njapse.com/ FAX: (609) 392-3236 For Home Care and Hospice Associations www.accsesnj.org See Page 51 SERVICE DOG RESOURCES VIII Guiding Eyes for the Blind Canine Companions for Independence 611 Granite Springs Road 286 Middle Island Road Medford, NY 11763 Yorktown Heights, NY 10598 Telephone/TDD: (800) 572-2275 (800) 942-0149 Telephone: (631) 561-0230 FAX: www.guidingeyes.org www.cci.org The Seeing Eye, Inc. Canine Hearing Companions, Inc. PO Box 375 Morristown, NJ 07963-0375 247 E. Forest Grove Road Vineland, NJ 08360 Telephone: (973) 539-4425 (856) 696-3668 Voice (856) 696-3433 FAX FAX: (973) 539-0922 www.chchearingdogs.org www.seeingeye.org Canine Partners for Life PO Box 170 Cochranville, PA 19330 Telephone: (610) 869-4902 FAX: (610) 869-9785 www.k94life.org Assistance Dogs International (ADI) ADI is a coalition of not for profit assistance dog organizations. To find other service dog programs serving www.assistancedogsinternational.org your area, use the “program search” available on their website at: See Appendix 5 for more information on Service Animals, page 58 RECREATION RESOURCES IX SPORTS AND TRAINING ARTS PROGRAMS Special Olympics New Jersey New Jersey Theatre Alliance 1 Eunice Kennedy Shriver Way 8 Marcella Avenue West Orange, NJ 07052 Lawrenceville, NJ 08648 Telephone: (609) 896-8000 (973) 731-6582 FAX: (973) 731-5520 Telephone: www.njtheatrealliance.org FAX: (609) 896-8040 www.sonj.org VSA Arts of New Jersey 703 Jersey Avenue Association of Blind Athletes of New Jersey New Brunswick, NJ 08901 (ABANJ) (732) 745-3885 FAX (732) 745-4524 Telephone: PO Box 294 www.vsanj.org Belmar, NJ 07719 New Jersey Commission on Recreation for (848) 459-5983 Telephone: Individuals With Disabilities www.abanj.org : [email protected] Email www.njcrid.org 31

37 TECHNOLOGY RESOURCES X ASSISTIVE TECHNOLOGY Assistive technology is equipment or a service that serves to increase, maintain or improve the functional capa- bility of an individual with a disability. The following programs and agencies provide both awareness of and access to assistive technology. Advancing Opportunities Assistive Technology Advocacy Center (ATAC) Assistive Technology Services/Lending Center “Back in Action” 1005 Whitehead Road Ext., Suite 1 210 S. Broad Street, 3rd Floor Ewing, NJ 08638 Trenton, NJ 08608 (888) 322-1918 x595 Telephone: (800) 922-7233 Telephone: (609) 882-4182 (609) 292-9742 TTY: (609) 882-0620 (609) 633-7106 TDD: FAX: (609) 882-4054 777-0187 (609) FAX: www.assistivetechnologycenter.org www.drnj.org/atacprogram.htm www.backinaction.drnj.org Goodwill Home Medical Equipment 18 Artic Parkway , Ewing, NJ 08638 (609) 396-1513 Telephone: FAX: (609) 396-1516 www.goodwillhomemedical.org TECHNOLOGY RESOURCES ON THE WEB Able Data www.abledata.com RESNA www.resna.org AssistiveTech.net www.assistivetech.net Web Accessibility Initiative www.w3.org/WAI www.northeastada.org Northeast ADA & IT Center NATIONAL RESOURCES XI Many national organizations can offer assistance to people with disabilities and their families. Here are some telephone numbers, hotlines, and websites for additional resources. American Foundation for the Blind AHEAD www.afb.org (800) 232-5463 www.ahead.org (704) 947-7779 American Stroke Association Alexander Graham Bell Association www.strokeassociation.org (888) 478-7653 (202) 337-5220 www.listeningandspokenlanguage.org American Tinnitus Association (800) 634-8978 www.ata.org American Association of the Deaf-Blind [email protected] Email only: Amputee Coalition of America www.aadb.org www.amputee-coalition.org (888) 267-5669 Amyotrophic Lateral Sclerosis Association American Association on Intellectual and www.alsa.org (800) 782-4747 Developmental Disabilities www.aaidd.org (202) 387-1968 The Arc (National Office) www.thearc.org (800) 433-5255 American Cancer Society www.cancer.org (800) 227-2345 32

38 Arthritis National Research Foundation Mental Health America (800) 588-2873 www.curearthritis.org www.mentalhealthamerica.net (800) 969-6642 Audient Muscular Dystrophy Association www.audientalliance.org (866) 956-5400 x2 www.mda.org (800) 572-1717 National Association of the Deaf Better Hearing Institute www.nad.org (301) 587-1788 (Voice) www.betterhearing.org (800) 327-9355 (Voice) National Association for Parents of Children Brain Injury Association of America with Visual Impairments (800) 444-6443 www.biausa.org http://www.napvi.org (800) 562-6265 Burn Association of America National Autism Center www.ameriburn.org (312) 642-9260 www.nationalautismcenter.org (877) 313-3833 Celiac Support Association National Council on Alcoholism and Drug Dependence www.csaceliacs.org (877) 272-4272 www.ncadd.org (800) 622-2255 Children and Adults with Attention Deficit National Down Syndrome Congress Disorder (CHADD) (800) 232-6372 www.ndsccenter.org (800) 233-4050 www.chadd.org National Down Syndrome Society Solve ME/CFS Initiative www.ndss.org (800) 221-4602 (formerly Chronic Fatigue and Immune Dysfunction Syndrome Association of America) National Education for Assistance Dog Services (704) 364-0016 www.solvecfs.org www.neads.org (978) 422-9064 Cystic Fibrosis Foundation National Fragile X Foundation (800) 344-4823 www.cff.org www.fragilex.org (800) 688-8765 Disability Rights Education and Defense Fund National Library Services for the Blind and Physically www.dredf.org (800) 348-4232 Handicapped www.loc.gov/nls (800) 424-8567 Easter Seals National Headquarters National Multiple Sclerosis Society www.easterseals.com (800) 221-6827 (800) 344-4867 www.nationalmssociety.org Epilepsy Foundation National Organization for Rare Disorders www.epilepsy.com (800) 332-1000 (800) 999-6673 www.rarediseases.org Hearing Loss Association of America Office of Disability Employment Policy (ODEP) (301) 657-2248 www.hearingloss.org (866) 633-7365 www.dol.gov/odep Helen Keller National Center Paralyzed Veterans of America (516) 944-8900 (Voice) www.pva.org (800) 424-8200 www.helenkeller.org (516) 570-3626 (Video phone) Reflex Sympathetic Dystrophy Syndrome Association Job Accommodation Network www.rsds.org (877) 662-7737 www.askjan.org (800) 526-7234 Society for Disability Studies Laurent Clerc National Deaf Education Center (716) 645-0276 www.disstudies.org (202) 651-5051 www.gallaudet.edu/clerc-center.html United Spinal Association www.unitedspinal.org (800) 404-2898 Learning Disabilities Association of America www.ldanatl.org (412) 341-1515 33

39 RESEARCH RESOURCES XII The NJ State Library Talking Book & Braille Center New Jersey State Library 2300 Stuyvesant Avenue PO Box 520, 185 West State Street Trenton NJ 08618 Trenton, NJ 08625 (800) 792-8322 Telephone: (609) 278-2640 Telephone: (609) 406-7181 FAX: FAX: (609) 278-2652 www.njstatelib.org/talking-book-braille-center/ www.njstatelib.org RESEARCH RESOURCES ON THE WEB Learning Ally Disability Research Institute www.dri.uiuc.edu/default.htm (formerly Recording for the Blind and Dyslexic) National Center for the Dissemination 20 Roszel Road of Disability Research www.ncddr.org Princeton, NJ 08540 Telephone: (800) 221-4792 National Rehabilitation Information Center www.naric.com (609) 751-5263 FAX: www.learningally.org Spinal Cord Injury www.uab.edu/medicine/ Information Network US Census Bureau www.census.gov/people/disability RIGHTS AND LAWS XIII The Individuals with Disabilities The Fair Housing Act www.justice.gov/crt/fair-housing-act-2 Education Act (IDEA) Federal law which prohibits discrimination in the http://idea.ed.gov/explore sale or rental of houses and apartments. It is also Federal law mandating that all children, regardless discriminatory to refuse to allow the modification of of disability, are entitled to a free, appropriate edu- a home to provide physical access. cation, without extra cost and in the least restrictive and least segregated environment possible. The Motorized Wheelchair Lemon Law www.njconsumeraffairs.gov/News/Consumer%20Briefs/ The Rehabilitation Act of 1973 motorized-wheelchair-lemon-law.pdf www.access-board.gov/the-board/laws/rehabilita- tion-act-of-1973 The Wheelchair Lemon Law requires manufacturers to give customers warranties of at least one year that Federal law which mandates all federal government agencies, and agencies with federal government con- cover defects which impair the use, value or safety tracts, to take affirmative action to employ people of the chair or scooter. After three unsuccessful with disabilities. It also protects otherwise qualified attempts at repairing the same problem with the people with disabilities from being denied services wheelchair or motorized scooter or if the wheel- chair or motorized scooter is out of service for a or benefits from a program receiving federal money. total of twenty days, the customer may be entitled The Americans with Disabilities Act (ADA) to a replacement, refund, or early lease termination, www.ADA.gov minus a reasonable allowance for use. Federal civil rights law which guarantees individuals with disabilities equal opportunity in employment, The Snow Removal Act www.njleg.state.nj.us/2006/Bills/PL07/287_.PDF public accommodations, state and local government services, transportation, and telecommunications. In a public parking area, the person who owns or controls the area shall be responsible for assuring The Developmental Disabilities Assistance and that the restricted spaces remain free from obstruc- Bill of Rights Act of 2000 tion. This includes shopping carts and other debris. www.acl.gov/Programs/AIDD/DDA_BOR_ACT_2000/ Ice and snow must be removed within 24 hours after index.aspx the weather condition has ceased. Federal law mandating that an individual with a developmental disability has a right to appropriate New Jersey Accessible Parking Laws treatment for his or her disability, and that treatment should be designed to maximize the individual’s See Appendix 1, pg 56 potential. 34

40 which passengers with disabilities must provide advance Open Public Records Act (OPRA) information about their disabilities to air carriers; states / www.nj.gov/opra that assistive devices do not count against passenger 2001 state law which requires most branches of state, baggage limits; and sets accessibility guidelines for air- county, and municipal government to provide citizens plane facilities. Airline personnel must provide routine with the opportunity to inspect, copy, or examine gov- physical assistance but are not required to provide what ernment records. It does allow public agencies to protect would customarily be regarded as personal care assis- citizens’ personal information. tance. However, if a passenger requires an attendant, the airline must transport the attendant free of charge. The Older Americans Act law does not require an airline to transport an individual www.aoa.gov who may endanger the health or safety of others. The Act Federal civil rights law passed in 1965, which has since mandates that a Complaints Resolution Officer (CRO) been amended. It created the Administration on Aging be immediately available to resolve disputes between and provides funding for research and training projects. airlines and passengers with disabilities. It also provides nutrition programs, health promotion and disease prevention, in-home services, and protection The Work Incentives Improvement Act of the rights of older persons. The amended Act created www.ssa.gov/work/overview.html the National Family Caregiver Support Program, which Former U.S. President Clinton signed the Ticket to helps families care for elders who have illnesses or dis- Work and Work Incentives Improvement Act of 1999 on abilities. December 17. This law increases beneficiary choice in obtaining rehabilitation and vocational services; removes Mental Health Parity Act www.nj.gov/mhstigmacouncil/community/legislation barriers that require people with disabilities to choose Federal law which prevents group health plans of between health care coverage and work; and insures that employers with more than 50 workers from placing dol- more Americans with disabilities have the opportunity to lar limits on mental health benefits that are lower than participate in the workforce and lessen their dependence annual or lifetime dollar limits for medical and surgical on public benefits. benefits offered under the plan. This law does not, how- ever, require group health plans to include mental health New Jersey Law Against Discrimination (NJLAD) www.state.nj.us/lps/dcr/law.html coverage. New Jersey state law which prohibits discrimination in employment, housing, places of public accommodation, Health Insurance Portability and Accountability Act and credit and business contracts on the basis of race, (HIPAA) creed, color, national origin, nationality, ancestry, age, www.hhs.gov/ocr/privacy sex, familial status, marital status, domestic partnership Federal law which establishes national standards to pro- status, affectional or sexual orientation, atypical cellular tect individuals’ medical records and other health infor- or blood trait, genetic information, liability for military mation. Insurance carriers, healthcare clearinghouses, service, mental or physical disability, perceived disabil- and healthcare providers are required to comply with its ity, or AIDS and HIV status. There are exceptions to privacy standards. It gives consumers the right to request these prohibitions. to inspect, copy, or amend their medical records, and to limit disclosure of information. Family Support Act www.familysupportcoalition.org/the-family-support-act.php Danielle’s Law The Family Support Act is a 1993 state law which cre- www.njleg.state.nj.us/2002/Bills/S3000/2572_I1.PDF ated family-driven Regional Family Support Planning New Jersey state law which requires staff working at Councils to assist families in making service decisions public or private facilities for persons with developmen- that best meet the needs of their members with disabil- tal disabilities or brain injuries to call 911 in cases of ities. medical emergency. The Fair Labor Standards Act Air Carriers Access Act www.dol.gov/whd/flsa/ www.airconsumer.ost.dot.gov/publications/disabled.htm The FLSA establishes minimum wage, overtime pay, Federal law which requires airlines to accommodate recordkeeping, and youth employment standards affect- the needs of passengers with disabilities. It prevents ing employees in the private sector and in Federal, State, airlines from refusing to transport a passenger solely and local governments. Covered nonexempt workers are because of a disability; limits the circumstances under entitled to a minimum wage of not less than $7.25 per 35

41 hour effective July 24, 2009. Overtime pay at a rate not Equal Employment Opportunity Commission less than one and one-half times the regular rate of pay is (EEOC) required after 40 hours of work in a workweek. National Headquarters (800) 669-4000 Telephone: LEGAL ASSISTANCE To be automatically connected to the nearest EEOC (866) 408-8075 field office: Civil Rights www.eeoc.gov The Division on Civil Rights, within the New Jersey Federal Communications Commission Department of Law and Public Safety, is responsible for Consumer Information on Telecommunications Relay investigating allegations of discrimination and for seek- Services (TRS) ing resolution through conciliation, hearings, or court Telephone: (888) 225-5322 VP: (844) 432-2275 orders. People with disabilities can file a complaint by www.fcc.gov/encyclopedia/telecommunications-re- calling the division or any of its enforcement branches. lay-services-trs Complaints must be filed with the Division on Civil US Access Board Rights within 180 days after the alleged act of discrim- (800) 872-2253 Documents and questions: ination. (800) 993-2822 TTY: www.access-board.gov NJ Division on Civil Rights PO Box 090 INFORMATION ON OTHER LAWS OF INTEREST Individuals with Disabilities Education Act (IDEA) Trenton, NJ 08625-0090 of 1990 US Department of Education (609) 292-4605 Telephone: Office of Special Education and Rehabilitative Services FAX: (609) 984-3812 (202) 245-7468 Telephone: www.nj.gov/oag/dcr/index.html http://idea.ed.gov/explore See Pages 14 and 30 Fair Housing Act of 1988 New Jersey/New York DISABILITY RIGHTS INFORMATION SERVICES HUD Fair Housing Office The following telephone numbers and Internet sites Telephone: (800) 496-4294 TTY: (212) 264-0927 offer access to federal agencies and other organizations www.hud.gov/offices/fheo/aboutfheo/fhhubs.cfm which provide information about the Americans with Rehabilitation Act of 1973 Disabilities Act (ADA), as well as guidance in under- Disability Rights Section, Civil Rights Division, U.S. standing and complying with provisions of the ADA and Department of Justice: other federal disability rights laws. Telephone: (800) 514-0301 TTY: (800) 514-0383 www.ada.gov Department of Justice (800) 514-0301 ADA Information Line: TTY: (800) 514-0383 www.ada.gov AMERICANS WITH DISABILITIES ACT AT A GLANCE Title I (Employment) Ensures that qualified job applicants and employees with disabilities are protected from discrimination on the basis of disability. Enforced by the Equal Employment Opportunity Commission (EEOC) Title II (Public Services) Requires equal access for people with disabilities to state and local government programs and services. Enforced by the Department of Justice (DOJ) Title III (Public Accommodations and Services Operated by Private Entities) Mandates access to goods and services to people with disabilities in places of public accommodation. Enforced by the Department of Justice (DOJ) Title IV (Public Communication Systems) Establishes the Telecommunication Relay Service and requires any public service announcement that is funded wholly or in part by the federal government to be closed-captioned. Enforced by the Federal Communications Commission (FCC) (Misc.) Compliance mechanisms for the administration of the provisions of the ADA Title V 36

42 HEALTH COVERAGE AND HEALTH CARE ASSISTANCE XIV This section describes health care resources for eligible children and adults with disabilities, as well as federal and state health care and dental assistance programs. SPECIAL CHILD HEALTH SERVICES developmental delays or disabilities. The Depart- Each of the state’s 21 counties has a Special Child ment of Health is appointed by the Governor as the Health Services (SCHS) Case Management Unit state lead agency for the Early Intervention System. jointly funded by SCHS and the County Freeholders. (888) 653-4463 Telephone: SCHS Case Managers, with parental consent, work with the parents and the physician to evaluate an DIVISION OF FAMILY HEALTH SERVICES affected child’s strengths and needs and develop an NJ Family Health Line individual service plan targeting the medical, educa- (800) 328-3838 Telephone: tional, developmental, social and economic needs of the child and family. Newborn Screening and Genetic Services Telephone: (609) 292-1582 Special Child Health Services SUPPLEMENTAL NUTRITION -NEW JERSEY WIC PO Box 364 Trenton, NJ 08625-0364 The Supplemental Nutrition Program for Women, (609) 777-7778 Telephone: Infants, and Children (WIC) provides supplemental FAX: (609) 292-3580 nutritious foods, nutrition education, breastfeeding COUNTY CASE MANAGEMENT UNITS promotion and support, immunization screening, Atlantic County (609) 909-9269 and health care referrals to pregnant, breastfeeding, (201) 634-2620 x 5 Bergen County and postpartum women, infants, and children up to (609) 267-7156 Burlington County the age of 5. Services are available to low and no (856) 374-6021 Camden County income families as well as families experiencing Cape May County (609) 465-6841 unemployment, military deployment and other inter- (856) 327-7602 x7132 Cumberland County im family financial hardships. Essex County (973) 395-8836 FOR LOCAL WIC AGENCIES, CALL: Gloucester County (856) 218-4111 (800) 328-3838 Hudson County (201) 915-2514 Hunterdon County (908) 788-6399 For the Department of Health, Mercer County (609) 588-8460 See Page 9 Middlesex County (732) 745-3187 DENTAL ASSISTANCE Monmouth County (732) 224-6950 Dental Lifeline Network New Jersey Morris County (973) 971-4155 www.dentallifeline.org (732) 341-9700 x7602 Ocean County (973) 523-6778 Passaic County P.O. Box 2117 Edison, NJ 08818 (856) 935-7510 x8305 Salem County (732) 821-3056 Telephone: (908) 725-2366 Somerset County Fax: (732) 821-3057 Sussex County (973) 948-5239 Union County (908) 889-0950 x2544 Rutgers School of Dental Medicine (908) 475-7960 Warren County 110 Bergen Street Newark, NJ 07101 Early Intervention Services Telephone: (973) 972-7370 The New Jersey Early Intervention System (NJEIS), under the Division of Family Health Services, implements New Jersey’s statewide system of ser- vices for infants and toddlers, birth to age three, with 37

43 Medicare coverage is divided into three parts: Part A, Dental Care for Persons with Developmental Part B, and Part D. Part A helps to pay for care in hos- Disabilities in NJ, Matheny Medical and Educational pitals, skilled nursing facilities, and hospice care. Part Center B helps pay for doctors, outpatient hospital care, and PO Box 339, Peapack, NJ 07977 some other services not covered under Part A. Part D, (908) 234-0011 Telephone: administered by private insurance companies approved by Medicare, provides coverage for prescriptions. NJDA Senior-Dent Program c/o New Jersey Dental Association For Medicare information: 1 Dental Plaza, North Brunswick, NJ 08902-6020 www.medicare.gov Telephone: (732) 821-9400 800-MEDICARE (633-4227) http://www.njda.org/for-the-public/dental-clinics-pro- TDD: (877) 486-2048 grams/senior-dent Dental Provider Database NEW JERSEY CARRIERS AND PARTNERS www.disabilityhealth.org/dental State Health Insurance and Assistance Program (SHIP) VISION ASSISTANCE (800) 792-8820 Telephone: New Eyes For The Needy 549 Millburn Ave., P.O. Box 332, Short Hills, NJ 07078 Homecare and Hospice Association of NJ: Telephone: (973) 376-4903 Telephone: (732) 877-1100 www.new-eyes.org (732) 877-1101 FAX: www.homecarenj.org New Jersey Health Link New Jersey HealthLink is the nation’s most comprehen- NEW JERSEY STATE GOVERNMENT CONTACTS sive healthcare consumer information website serving (609) 292-5360 State Insurance Department: seniors, families, children and healthcare professionals. State Medical Assistance Office: (609) 588-2600 www.nj.gov/njhealthlink Long Term Care Ombudsman: (877) 582-6995 NEW JERSEY HEARING AID PROJECT FEDERAL GOVERNMENT CONTACTS Through this innovative project launched by the New Center for Disease Control and Prevention (CDCP) Jersey Division of the Deaf and Hard of Hearing (800) 232-4636 (DDHH), Montclair State University, and Sertoma/ www.cdc.gov Hearing Charities of America, used hearing aids are collected, reconditioned, and dispensed free to eligible Department of Veterans Affairs (DVA) seniors in need. Eligible New Jersey Residents must (800) 827-1000 TDD: (800) 829-4833 be 65 years of age or older and have an income of no www.va.gov more than 250% of the federal poverty level - $26,575 Health Resources and Services Administration (HRSA) if single; $32,582 if married. For more information on www.hrsa.gov obtaining or donating a hearing aid, please contact the DDHH at 800-792-8339. Office on Civil Rights (800) 368-1019 TDD: (800) 537-7697 MEDICARE www.hhs.gov/ocr Medicare is a health insurance program, administered by the Centers for Medicare and Medicaid Services (CMS), Office of the Inspector General for people 65 years of age or older, certain younger peo- (800) 869-4499 TDD: (800) 377-4950 ple with disabilities, and people with End-Stage Renal www.justice.gov/oig Disease. Railroad Retirement Board TDD: (312) 751-4701 (877) 772-5772 www.rrb.gov MEDICARE COVERAGE AT A GLANCE Part A: Medically necessary care in hospitals, skilled nursing facilities, hospice, and some home health care Part B: Doctor visits, preventive care, laboratory and x-ray services, durable medical equipment, hospital outpatient services, home health care, and ambulance service Part D: Coverage for some medically approved pharmaceuticals 38

44 MEDICAID (800) 356-1561 TDD: (800) 356-1561 The New Jersey Medicaid Program, administered by the DHS Division of Medical Assistance and Health Services, covers certain medical and health care services for individuals who meet established eligibility standards. MEDICAL ASSISTANCE CUSTOMER CENTERS MEDICAID HOME AND Atlantic / Burlington / Camden/ Cape May / Cumberland COMMUNITY-BASED WAIVERS Counties/ Gloucester / Mercer / Salem Counties Medicaid waivers include traditional State Plan Medicaid (856) 614-2870 services plus expanded Medicaid services to allow indi- viduals who require a facility level of care to receive the Bergen / Passaic / Morris / Sussex / Warren Counties support services they need to remain living in the com- (973) 977-4077 munity. Waivers have clinical and financial eligibility criteria which must be met prior to enrollment. Essex County / Hudson County (973) 648-3700 County Boards of Social Service, See Page 17 Monmouth / Ocean / Middlesex / Hunterdon / To report Medicaid fraud: 877-55-FRAUD Somerset / Union Counties (732) 863-4400 NJ FAMILY CARE MEDICAID THROUGH MANAGED CARE NJ FamilyCare is a federal and state funded health insur- Medicaid has changed its service delivery system to have ance program created to help New Jersey’s uninsured all services administered using a managed care organiza- children and certain low-income parents and guardians tion (MCO). Most Medicaid recipients are enrolled with to have affordable health coverage. It is for families who an MCO to manage their services. A list of the MCOs and do not have available or affordable employer insurance, contact information can be found below: and cannot afford to pay the high cost of private health insurance. Telephone: (800) 701-0710 www.njfamilycare.org MCO Contact Numbers 1-855-232-3596 Aetna Amerigroup 1-800-600-4441 1-877-765-4325 Horizon NJ Health 1-800-941-4647 United Healthcare Community Plan 1-888-453-2534 WellCare MEDICAID AT A GLANCE MEDICAID SERVICES MAY INCLUDE: • Certified Nurse Practitioner/Clinical Nurse • Medical Day Care Services Specialist Services • Medical Supplies and Equipment • Chiropractic Services • Nursing Facility Services • Optometric Services and Optical Appliances • Dental Services • Early and Periodic Screenings, Diagnosis, and Treatment (under age 21 only) • Pharmaceutical Services • Family Planning Services • Physician Services • HealthStart Maternity and Pediatric Care Services • Podiatric Services • Home Care Services • Prosthetic and Orthotic Devices and Hearing Aids • Hospice Services • Psychological and Mental Health Services • Inpatient and Outpatient Hospital Services • Rehabilitative Services • Laboratory and Radiological Services • Medical Transportation Services “Where’s My Ride?” Individuals on Medicaid/NJ FamilyCare can call (866) 527-9934 to schedule rides to and from medical appointments. 39

45 PHARMACEUTICAL ASSISTANCE HEALTHCARE RESOURCES ON THE WEB PAAD and Senior Gold The Division of Aging Services offers programs that The Patient Advocate Foundation provide financial assistance for prescription medicines and certain pharmacy items to qualified low income www.patientadvocate.org individuals. For information about applying for Pharmaceutical Medicare Interactive Assistance to the Aged and Disabled (PAAD) or Senior Gold, contact your county’s NJ ADRC program (see www.medicareinteractive.org page 19), your local pharmacy, or the Division of Aging Services. Center for Ethics and Advocacy in Healthcare Division of Aging Services Call Center (800) 792-9745 (609) 588-7048 www.healthcare-ethics.org For information about the AIDS Drug Distribution Program (ADDP), call: (877) 613-4533 MENTAL HEALTH SERVICES Rx4NJ Statewide Clinical Consultation and Training (SCCAT) Many pharmaceutical companies have Patient Assistance This program serves individuals with developmental dis- Programs to assist consumers who have limited income abilities in mental health or behavioral crises. Their staff and are without health insurance which covers the cost work out of regional offices, providing a 24/7mobile of medications. Rx4NJ, a Partnership for Prescription response to people who are in crisis. . They work with Assistance (PPA) program, is a no-cost service which consumers, their families, staff and mental health provid- connects consumers to these discounts. ers by offering: https://nj.pparx.org Direct response at the time of crisis in family homes, • DID YOU KNOW? residential placements, day programs, and emergen- The New Jersey Motor Vehicle Commission (MVC) cy rooms - provides a discount on the cost of vehicle registra • Technical support to families, sponsors, DD and tion to SSI, PAAD and Lifeline recipients. In order to mental health service providers receive this discount, the recipient must provide a • Link-up with relevant resources current Lifeline or PAAD eligibility card at the time Training for consumers, families, sponsors, and ser- • of registration. vice providers For more information, contact the MVC at: • Consultations at psychiatric inpatient units (609) 292-6500 For more information, call: www.sccatnj.org (888) 393-3007 are FEDERALLY QUALIFIED HEALTH CENTERS (FQHCs) community based programs that provide primary and preventive healthcare, regardless of a patient’s ability to pay. To find a FQHC in New Jersey, visit . www.njpca.org For the Division of Mental Health and Addiction Services, CHARITY CARE (866) 588-5696 See Page 8 The New Jersey Hospital Care Payment Assistance Program (Charity Care) is a program that allows free or reduced fee care for uninsured or underinsured patients who receive inpatient or outpatient services at acute care hospitals throughout New Jersey. Some services and out- patient prescriptions may not be eligible for reduction. Assistance is available to individuals who have no health coverage or limited coverage, who are otherwise ineligi- ble for any private or government sponsored coverage (such as Medicaid), and who meet the program’s income and assets criteria. 40

46 HEALTH AND WELLNESS FOR PEOPLE WITH DISABILITIES WELLNESS BASICS Include physical activity in your daily routine. • www.choosemyplate.gov • Eat according to the FDA Food Pyramid at Rest when needed and maintain a sleep schedule and maintain good personal hygiene. • Make medical appointments as needed and keep accurate records for follow-up. • • Take medication as directed. Don’t deviate from regiment without medical clearance. Do a daily “wellness check”. Look out for skin breakdown, sores and irritation. • Make sure medical equipment such as wheelchairs and prosthetic devices “fit” properly. • Avoid drug usage and limit alcohol and tobacco consumption. • • Maintain social interaction. Be part of the community. • Keep up with “preventive” care. (Examples: Mammogram and pelvic exams for females and DRE and testicular exam for males.) HEALTH CARE SELF-ADVOCACY • Keep an accurate updated list of your medications, providers, and insurance information. • Make sure providers’ offices are accessible. When in doubt, ask. • Discuss your disability as well as your health needs with practitioners. Never be afraid to ask questions or get clarity as needed. • Ask someone to accompany you to appointments as needed. • Keep a list of concerns or questions in between appointments and bring it with you to your appointments. • WELLNESS RESOURCES ON THE WEB Center for Disease Control Women’s Health Homepage www.cdc.gov/women/index.htm The National Center on Health, Physical Activity, and Disability www.ncpad.org Center for Research on Women with Disabilities (CROWD) https://www.bcm.edu/research/centers/research-on-women-with-disabilities/ Office on Women’s Health www.womenshealth.gov/about-us/ Center for Disease Control Feature Page on Disabilities https://www.cdc.gov/ncbddd/disabilityandhealth/index.html MedNets.com www.mednet.com 41

47 FINANCIAL ASSISTANCE XV HOMEOWNERSHIP PRESERVATION SUPPLEMENTAL SECURITY INCOME FOUNDATION 888-995-HOPE (4673) Supplemental Security Income (SSI) is a Federal www.995hope.org program established for the aged and people with The Homeownership Preservation Foundation (HPF) disabilities. The program provides a monthly sti- is a nonprofit group that helps financially challenged pend. The federal government administers SSI homeowners navigate their budget problems and, through the Social Security Administration. People whenever possible, helps them to avoid mortgage over 65 and people with disabilities, including chil- foreclosure. The Home Ownership Preservation dren, may be eligible for SSI payments, and will Effort (HOPE) Hotline provides advising services receive NJ Medicaid automatically. Application is to distressed homeowners for free, 24 hours a day, 7 made through any Social Security office. Parents or days a week, 365 days a year, in over 170 languages. guardians may apply on behalf of children under 18. HPF develops innovative and sustainable solutions to preserve and expand homeownership through SOCIAL SECURITY DISABILITY INSURANCE consumer education and advising programs. The Social Security Disability Insurance (SSDI) program pays benefits to disabled workers and their families. To be eligible for SSDI, you must be dis- abled and must have earned a minimum number of UTILITY ASSISTANCE credits from work covered under Social Security. The required number of credits varies depending on HOME ENERGY ASSISTANCE HOTLINE your age at the time you became disabled. (800) 510-3102 BOARD OF PUBLIC UTILITIES (609) 341-9188 Toll Free: (800) 624-0241 SOCIAL SECURITY ADMINISTRATION www.bpu.state.nj.us/bpu/assistance/programs (800) 772-1213 TDD: (800) 325-0778 www.ssa.gov TRUE AND PAGE PROGRAMS (855) 465-8783 or (732) 982-8710 CATASTROPHIC ILLNESS IN CHILDREN www.NJpoweron.org RELIEF FUND (800) 335-FUND The Temporary Relief for Utility Expenses (TRUE) The Catastrophic Illness in Children Relief Fund Program and the Payment Assistance for Gas and provides financial assistance for families in which a Electric (PAGE) Program were established by the child has a disability or illness for which expenses Board to provide relief on natural gas and electric are incurred that are not fully covered by insur- bills for low to moderate income New Jersey house- ance, state or federal programs, or other sources. holds who are experiencing a temporary financial Families that have lived in New Jersey for at least crisis. Eligible applicants cannot be receiving or be three months immediately preceding the date of eligible for a Universal Service Fund (USF) benefit application may be eligible if they have incurred or a Low Income Home Energy Assistance Program health care expenses that exceed 10 percent of the (LIHEAP) benefit. TRUE and PAGE are adminis- family’s income (plus 15 percent of any income over tered by the Affordable Housing Alliance. $100,000). The child must have been 21 years old or younger when the medical bills were incurred. COMFORT PARTNERS (888) 773-8326 Families may reapply annually. This program is designed to improve energy afford- ability for income eligible households through direct CATASTROPHIC ILLNESS IN CHILDREN installation of free energy efficiency measures and RELIEF FUND COMMISSION education about steps everyone can take to save PO Box 728, Trenton, NJ 08625-0728 energy. Participants are asked to partner with the (609) 292-0600 Telephone: program to develop and carry out a household ener- (800) 335-FUND gy savings Action Plan. www.NJcatastrophicfund.org 42

48 LOW INCOME HOME ENERGY ASSISTANCE TELEPHONE ASSISTANCE PROGRAM (LIHEAP) (800) 510-3102 The telephone assistance program provides a discount on LIHEAP is administered by the NJ Dept. of Community your monthly bill, to qualified residential telephone cus- Affairs and helps NJ households pay for heating costs tomers. Eligibility is determined based on your income and certain medically-necessary cooling expenses. or participation in other assistance programs. In general, Renters who have their heating costs included in their if you participate in any of the following programs you rent may also qualify. Applications are accepted from also may qualify for telephone assistance: SSI, TANF, October 1st through April 30th of each year. General Assistance, Lifeline Utility Credit/Tenants www.energyassistance.nj.gov Lifeline Assistance, PAAD, Supplemental Nutrition Assistance Program, LIHEAP/HEAP, Medicaid, Federal NJ LIFELINE CREDIT PROGRAM (800) 792-9745 Public Housing Assistance, National School Lunch Lifeline is administered by the NJ Dept. of Human Program. The following providers participate in Lifeline Services and provides a $225 annual energy benefit to Assistance and Link Up programs in New Jersey: seniors and people with disabilities who meet the PAAD eligibility requirements or who receive SSI. The benefit 1) Verizon New Jersey: Call NJSHARES regarding is also available to customers who have electric and gas Communications Lifeline at 1-888-337-3339 costs included in their rent. www.njshares.org/otherPrograms/communica- tions-lifeline.asp NJ SHARES (866) NJSHARES (657-4273) www.njshares.org 2) CenturyLink/United Telephone Company of New NJ SHARES is a non-profit corporation that provides Jersey: 1-800-201-4099 wwww.centurylink.com assistance to income eligible NJ households in paying their energy, telephone and water bills. Applications for Warwick/Alteva Valley: 1-800-952-7642 3) NJ SHARES grants can be made at any of the more than www.Altevatel.com 270 participating social service agencies throughout the state. SafeLink Wireless: 1-800-977-3768 4) www.safelink. com UNIVERSAL SERVICE FUND (USF) www.energyassistance.nj.gov (866) 240-1347 or 5) Virgin Mobile: Call Assurance Wireless The USF, administered by the NJ Dept. of Community 1-888-898-4888 www.assurancewireless.com Affairs, was designed so that households most in need receive the highest benefit by using a percentage of THE PROPERTY TAX REIMBURSEMENT income formula. Benefits appear as a credit on the (“SENIOR FREEZE”) 1-800-882-6597 household electric and/or gas bill (capped at $1,800 per www.state.nj.us/treasury/taxation/ptr/ year). The Senior Freeze Program reimburses senior citizens Fresh Start : Fresh Start, a special program under and disabled persons for property tax increases. USF, allows eligible New Jersey households partic- ipating in USF for the first time to earn forgiveness AUTO INSURANCE ASSISTANCE for pre-existing arrearages by making full, on-time payments for 12 months. You cannot apply for Fresh DOLLAR-A-DAY AUTO INSURANCE (800) 652-2471 Start, but if you are eligible you will be enrolled by The Dollar-A-Day policy is available to New Jersey your utility company and receive information about drivers who are currently enrolled in Medicaid with hos- the program in the mail. pitalization. It covers emergency treatment immediately following an accident, and treatment of serious brain and WINTER TERMINATION PROGRAM (800) 624-0241 spinal cord injuries up to $250,000. It also provides a Administered by the BPU, the Winter Termination death benefit of $10,000. The cost is $365 per year. Program (WTP) protects specific categories of custom- ers from having their gas or electric shut off between November 15th and March 15th. Those enrolled in specific programs (such as SSI, Temporary Assistance To find food pantries throughout New to Needy Families, USF and Lifeline) are protected by Jersey, visit www.endhungernj.com WTP, and an additional “catch-all” category is included for people unable to pay their utility bills because of cir- cumstances beyond their control such as unemployment www.mynjhelps.org See NJHelps Page 17 - or illness. 43

49 EARLY INTERVENTION RESOURCES XVI The New Jersey Early Intervention System receives state and federal funds through Part C of the Individuals with Disabilities Education Act. The ultimate goal is for children to maximize their potential to lead full, pro- ductive lives with their families and within their own communities. New Jersey’s Early Intervention System is a coordinated effort among the New Jersey Department of Health, the New Jersey Department of Human Services, the New Jersey Department of Education and the New Jersey Department of Children and Families. A State Interagency Coordinating Council, appointed by the governor, advises and assists the Department of Health as the lead agency in the development and implementation of early intervention for infants and toddlers with developmental delays or disabilities, and their families. Services are available to children, birth to three, in every county. Family Link Regional Early Intervention ELIGIBILITY Each child’s eligibility is determined by a multidisci- Collaborative plinary team, which includes the child’s parents. If 2333 Morris Avenue, Suite A204 (2nd Floor) the child is not eligible for early intervention, recom- Union, NJ 07083 mendations may be made for referral to other appro- Telephone: (908) 964-5303 priate resources. If the child is eligible, as determined (908) 964-6091 FAX: by a medical diagnosis or developmental evaluation, www.familylinknj.org an Individualized Family Service Plan (IFSP) to meet (Essex, Morris, Sussex, Union, and Warren Counties) the needs of the child and the family will be devel- oped by the team. Northeast Regional Early Intervention Collaborative CRITERIA 65 Willowbrook Boulevard, Suite 405 • developmental delay of at least 1.5 standard devia- Wayne, NJ 07470 tions below the mean in two or more developmental (973) 256-8484 Telephone: areas (cognitive; physical, including gross motor, FAX: (973) 256-1233 fine motor, vision and hearing; communication, www.nreic.org social/emotional or adaptive); or (Bergen, Hudson, and Passaic Counties) • developmental delay of at least 2.0 standard devia- tions below the mean in one developmental area; or Central Jersey Family Health Consortium • a medically diagnosed physical or mental condition Regional Early Intervention Collaborative that has a high probability of resulting in develop- Central Jersey Family Health Consortium mental delay. 2 King Arthur Court, Suite B North Brunswick, NJ 08902 ACCESSING SERVICES Telephone: (732) 937-5437 The county-based Regional Early Intervention FAX: (732) 937-5540 - Collaboratives are the system point of entry for refer www.cjfhc.org ral to the early intervention system. With family agree - (Hunterdon, Mercer, Middlesex, Monmouth, Ocean, and Somerset ment, anyone may call to make a referral. A service Counties) coordinator will be assigned to work with the family. The service coordinator will arrange evaluation for Southern Regional Early Intervention Collaborative eligibility at no cost to the family. Winslow Professional Building 1044 South Route 73, Suite A, Berlin, NJ 08009 REGIONAL COLLABORATIVES (856) 768-6747 Telephone: The Regional Early Intervention Collaboratives (856) 768-2059 FAX: (REICs) are independent, non-profit corporations www.snjreic.org established to provide a community-based, culturally (Atlantic, Burlington, Camden, Cape May, Cumberland, Gloucester, and Salem Counties) competent and consumer-driven early intervention system. The collaboratives are responsible for child find, public awareness, initial referral, service coor- dination, training and technical assistance and family support. Toll Free Number for the Early Intervention System (888-653-4463) 44

50 EDUCATION RESOURCES XVII The Individuals with Disabilities Education Act guarantees children with disabilities, ages 3 to 21, the right to a free, appropriate public education delivered in the least restrictive environment. The New Jersey Department of Education administers state and federally funded aid programs for more than 1.3 million public and private elementary and secondary school children, and is responsible for ensuring that local schools comply with state and federal laws and regulations. SPECIAL EDUCATION PROGRAMS PROJECT CHILD FIND A free referral service for early intervention and The Office of Special Education Programs, under special education programs. the jurisdiction of the Division of Student Services, Telephone: (800) 322-8174 is responsible for the provision of special education and related services. LEARNING RESOURCE CENTERS Office of Special Education Programs Learning Resource Centers provide research reports, PO Box 500, 100 Riverview Plaza educational guides, training, and workshops for par- Trenton, NJ 08625-0500 ents and educators of students with disabilities. (609) 292-0147 Telephone: (609) 984-8422 FAX: See page 37 for Special Child Health www.nj.gov/education/specialed/ and Early Intervention Services CHILD STUDY TEAMS A child study team consists of a school psychologist, HEAD START Project Head Start is a federally funded pre-school a learning disability teacher-consultant and a school program for children. Head Start provides a program social worker. For children age three to five, the of comprehensive developmental services based on child study team includes a speech correctionist or the needs of the individual child, the child’s family speech-language specialist. The child study team, and community. Head Start serves children with with consent from the child’s parents, evaluates the disabilities in a mainstream environment. child and determines his or her eligibility for special education services. For Local Head Start Programs, call: (609) 777-2074 Upon completion of the evaluation and prior to www.nhsa.org placement in special education, an Individualized Education Program, with stated goals and objec- NEW JERSEY HIGHER EDUCATION tives, is written with the participation of the parents. STUDENT ASSISTANCE AUTHORITY According to New Jersey Administrative Code, a full continuum of alternative placements shall be (HESAA) available to meet the needs of children with educa- HESAA provides New Jersey students and fami- tional disabilities. lies with the financial and informational resources for students to pursue their education beyond high NEW JERSEY’S SPECIALIZED CHILD STUDY TEAM school. Evaluation Services for New Jersey’s Deaf and Hard of Hearing Children Telephone: (800) 792-8670 Katzenbach NJ School for the Deaf www.hesaa.org PO Box 535 Trenton, NJ 08625-0535 Voice/TTY: (609) 530-3145 www.mksd.org COUNTY SUPERVISORS OF CHILD STUDY Middlesex (732) 249-2900 Atlantic (609) 625-0004 Monmouth (732) 431-7810 (201) 336-6875 Bergen (973) 285-8336 Morris (609) 265-5938 Burlington Ocean (732) 929-2079 Camden (856) 401-2400 Passaic (973) 569-2110 Cape May (609) 465-1281 Salem (856) 453-0422 Cumberland (856) 453-0422 Somerset (908) 541-5700 Essex (973) 621-2750 x2767 Sussex (973) 579-6996 (856) 686-8370 Gloucester Union (908) 654-9867 Hudson (201) 369-5290 (908) 689-0464 Warren Hunterdon (908) 788-1414 Mercer (609) 588-5873 45

51 EMPLOYMENT AND TRAINING RESOURCES XVIII Resources for employment and training vary, depending on an individual’s skill level and employability. Services for people with disabilities include vocational evaluation and assessment, training, counseling, educa- tion, job placement assistance, supported employment and support for entrepreneurs with disabilities. DVRS CAMDEN OFFICE VOCATIONAL REHABILITATION 2600 Mt. Ephraim Avenue, Suite 103 The Division of Vocational Rehabilitation Services Camden, NJ 08104-3290 (DVRS), within the Department of Labor and (856) 614-2500 Telephone: Workforce Development, provides services to indi- FAX: (856) 614-2538 viduals of employable age with disabilities through 18 district offices. Eligibility generally is based on DVRS CAPE MAY OFFICE the presence of a mental or physical disability that 3810 New Jersey Avenue is an obstacle to employment, and a reasonable Wildwood, NJ 08260 expectation that the division’s services will help the Telephone: (609) 523-0330 individual become employable. VP: (609) 224-1218 Vocational rehabilitation counselors work with indi- (609) 523-0212 FAX: viduals and their families to develop and carry out a plan for training and placement. If financial need is DVRS CUMBERLAND/SALEM OFFICE established, the division will purchase other rehabil- 40 East Broad Street, Suite 204 itative services from private providers, such as fur- Bridgeton, NJ 08302-2881 ther evaluation or counseling, training at a vocation- Telephone: (856) 453-3888 al center or technical school and on-the-job training. VP: (856) 497-0075 FAX: (856) 453-3909 DIVISION OF VOCATIONAL REHABILITATION SERVICES (DVRS) - MAIN OFFICE DVRS ESSEX OFFICE 1 John Fitch Plaza, 12th Floor 990 Broad Street, 2nd Floor PO Box 398 Newark, NJ 07102 Trenton, NJ 08625-0398 (973) 648-3494 Telephone: (609) 292-5987 Telephone: VP: (862) 772-7166 www.wnjpin.state.nj.us FAX: (973) 648-3902 DISTRICT OFFICES DVRS GLOUCESTER OFFICE 215 Crown Point Road, Suite 200 DVRS ATLANTIC OFFICE Thorofare, NJ 08086-2153 2 South Main Street, Suite 2 (856) 384-3730 Telephone: Pleasantville, NJ 08232 FAX: (856) 384-3777 Telephone: (609) 813-3933 (609) 813-3959 FAX: DVRS HUDSON OFFICE DVRS BERGEN OFFICE 438 Summit Avenue, 6th Floor 60 State Street, 2nd Floor Room 203 Jersey City, NJ 07306-3187 Hackensack, NJ 07601-5471 (201) 217-7180 Telephone: Telephone: (201) 996-8970 (201) 217-7287 FAX: (201) 996-8880 FAX: DVRS MERCER OFFICE DVRS BURLINGTON OFFICE Labor Station Plaza 4, PO Box 959 795 Woodlane Road, Suite 201 28 Yard Avenue, Westampton, NJ 08060 Trenton, NJ 08625-0959 (609) 518-3948 Telephone: Telephone: (609) 292-2940 FAX: (609) 518-3956 (609) 498-7011 VP: (609) 984-3553 FAX: 46

52 DVRS MIDDLESEX OFFICE DVRS OCEAN OFFICE DVRS SUSSEX/WARREN OFFICE 223A West Stiger Street, Suite A 1027 Hooper Avenue, Bldg. 6, 3rd 550 Jersey Avenue, PO Box 2672 Hackettstown, NJ 07840-1217 New Brunswick, NJ 08903 Fl. Toms River, NJ 08753-2225 (908) 852-4110 Telephone: Telephone: (732) 937-6300 (732) 505-2310 (908) 813-9745 FAX: (732) 937 6358 FAX: Telephone: TTY: (732) 505-2319 DVRS MONMOUTH OFFICE DVRS UNION OFFICE (732) 505-2317 FAX: 60 Taylor Avenue 921 Elizabeth Avenue, 3rd Floor Elizabeth, NJ 07201 Neptune, NJ 07753-4844 DVRS PASSAIC OFFICE Telephone: (908) 965-3940 Telephone: (732) 775-1799 200 Memorial Drive FAX: (732) 775-1666 (908) 965-2976 FAX: Paterson, NJ 07501 Telephone: (973) 742-9226 DVRS MORRIS OFFICE VP/TTY: (973) 968-6556 13 Emery Avenue 2nd Floor FAX: (973) 279-5895 Randolph, NJ 07869 Telephone: (973) 631-6304 DVRS SOMERSET/HUNTERDON OFFICE (973) 895-6420 FAX: 75 Veterans Memorial Drive East Suite 101 Somerville, NJ 08876-2952 (908) 704-3030 Telephone: (908) 704-3476 FAX: CBVI OFFICES For New Jersey residents who are blind or visually impaired, the DHS Commission for the Blind and Visually Impaired (CBVI) provides comprehensive employment services, which include vocational evaluation, counseling, guidance, training, and job placement. For a list of CBVI offices, go to Page 6. ONE-STOP CAREER CENTERS The cornerstone of New Jersey’s workforce investment system are the One-Stop Career Centers. One- Stop Career Centers throughout the state offer a wide range of tools to help people, including military veterans, those who are 55+, and individuals with disabilities, find a new job or career. All services are free of charge to help New Jersey’s workers: 0 Find a job 0 Strengthen job-search skills Get training 0 0 Improve reading and basic skills 0 Network the way to a job Use labor market information to make career decisions 0 0 Start a business To connect with your local One-Stop Career Center, call: (877) 872-5627 careerconnections.nj.gov Need more information on disability employment in NJ? Visit: www.state.nj.us/humanservices/disabilityemployment.html For the New Jersey Association for Persons in Supported Employment (NJAPSE), See Page 31 47

53 to acquire additional capital for small business start-up TICKET TO WORK AND WORK INCENTIVES through a PASS. A business plan is required. Contact a IMPROVEMENT ACT PASS specialist at your local Social Security office. Social Security’s Ticket to Work Program is a free and voluntary program available to people ages 18 PASS Proposals Social Security Administration through 64 who are blind or have a disability and who Telephone: (866) 348-5403 receive Social Security Disability Insurance (SSDI) or Last names A-L x23648, M-Z x23645 Supplemental Security Income (SSI) benefits. The goals www.socialsecurity.gov/disabilityresearch/wi/pass.htm of the program are to offer beneficiaries with disabilities expanded choices when seeking service and supports to TECHNICAL ASSISTANCE enter, re-enter, and/or maintain employment; to increase Assistance for entrepreneurs with disabilities is avail- the financial independence and self-sufficiency of bene- able in the form of financing, business plan preparation, ficiaries with disabilities; and to reduce and, whenever marketing assistance, PASS assistance, or general help possible, eliminate reliance on disability benefits. While in locating information or resources for business start-up participating in the Ticket to Work Program, beneficia- or expansion. ries can get the help they need to safely explore their work options without immediately losing their benefits. New Jersey Economic Development Authority Beneficiaries also can use a combination of work incen- Telephone: (866) 534-7789 tives to maximize their income until they begin earning www.njeda.com enough to support themselves. Small Business Development Centers For information, call (866) 968-7842 or visit: (800) 432-1565 Telephone: www.chooseworkttw.net www.njsbdc.com SELF-EMPLOYMENT The New Jersey Division of Vocational Rehabilitation Service Core of Retired Executives SCORE Services has developed a common policy and regulations Telephone: (800) 634-0245 regarding self-employment as a work option for people (703) 487-3066 FAX: with disabilities. Individuals with an interest in becom- www.score.org ing self-employed should present this option to their vocational rehabilitation counselor. If a solid business Receiving Social Security Disability plan is put together, there may be capital investment and considering working? available for a variety of start-up needs. Visit the New Jersey Benefits to Work Eligible clients of the Commission for the Blind and Calculator at Visually Impaired can obtain capital to start and man- www.nj.db101.org age businesses through the Commission’s Business Enterprise Program. Support primarily consists of training in business management and assistance in estab- lishing vending locations. However, assistance for other Business Resources on the We b business ventures is possible. A solid business plan is required. AbilityJobs www.abilityjobs.com Self-Employment Initiative Division of Vocational Rehabilitation Services Contact your Local DVRS office in your County, Pages: US Small Business Administration 46-47. www.sba.gov PLAN TO ACHIEVE SELF-SUPPORT (PASS) US Office of Disability Employment Policy The Social Security Administration has adopted a series www.dol.gov/odep of work incentives with a Plan to Achieve Self-Support (PASS), including the retention of benefits while start- ing a business. Individuals receiving SSI may be able 48

54 TICKET TO WORK The Ticket to Work and Self-Sufficiency Program is the centerpiece of legislation signed by former U.S. President Clinton on December 17, 1999, under the Ticket to Work and Work Incentives Improvement Act of 1999. It is a nationwide initiative designed to bring major positive change to the lives of individuals with disabilities. This comprehensive national initiative also is designed to assist people with the training and support they need to go to work by increasing their choices. SSA beneficiaries with disabilities can find employment, vocational reha- bilitation (VR), and other support services from public and private providers. Telephone: (866) 968-7842 TTY: (866) 833-2967 www.chooseworkttw.net (NEW JERSEY WORK INCENTIVE NETWORK SUPPORT) NJ WINS The Family Resource Network’s New Jersey Work Incentives Network Support (NJWINS) program assists Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) beneficiaries to start, contin- ue, or increase work efforts while maintaining cash and healthcare benefits for as long as they are needed. NJWINS can serve anyone ages 14 to 64, who is receiving SSI or SSDI benefits and is considering work, starting work, continuing present work, or increasing work efforts. www.njwins.org Northern and Central New Jersey residents, call: (866) 946-7465 Cape May, Camden, Atlantic, Gloucester, Cumberland and Salem counties, call: Full Circle Employment Solutions LLC P.O. Box 7030 Hyattsville, MD 20787 (888) 466-2942 x20 Need more information on disability employment in NJ? Visit: www.state.nj.us/humanservices/disabilityemployment.html NJ WORKABILITY The WorkAbility program offers people with disabilities who are working, and whose income would otherwise make them ineligible for Medicaid, the opportunity to pay a small premium and receive full NJ Medicaid cover- age. People with disabilities who are employed and are between the ages of 16 to 64 can qualify for the program with an annual gross earned income of up to approximately $61,500. Eligibility Criteria Must be between the ages of 16-64 0 Must be working (full or part time) and have proof of employment 0 0 Must have been determined “disabled” by the Social Security Administration OR the Disability Review Team at the Division of Medical Assistance & Health Services 0 Unearned Income $1,005 per month (single) 4 $1,354 per month (couple) 4 Social Security Disability benefit may be disregarded for unearned income Note: Earned Income (Individual) 0 $61,500 per year (gross income) 4 4 $5,125 per month (gross income) Eligible Couple 0 4 $82,400 per year (gross income) 4 $6,867 per month (gross income) Liquid Assets: 0 $20,000 for an individual 4 $30,000 for a couple (where both are eligible) 4 Assets do not include the primary home, car (used for work or medical transportation), or Note: 401K/IRA retirement account. www.state.nj.us/humanservices/dds/projects/discoverability (888) 285-3036 49

55 HOUSING RESOURCES XIX NEW JERSEY HOUSING AND MORTGAGE FINANCE HOUSING PROGRAMS AGENCY (NJHMFA) Under the New Jersey Department of Community www.njhousing.gov 800-NJ-HOUSE (800) 654-6873 Affairs (DCA), the Division of Housing and The main goal of the New Jersey Housing and Community Resources provides affordable housing Mortgage Finance Agency is to encourage the pro- programs through the administration of the Federal duction of affordable housing for all New Jersey cit- Section 8 Voucher, various supportive services, and izens. Its Community Development Division admin- financial assistance to communities, local govern- isters several programs targeted to people with ment, and community based organizations. Through special needs. For information about low-income its Community Services Block Grant, DCA provides or special needs home ownership programs, call the funding to Community Action Agencies (CAA) NJHMFA. throughout the state. CAA’s offer various programs to assist low income families and individuals, such For the Homeownership Preservation as: rental assistance, housing rehabilitation, weath- Foundation (HPF) see page 42. erization, relocation assistance, and family self-suf- ficiency. The Division also provides grant opportu- nities to local communities to support recreational New Jersey Housing Resource Center opportunities for individuals with disabilities. - The Housing Resource Center provides individu als with information on accessible and affordable DIVISION OF HOUSING AND housing throughout the state. This project was COMMUNITY RESOURCES made possible through a collaboration among the PO Box 051 Division of Disability Services, the Department of Trenton, NJ 08625-0051 Community Affairs and the NJ Housing Mortgage (609) 633-6303 Finance Agency. To access the Center, go to: www.state.nj.us/dca/divisions/dhcr www.njhrc.gov or call (877) 428-8844. Section 8 Housing Voucher Program COMMUNITY ACTION AGENCIES (CAA) and State Rental Assistance Program Atlantic County ... 732-244-5333 (609) 292-4080 201-968-0200 Bergen County ... HOMELESSNESS PREVENTION 609-835-4329 Burlington County ... 609-822-1108 x127 Atlantic County ... 856-964-6887 Camden County ... Bergen County ... 201-488-5100 x7041 Cape May County ... 732-244-5333 Burlington County ... 609-835-4329 x4721 856-451-6330 Cumberland County ... Camden County ... 856-964-6887 Essex County ... 973-395-8350 Cape May County ... 609-822-1108 x133 (Newark only: 973-642-0181) Cumberland County ... 856-692-2331 856-451-6330 Gloucester County ... Essex County ... 973-266-7991 201-437-7222, 201-547-6910, Hudson County ... Gloucester County ... 856-691-1841 201-656-3711, 201-210-0100 Hudson County ... 201-688-7234 908-454-7000 Hunterdon County ... 908-782-2490 Hunterdon County ... 609-989-6964, 609-392-2161 Mercer County ... 609-989-9417 Mercer County ... Middlesex County ... 732-324-2180, 732-828-4510 732-638-2870 Middlesex County ... 732-389-2958 Monmouth County ... 732-775-0525 x214 Monmouth County ... Morris County ... 908-454-7000 Morris County ... x118 908-454-7000 732-244-5333 Ocean County ... Ocean County ... 732-244-5333 973-881-2834, 973-279-2333, Passaic County ... Passaic County ... 973-279-7100 973-472-2478 856-691-1841 Salem County ... 856-451-6330 Salem County ... 908-454-7000 x118 Somerset County ... 732-846-8888 Somerset County ... 908-454-7000 x118 Sussex County ... Sussex County ... 908-454-7000 908-351-7727 Union County ... Union County ... 908-753-3519, 908-527-4883 Warren County ... 908-453-2194 908-454-7000 Warren County ... 50

56 CAREGIVER RESOURCES AND PERSONAL ASSISTANCE SERVICES XX MEDICAID PERSONAL CARE ASSISTANT SERVICE (PCA) Gloucester County ...(856) 384-6845 Hudson County ...(201) 336-6508 Personal Care Assistant Service (PCA) is a state- Hunterdon County ...(908) 788-1361 wide service provided by the New Jersey Medicaid Mercer County ...(609) 989-6459 Program to people eligible for Medicaid services in the community. The purpose of personal care is Middlesex County ...(732) 745-2587 to accommodate long-term chronic or maintenance Monmouth County ...(732) 571-6232 x17 health care as opposed to short-term skilled care as Morris County ...(973) 326-7285 is provided under Medicaid’s home health program. Ocean County ...(732) 505-3779 PCA services are health-related tasks done by quali- Passaic County ...(609) 631-2483 fied staff in a medically-eligible beneficiary’s home Salem County ...(856) 935-7510 x8449 or workplace. It includes assistance with activities Somerset County ...(908) 704-6346 of daily living and household duties essential to the individual’s health and comfort. To apply, contact Sussex County ...(973) 940-5200 x1286 your Medicaid managed care organization. Union County ...(908) 527-4845 Warren County ...(973) 625-1940 x125 PERSONAL PREFERENCE PROGRAM (PPP) AGING AND DISABILITY RESOURCE CONNECTION PPP offers an alternate way for individuals to (ADRC) receive their Medicaid Personal Care Assistant (PCA) services. Using a self-directed model, this The Aging and Disability Resource Connection/ program enables elderly and disabled Medicaid Area Agency on Aging (AAA) serves as the lead recipients to direct and manage their Medicaid PCA agency for seniors and their caregivers to access services rather than receiving traditional PCA agen- information, community services, and long term cy services. (See Page 1) services and supports. Services available to eligi- ble individuals may include: outreach, case man- PERSONAL ASSISTANCE SERVICES PROGRAM (PASP) agement, transportation, senior centers, volunteer opportunities, health promotion, nutrition programs, PASP provides routine, non-medical assistance to education, health insurance counseling, adult pro- adults with disabilities who are employed, preparing tective services, senior employment, respite care for employment, involved in community volunteer options, and information on housing and long-term work, or attending school. PASP allows consumers (See Page 19) care options. to receive up to 40 hours of service per week, there- www.adrcnj.org fore enabling them to maintain their independence in the community. Personal assistants help with such MOM2MOM HELPLINE PROGRAM tasks as light housekeeping, bathing, dressing, meal preparation, shopping, driving or using public trans- The Mom 2 Mom program is designed to provide portation. Consumers are able to coordinate their a compassionate and encouraging environment for own services by managing a budget, hiring workers mothers of children with special needs to come and making purchases directly through their account together and share support. They offer a 24 hour, with the assistance of a fiscal intermediary service 7 day a week helpline coordinated by UMDNJ- organization (FISO) or “business agent”. To apply, University Behavioral HealthCare which features (See please contact your county PASP consultant. peer support, telephone assessments, a network of page 1) referral services and support groups. COUNTY PASP CONSULTANTS Telephone: (877) 914-6662 (877-914-MOM2) www.mom2mom.us.com Atlantic County ...(609) 645-7700 x4519 Bergen County ...(201) 336-6508 HOME CARE & HOSPICE ASSOCIATIONS Burlington County ...(609) 631-2488 Camden County ...(609) 261-1667 Home Care Association of New Jersey 485-D Route 1 South, Suite 210 Cape May County ...(609) 631-2452 Iselin, NJ 08830 Cumberland County ...(856) 453-2220 Telephone: (732) 877-1100 Essex County ...(973) 530-2972 www.homecarenj.org 51

57 WELLSPOUSE ASSOCIATION New Jersey Hospital Association 760 Alexander Road, PO Box 1 The Well Spouse Association, a nonprofit 501(c)(3) Princeton, NJ 08543 membership organization, advocates for and addresses Telephone: (609) 275-4000 the needs of individuals caring for a chronically ill and/or www.njha.com disabled spouse/partner. The agency offers peer to peer support and educates health care professionals and the ADDITIONAL CAREGIVER RESOURCES general public about the special challenges and unique issues “well” spouses face every day. THE CAREGIVER ACTION NETWORK Telephone: (732) 577-8899 The Caregiver Action Network is the nation’s leading www.wellspouse.org family caregiver organization working to improve the quality of life for the more than 65 million Americans NATIONAL ALLIANCE FOR CAREGIVING who care for loved ones with chronic conditions, dis- Established in 1996, the National Alliance for Caregiving abilities, disease, or the frailties of old age. CAN serves is a non-profit coalition of national organizations focus- a broad spectrum of family caregivers ranging from the ing on issues of family caregiving. Alliance members parents of children with special needs, to the families include grassroots organizations, professional associa- and friends of wounded soldiers; from a young couple tions, service organizations, disease-specific organiza- dealing with a diagnosis of MS, to adult children caring tions, a government agency, and corporations. for parents with Alzheimer’s disease. CAN (formerly the Email only: [email protected] National Family Caregivers Association) is a non-profit www.caregiving.org organization providing education, peer support, and resources to family caregivers across the country free of charge. Rewarding Work Telephone: (202) 454-3970 To learn about employment opportunities www.caregiveraction.org to provide support to individuals FAMILY CAREGIVER ALLIANCE with disabilities of all ages: www.rewardingwork.org/nj (866) 212-9675 Family Caregiver Alliance was the first communi- ty-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. Long recognized as a pioneer in health GUARDIANSHIP RESOURCES services, FCA now offers programs at national, state and Guardianship Association of NJ (GANJI) local levels to support and sustain caregivers. Guardianship information and a series of educational Telephone: (415) 434-3388 or (800) 445-8106 materials www.caregiver.org www.ganji.org AMERICAN HEALTH CARE ASSOCIATION Pro-Se Documents on Judiciary Website The American Health Care Association is a non-profit Forms necessary to file for guardianship federation of affiliate state health organizations, together www.judiciary.state.nj.us/prose representing more than 11,000 non-profit and for-profit nursing facility, assisted living, developmentally-dis- NJ Surrogates Court abled, and subacute care providers that care for approxi- To establish guardianship for an incapacitated adult mately one million elderly and disabled individuals each (over age of 18), a verified complaint must be filed with day. the Surrogates Court in the county where they live. Telephone: (202) 842-4444 http://www.judiciary.state.nj.us/directory/surro- www.ahcancal.org/ gateroster.pdf Health Care Association of NJ Office of the Public Guardian 4 AAA Drive, Suite 203 Guardianship Services for people age 60 and over Hamilton NJ 08691 (609) 588-6500 Telephone:(609) 890-8700 http://www.state.nj.us/humanservices/doas/services/pg/ www.hcanj.org 52

58 TRANSPORTATION RESOURCES XXI (609) 889-3700 Cape May County ... NJ FIND A RIDE www.njfindaride.org (856) 691-7799 Cumberland County ... NJ Find A Ride is an online directory of public and (973) 618-1280 Essex County ... accessible transportation options throughout the Gloucester County ... (856) 686-8350 State. Through a customized search, the site pro- (201) 369-4320 Hudson County ... vides information on eligibility, costs, and how to Hunterdon County ... (800) 842-0531 arrange for a ride. (609) 530-1971 Mercer County ... Accessible Travel Information Middlesex County ... (800) 221-3520 www.njfindaride.org/accessible-travel-info Monmouth County ... (732) 431-6480 Morris County ... (973) 829-8103 NEW JERSEY TRANSIT (877) 929-2082 Ocean County ... New Jersey Transit provides commuter services (973) 305-5756 Passaic County ... through more than 150 bus routes and 11 rail lines Salem County ... (856) 339-8622 in New Jersey and into New York and Pennsylvania. (908) 231-7115 Somerset County ... Lift-equipped and kneeling buses, as well as acces- Sussex County ... (973) 579-0480 sible rail stations, are important elements of New Union County ... (908) 241-8300 Jersey Transit’s services to people with disabilities. (908) 454-4044 Warren County ... Access Link is a service for those who are not able to use a regular fixed-route bus. New Jersey Transit - AMTRAK OFFICE OF AMTRAK ACCESS also provides a reduced fare program for senior citi- Telephone: (800) USA-RAIL (800-872-7245) zens and people with disabilities. TDD/TTY: (800) 523-6590 New Jersey Transit www.amtrak.com One Penn Plaza East, Newark, NJ 07105 GREYHOUND CUSTOMERS WITH DISABILITIES (973) 275-5555 Customer Service: TRAVEL ASSISTANCE LINE TTY: (800) 772-2287 Telephone: (800) 752-4841 TTY: (800) 345-3109 NJ Transit ADA Paratransit: Access Link www.greyhound.com/en/contactus.aspx Telephone: (800) 955-2321 (800) 955-6765 TTY: Greyhound ADA Compliance Office www.njtransit.com (214) 849-8966 www.greyhound.com REDUCED FARE PROGRAM OUT OF STATE ACCESSIBLE TRANSIT SERVICES Special rates are available for senior citizens 62 SEPTA-Pennsylvania years of age or older and people with disabilities. (215) 580-7800 Customer Services: Personal assistants ride for free when proper identi- (215) 580-7853 TDD: fication is presented by the person with a disability. Customized Community Transportation Even qualifying out of state residents can ride on NJ (215) 580-7145 Paratransit Service TRANSIT buses and trains at the reduced rate. For www.septa.org more information, please contact NJ Transit. MTA-New York (973) 491-7112 Reduced Fare Program Access-A-Ride: (718) 393-4999 COUNTY PARA-TRANSPORTATION web.mta.info/nyct/paratran/guide.htm Each of the 21 counties in New Jersey provide a county-based paratransit service for senior citizens NJTIP @ Rutgers New Jersey Travel Independence and people with disabilities. The following contact Program New (NJTIP) teaches individuals how to numbers are resources for current information on independently travel safely using public transporta- local paratransit services, including hours of opera- tion. Instruction is available in English and Spanish tion, reservation procedures, fees (if any), priorities For more information visit the website at: for services, consumer representation on advisory njtip.rutgers.edu committees, etc. NJTIP @ Rutgers Alan M. Voorhees Transportation Center COUNTY PARA-TRANSIT INFORMATION Rutgers, The State University of New Jersey Atlantic County ... (609) 645-5910 33 Livingston Avenue Bergen County ... (201) 368-5955 New Brunswick, NJ 08901 (877) 603-5111 Burlington County ... Telephone: 848-932-4499 Email: [email protected] (856) 456-3344 Camden County ... 53

59 SERVICES FOR CHILDREN XXII Atlantic ... (609) 365-5027 For the Department of Children and Bergen ... (201) 336-7150 Families, See Page 13 (609) 261-9222 Burlington ... www.nj.gov/dcf (856) 374-6376 Camden ... Cape May ... (609) 898-5500 NJ PARENT LINK Cumberland ... (856) 462-6800 New Jersey’s Early Childhood, Parenting and Essex ... (973) 744-4677 Professional Resource Center (856) 537-2322 Gloucester ... www.njparentlink.nj.gov Hudson ... (201) 451-8888 (908) 782-8183 Hunterdon ... PERFORMCARE (609) 989-7770 Mercer ... Since 2009 PerformCare has been the Administrative Middlesex ... (732) 324-4357 Service Organization (ASO) for the State of New (732) 918-9901 Monmouth ... Jersey’s Division of Children’s System of Care Morris ... (973) 398-1730 (CSOC). Ocean ... (732) 557-9633 Passaic ... (973) 684-1904 To access services for children and youth, call Salem ... (856) 469-6100 PerformCare toll-free, 24 hours a day, seven days a Somerset ... (908) 927-0869 week, at 1-877-652-7624. (973) 383-3461 Sussex ... (See also, PerformCare Page 13) Union ... (973) 923-1433 (908) 454-1078 Warren ... OFFICE OF CHILD ABUSE PREVENTION THE NEW JERSEY TASK FORCE ON CHILD ABUSE KINSHIP NAVIGATOR/KINSHIP CARE AND NEGLECT Dial 2-1-1 PO Box 711 The Kinship Navigator/Kinship Care is a program Trenton, NJ 08625-0700 for people who have taken on the responsibility of Telephone: (609) 888-7919 caring for their relatives’ children. It is an informa- FAX: (609) 777-2070 tion and referral program established to help rela- tives navigate their way through the various govern- SAFE HAVEN mental systems to find the local supports they need, (877) 839-2339 including support groups, cash assistance, medical Safe Haven operates an infant protection hotline for coverage, housing assistance, child care resources, distressed parents who wish to surrender an infant and respite services. anonymously at a police station or hospital emer- gency room with no fear of arrest or prosecution. The telephone numbers of the four Kinship agencies The child must be less than 30 days old and must not and the counties they serve are listed below: have been abused or neglected. www.njsafehaven.org • CarePlus NJ: (201) 797-2660 x 5645 (Bergen, Hudson, Morris, Passaic, Sussex, CHILD CARE ASSISTANCE and Warren Counties) • The Salvation Army: 973-373-5045 NEW JERSEY CHILD CARE HELPLINE (Essex County) (800) 332-9227 Children’s Home Society: 1-800-396-4518 • Callers can obtain the telephone number of (Mercer, Middlesex, Monmouth, Ocean, their local Child Care Resource and Referral Somerset, Hunterdon, and Union Counties) Agency to get information about registered family • Family Service Association: day care providers and other child care services in 1-877-569-0350 (Atlantic, Burlington, their area. Caregivers can also learn how to become Camden, Cape May, Cumberland, a registered family day care provider. Gloucester, and Salem Counties) CHILD CARE RESOURCE AND REFERRAL CENTERS New Jersey State Parent Information & Resource The CCR&Rs are centralized locations in each is a program of Prevent Child Abuse- Center (NJPIRC) county that provide child care resources, referral, training and technical assistance. Child Care Health New Jersey (PCA-NJ) that provides leadership and Consultant Coordinators provide consultation, edu- technical assistance to non-profit organizations and local cation and training about the health and safety needs educational agencies to help those organizations put suc- of children in child care. For additional information, cessful parental involvement programs in place. contact your local Child Care Resource and Referral (732) 246-8060 www.njpirc.org Center (CCR&R). 54

60 SIGNS OF CHILD ABUSE Child abuse is harm to, or neglect of, a child by another person, whether adult or child. Child abuse happens in all cul- tural, ethnic, and income groups. Child abuse can be physical, emotional, verbal, sexual, or through neglect. Abuse may cause serious injury to the child and may even result in death. Signs of possible abuse include: Physical Abuse n Unexplained or repeated injuries, such as welts, bruises, or burns n Injuries that are in the shape of an object (belt buckle, electric cord, etc.) n Injuries not likely to happen given the age or ability of the child. (For example, broken bones in a child too young to walk or climb.) n Disagreement between the child’s and the parent’s explanation of the injury Unreasonable explanation of the injury n n Obvious neglect of the child (dirty, undernourished, inappropriate clothes for the weather, lack of medical or dental care) n Fearful behavior Emotional and Verbal Abuse n n Afraid to go home with parents or adults Aggressive or withdrawn behavior n Shying away from physical contact Sexual Abuse Child tells you he/she was sexually mistreated n n Child has physical signs, such as: • genital or rectal pain, itching, swelling, bruises or other • difficulty in walking or sitting injuries in the genital or rectal area, redness, or discharge • stained or bloody underwear Child has behavioral and emotional signs, such as: n • difficulty eating or sleeping • soiling or wetting pants or bed after being potty trained • acting like a much younger child • excessive crying or sadness • withdrawing from activities and others • talking about or acting out sexual acts beyond normal sex play for age Reproduced from the Center for Disease Control’s Guide to Intentional Injuries REPORTING CHILD ABUSE/NEGLECT In New Jersey, any person having reasonable cause to believe that a child has been subjected to neglect or acts of abuse should immediately report this information to the State Central Registry (SCR). If the child is in immediate . A concerned caller does not need proof to report an allegation of child danger, call 911 as well as 1-877 NJ ABUSE abuse and can make the report anonymously. INFORMATION TO PROVIDE THE SCREENER SCR screeners are trained caseworkers who know how to respond to reports of child abuse/neglect. Whenever possi- ble, a caller should provide all of the following information: • Who: The child and parent/caretaker’s name, age and address, as well as the name of the alleged perpetrator and that person’s relationship to the child. • What: Type and frequency of alleged abuse/neglect, current or previous injuries to the child, and what caused you to become concerned. When: When the alleged abuse/neglect occurred and when you learned of it. • • Where: Where the incident occurred, where the child is now and whether the alleged perpetrator has access to the child. • How: How urgent the need is for intervention and whether there is a likelihood of imminent danger for the child. Calls can be placed to the hotline anonymously. 1-877 NJ ABUSE (1-877-652-2873) TTY 1-800-835-5510 55

61 APPENDIX 1: ACCESSIBLE PARKING PLACARD OR PLATES - Accessible parking rights may be granted for both perma Revisions to the NJ Accessible Parking Laws, effective nent and temporary mobility impairments. August 1, 2013: • The term “handicapped” was replaced with “person Temporary Accessible Parking Placards: with a disability” to reflect person first language. • May be granted for short-term mobility impairments • Permanent person with a disability identification cards • Require written medical certification from a qualified and placards are now required to be renewed every practitioner. three years. • Are valid for six months • The certification of a medical professional is required • Are renewable one time at the discretion of the issuing for the issuance and/or renewal of all person with a authority disability ID cards/placards. • Are issued by the Chief of Police of each municipality. • All placards will be issued with a prominently printed and displayed expiration date. Permanent Accessible Parking Placards or Plates: • 1 in every 6 accessible parking spaces must be van To qualify for a permanent accessible placard or - accessible; this is an increase from the previous stan plates, you must: dard, which required 1 in every 8 spaces to be van • Have lost the use of one or more limb accessible. - • Be permanently disabled and be unable to move with Important Notes: out the use of an assistive device • Parking in the access aisles, the striped areas adjacent to • Have your mobility limited as certified by a physician accessible parking spaces, is always illegal. That space • Have a permanent sight impairment of both eyes as is required for wheelchair accessibility, ramps, etc. certified by the N.J. Commission of the Blind (placard only) New Jersey Motor Vehicles Commission www.state.nj.us/mvc Note: Non-disabled drivers who are transporting persons (609) 292-6500 (Voice) who meet the criteria above may also use the Accessible 711 NJ Relay (TTY) parking privileges, but only when the person with the qualifying disability is in the car. Also, plates or placard The Division of Disability Services publish- must be accompanied by the companion “person with a es a comprehensive “Guide to Accessible disability ID” card at all times. Parking”, call (888) 285-3036 to obtain a copy. APPENDIX 2: SPECIAL NEEDS ADOPTION AND FOSTER CARE • May be over five years old, living with a foster NEW JERSEY SUBSIDIZED ADOPTION PROGRAM family for at least 12 months. Many children are waiting for loving homes. The NJ Subsidized Adoption Program offers financial assis- SUBSIDIES TO ADOPTIVE FAMILIES CAN PROVIDE: tance to suitable prospective adoptive parents who • A regular monthly payment including clothing seek to adopt certain children, including children allowance to help parents meet daily needs. with disabilities. • Payment covering the legal fees related to the adoption. CHILDREN WAITING FOR ADOPTION: • Medicaid coverage for the child to assist with any • Are older, or of a race or ethnic group for which condition that is not covered by the family’s insur- adoptive homes are not readily available; ance. • May significant physical, intellectual or emotional • A special subsidy for a specific medical, health or disability; equipment need. • May need medical treatment or special services, • Out of State Medical coverage (for most states). equipment or training; • Post adoption counseling support services. • May be part of a group of siblings who should be kept together; 56

62 REQUIREMENTS OF ADOPTIVE FAMILIES • Must be in reasonably good physical and emo- tional health with the long-term ability to provide • Must be at least 18 years old and 10 years older day-to-day care for the child than the child to be adopted • Must be financially able to support the needs and • You may be single, married, in a domestic partner- care of the adopted child ship or civil union • Must be a New Jersey resident, or reside in a state For information with a cooperative agreement 1-800-99 ADOPT (1-800-992-3678) 1-877-NJFOSTER (1-877-653-6783 ) www.nj.gov/njfosteradopt APPENDIX 3: PEOPLE FIRST LANGUAGE • Don’t give excessive praise or attention to a per- Every person is made up of many characteristics and few want to be identified only by their ability to play son with a disability; don’t patronize them. tennis or by their love for fried onions or by the mole • Choice and independence are important; let the person do or speak for him/herself as much as that’s on their face. Those are just parts of us. possible; if addressing an adult, say Bill instead of In speaking or writing, remember that children or Billy. adults with disabilities are like everyone else except • A disability is a functional limitation that inter- they happen to have a disability. Therefore, here are feres with a person’s ability to walk, hear, talk, a few tips for improving your language related to learn, etc.; use handicap to describe a situation or disabilities: barrier imposed by society, the environment or oneself. • Emphasize abilities, not limitations. • Do not label people as part of a disability group; It is the individual first, don’t say “the disabled”, say “people with disabil- then the disability. ities”. Instead of... Say... child with a disability disabled or handicapped person palsied, or C.P., or spastic person with Cerebral Palsy person who is deaf or hard of hearing deaf and dumb retarded person with an intellectual disability person with epilepsy or person with seizure disorder epileptic person who had... afflicted, suffers from, victim without speech, non-verbal mute, or dumb slow developmental delay mental illness crazy or insane confined to a wheelchair uses a wheelchair Mongoloid with Down syndrome is learning disabled has a learning disability normal, healthy non-disabled has a physical disability crippled birth defect congenital disability condition disease fits seizures hare lip cleft lip mobility impaired lame sickly medically involved, or has chronic illness invalid or paralytic paralyzed dwarf or midget of short stature www.state.nj.us/humanservices/ The Department of Human Services has published a People First language fact sheet available on news/publications/PeopleFirstFlyer.pdf 57

63 APPENDIX 4: ADDICTION RESOURCES South Jersey: (856) 547-0855 GOVERNOR’S COUNCIL ON ALCOHOLISM AND www.southjerseyal-anon.org DRUG ABUSE The Governor’s Council on Alcoholism and Drug NJ Addictions Helpline Reach Abuse was created to coordinate statewide services (844) ReachNJ (844) 732-2465 involving alcoholism and drug abuse. It also is the http://reachnj.gov funding source for the Municipal Alliance Program. Gamblers Anonymous Governor’s Council on Alcoholism (855) 222-5542 and Drug Abuse www.gamblersanonymous.org PO Box 345 Trenton, NJ 08625 Narcotics Anonymous (609) 588-4466 Telephone: (800) 992-0401 (609) 588-2222 FAX: (732) 933-0462 www.state.nj.us/treasury/gcada www.na.org Alcoholics Anonymous NAR-ANON Family Group South Jersey Intergroup: (856) 486-4444 (877) 424-4491 (609) 641-8855 Cape Atlantic Intergroup: www.naranonofnj.org (609) 298-7795 Central Jersey Intergroup: (908) 687-8566 Intergroup of Northern NJ: Nicotine Anonymous www.aa.org (631) 665-0527 NJ Addictions Hotline (800) 238-2333 www.nicotine-anonymous.org For the Division of Mental Health and National Alcohol and Substance Abuse Addiction Services, See Page 8 Information Center (800) 784-6776 AL-ANON Adult Children & Family Group www.addictioncareoptions.com ALA-TEEN North Jersey: (973) 744-8686 NJ Connect for Recovery (opiate misuse) www.northjerseyal-anon.org (855) 652-3737 TTY: (877) 294-4356 www.njconnectforrecovery.org APPENDIX 5: SERVICE DOGS The Americans with Disabilities Act defines a service animal as any guide or signal dog used to provide assis - tance to an individual with a disability. Under the Americans with Disabilities Act (ADA) and the New Jersey Law Against Discrimination (NJLAD), a place of public accommodation cannot refuse admittance of a service dog when it is accompanying a person with a disability. The ADA/NJLAD requires that places of public accommodation (which include privately-owned - businesses that serve the public) allow people with disabilities to bring service dogs into any area in which cus tomers are generally allowed. The ADA/NJLAD does not require that a service dog be certified or have special identification, but it is not inappropriate for a business to ask if a dog that does not have an identifying vest or a special harness is a service - animal rather than a pet. The business may not, however, insist on proof of certification before permitting admit tance of a service dog accompanying a person with a disability. It is a violation of the ADA/NJLAD for a business to charge a cleaning or maintenance fee when a person with a disability has brought a service dog into the place of business. However, the owner of the animal has sole respon - sibility for its behavior and may be charged for any damages the animal causes as long as the business has a policy of charging non-disabled customers for damages that they cause. Likewise, it is not a violation of the ADA/ - NJLAD to exclude a service dog from a place of public accommodation if the animal behaves in a loud, threat ening, or uncontrolled manner, creating a substantial disturbance or posing a direct threat to the safety of others. 58

64 Disaster Preparedness Checklist for People with Disabilities APPENDIX 6: The following list is intended to provide suggestions for disaster preparedness planning that may be taken by individuals with disabilities: Self-Networks Discuss your disability and needs with relatives and friends. ____ Develop a network of people who know your needs and location, who will be able to assist you or alert ____ emergency personnel on your behalf. Do not depend on only one person. Medical Equipment and Supplies ____ Evaluate equipment for repairs and obtain and keep spare parts. Order the full allotment of supplies that your insurance allows, such as protective briefs, leg bags, ____ suction tubing, hearing aid batteries, etc. Stockpile unused items. Assemble a first aid kit. It should include: sterile adhesive bandages in assorted sizes, assorted sizes of ____ safety pins, cleansing agents/soaps, latex gloves (2 pairs), 4-6 sterile gauze pads (2-inch and 4-inch), three triangular bandages, non-prescription drugs, three rolls each of 2 and 3 inch sterile roller bandages, scissors, tweezers, needle, moistened towelettes, antiseptic, thermometer, two tongue depressors, and a tube of petroleum jelly or other lubricant. Medications and Medical Needs Create a list of current prescriptions, names and dosages. Remember to update this list, as needed. ____ ____ Keep a list of the names, addresses, and telephone numbers of doctors and pharmacists. ____ Prepare a detailed description of your medical regimen and personal care needs. Order a full 30-day supply of necessary medications. Check with your insurance carrier. ____ Telecommunications ____ Make sure your cell phone battery and any extra batteries are kept fully charged. Pre-arrange alternative methods to reach family, friends, or personal care attendants if ordinary ____ communications are disrupted. Personal Assistant Care Consider checking into a nursing home or hospital if a disaster is anticipated. Staff will be available to ____ meet personal care needs. Also, back up generators will be operating to assist people who use power wheelchairs and/or ventilators. ____ Contact your personal care attendant provider to discuss disaster preparedness and maintain a list of phone numbers of those who can assist in obtaining personal care for you. Food and Water Two quarts of water per person are needed for drinking daily. ____ ____ Two quarts of water per person are needed for food preparation and sanitation daily. ____ Keep a supply of canned, dehydrated, and no-cook foods. Keep cases of nutrients available for tube feeding. ____ Keep foods for special dietary needs, such as diabetic and high caloric diets. ____ Service Dog ____ The animal always should wear an identification tag with all necessary contact information. ____ Keep shots and medical records current and service animal ID numbers available. ____ Your animal will need plenty of food and water, kept in sturdy storage containers. Consider large capacity self-feeders and water dispensers. ____ Keep contact information on your service animal’s veterinarian available. ____ ____ Check with your local emergency management officials for companion animal procedures in emergency shelters. 59

65 APPENDIX 6: (continued) Disaster Preparedness Power ____ Extended power outages may affect ventilators, heating and/or cooling units, which may be a matter of life or death for some people with disabilities. Investigate emergency contingency plans in your building/community/municipality. ____ Explore care facilities, especially if you use a ventilator or have other complex medical needs. ____ Consider staying with friends or family out of your area if you anticipate possible power outages, ____ especially if you have medical equipment that is dependent upon power. Contact your local fire department and Red Cross for information and registries of people with ____ disabilities. Oxygen ____ Buildings where oxygen is kept must display an “Oxygen in Use” emblem. Oxygen must be kept in containers specifically manufactured for that purpose. ____ ____ Alert emergency response staff to the use of oxygen. ____ Oxygen is flammable, so avoid sparks and flame. Demand that people not smoke near an oxygen container. Miscellaneous Keep battery-operated flashlights and/or lanterns with lots of extra batteries. ____ ____ Blankets and warm clothes should be packed in an emergency. ____ Keep the gas tank in your car full. ____ Have a battery-powered radio and extra batteries on hand. ____ Keep ample cash on-hand. ATMs and banks may not function during power outages. Have a non-electric can opener. ____ Keep a supply of assorted plastic bags. ____ For more information on developing an individualized disaster preparedness plan, or for current information on Homeland Security Advisory System recommendations, contact: STATE FEDERAL NJ Special Needs Registry US Department of Homeland Security (See Page 3) www.ready.gov www.Listo.gov (Spanish) www.registerready.nj.gov 1-800-BE-Ready Call 211 for registration or help Federal Emergency Management Agency (FEMA) New Jersey Office of Emergency Management (800) 621-FEMA (3362) State Police Division Headquarters (NJ OEM) www.fema.gov www.registerready.nj.gov (609) 882-2000 LOCAL New Jersey Office of Homeland Security and Preparedness American Red Cross www.njhomelandsecurity.gov www.redcross.org Residential Disability and Oxygen Emblems Program The Division of Fire Safety distributes, free of charge, emblems which can be displayed to inform all emer- gency response personnel of an oxygen hazard or disabled occupant needing assistance. “Oxygen In Use” emblems are mandated by NJ state law. For additional information, contact the (609) 633-6106 : Division of Fire Safety It is unlawful to evict an oxygen-user from a rental property, solely on the basis of oxygen use, as long as the oxygen is stored and used appropriately. Questions can be directed to the Division of Fire Safety (609) 633-6106. 60

66 APPENDIX 7: TRAVELING WITH A DISABILITY Air Carrier Access Rules (See page 35) lift many restrictions that formerly discriminated against passengers with disabil- ities, and all carriers are now required to have a Complaints Resolution Officer (CRO) immediately available to resolve disputes between carriers and passengers with disabilities. While airlines may not require passengers with disabilities to provide advance notice of their disability or intent to travel (except in some very specific circumstances), doing so may in some cases help to avoid inconvenience. The following is a list of suggestions for air travelers with disabilities: PHYSICAL DISABILITY • Ask the screener for assistance with your mobility aid and carry items. • Let the screener know your level of ability and your need for physical assistance. • Inform the screener about any special equipment or devices that you are using and where this equipment is located on your body. • Ensure that all bags hanging from, or carried on, your wheelchair are put on the X-ray belt. • Ask the screener to reunite you with your carry items and assistive devices after screening. • Request assistance with removing your shoes when additional screening is necessary. HEARING DISABILITY • Ask the screener to write the information down or to look directly at you and repeat the information. VISUAL DISABILITY • Ask the screener to explain the security process to you step by step and to let you know where the metal detector is located. • Ask the screener to let you know when you will be going through the metal detector and when there are obstacles that you will need to avoid. • Ask the screener to find someone to escort you through the security process. • Ask the screener to perform a hand inspection of equipment to prevent damage and to direct you toward your gate once the screening has been completed. HIDDEN DISABILITY • Advise screeners that you have a disability and may need some assistance, or need to move slower. • Offer suggestions to screeners on the best way to approach you during a pat-down inspection. • Notify the screener if you need to sit down before and/or during the screening process. TRAVELING WITH MEDICAL SUPPLIES/DEVICES • Notify the screener that you are carrying medical supplies with you. • Medications must be properly marked with a professionally printed label identifying the medication or manufacturer’s name or pharmaceutical label. • Notify screeners if you are using any surgically implanted medical device (i.e., insulin pumps, prosthetics, or artificial joints). • Advise screeners if you are experiencing low blood sugar and are in need of medical assistance. • Pacemaker users may wish to carry a Pacemaker Identification Card (ID). • Crutches, canes and walkers will need to go through the X-ray machine. The screener will perform a hand inspection of your equipment if it cannot fit through the X-ray machine. You can ask for a private screening for the inspection of your prosthetic device or body brace. • Notify screeners if you need assistance, such as a chair or someone to assist you during the inspection of your prosthetic devices or body braces. • Tools and appliances used to put on or take off prosthetic devices must be screened. TRAVELING WITH SERVICE ANIMALS • Carry appropriate identification. Identification may include: cards or documentation, presence of a harness or markings on the tags. Service dogs and their harnesses or vests are subject to inspection. • Advise the screener how you and your dog can go through the metal detector as a team with the leash and/or harness. If necessary, remind the screener that you should not be separated from your dog. For more information on traveling by air with a disability, contact: Federal Aviation Administration Transportation Security Administration Department of Homeland Security www.dhs.gov www.faa.gov www.tsa.gov 61

67 APPENDIX 8: FAMOUS ADA CASES BRAGDON V. ABBOTT (1998) The Supreme Court found that, even when HIV has not progressed to AIDS, it still constitutes a disability, as the virus significantly impairs the life activity of reproduction. PENNSYLVANIA DEPARTMENT OF CORRECTIONS V. YESKEY (1998) The Court ruled that state prisons must comply with Title II of the ADA, as they are public entities. WRIGHT V. UNIVERSAL MARITIME SERVICE CORP (1998) The Supreme Court ruled that a general arbitration clause in a collective bargaining agreement does not require an employee to use the arbitration procedure for an alleged ADA violation. ALBERTSONS, INC. V. KIRKINGBURG (1999) The Supreme Court held that circumstances mitigating the determination of disability include not only devices and medi- cations, but also an individual’s ability to compensate for their impairment. CLEVELAND V. POLICY MANAGEMENT SYSTEMS (1999) The Supreme Court ruled that pursuing and/or receiving Social Security Disability Insurance benefits does not automat- ically prevent an individual from pursuing an ADA claim, nor do such SSDI benefits presume against the recipient’s ADA success. MURPHY V. UNITED PARCEL SERVICE (1999) The Court found that a UPS worker’s high blood pressure did not significantly limit his life activities when the worker was medicated, and that he was, therefore, not disabled. OLMSTEAD V. L.C. (1999) The Supreme Court ruled that to stop or to avoid discriminatory activity, the state may place people with disabilities in community settings rather than in institutions, when the state’s treatment professionals find the placement appropriate, the affected person is not against the shift from an institutional to a community setting, and the placement can be reason- ably accommodated. SUTTON V. UNITED AIRLINES (1999) The Supreme Court found that determination of disability must include measures that might mitigate a disability, such as, in this case, eyeglasses for those with visual impairments. EEOC V. WAFFLE HOUSE, INC. (2002) The Court ruled that a private arbitration agreement between an individual and that individual’s employer does not pre- vent the EEOC from filing a court action in its own name and recovering monetary damages for the individual. LANE V. TENNESSEE (2004) The Court ruled that courthouses must adhere to Title II of the Americans with Disabilities Act - which guarantees access to public facilities and services - and that individuals may sue states for failing to provide access to courts. SPECTOR V. NORWEGIAN CRUISE LINE (2004) The Supreme Court ruled that foreign run and owned cruise ships serving US ports must comply with the public accom- modations requirements of the American with Disabilities Act. ADA Case Information on the Web Olmstead Resource Center www.ilru.org/resources-olmstead-implementation www.supremecourt.gov US Supreme Court Homepage 62

68 APPENDIX 9: HOTLINES & TOLL-FREE NUMBERS ASSISTIVE TECHNOLOGY ADVOCACY CENTER 877-652-7624 PerformCare 609-292-9742 800-922-7233 Domestic Violence 800-572-7233 TTY: 888-252-7233 DIVISION OF DEAF AND HARD OF HEARING Text Hotline: 609-619-1888 800-792-8339 800-THE KIDS (800-843-5437) Family Help Line DIVISION OF DISABILITY SERVICES 888-285-3036 Foster Care 877-NJ FOSTER (877-653-6783) DEVELOPMENTAL DISABILITIES COUNCIL 800-242-0804 Victim of Crime Compensation Office 800-792-8858 800-322-8092 Women’s Referral Central AGING AND DISABILITY RESOURCE CONNECTION 877-222-3737 (ADRC) NJ TASK FORCE ON CHILD ABUSE AND NEGLECT 609-888-7919 Task Force on Child Abuse and Neglect NJ DISASTER MENTAL 877-294-HELP (4357) HEALTH HELPLINE, and 800-THE KIDS (800-843-5437) Parents Anonymous TTY: 877-294-4356 NJ MENTAL HEALTH CARES National Suicide Prevention Hotline 800-273-8255 HEALTH AND WELLNESS (for Veteran’s Crisis Line, press 1) 800-624-2377 AIDS and STD Hotline NJ Hopeline (suicide prevention) 855-654-6735 800-238-2333 NJ Addictions Hotline SENIOR INFORMATION LINE NJ Connect for Recovery (opiate misuse) 800-792-8820 855-652-3737 SAFE HAVEN FOR INFANTS Cancer Information 800-422-6237 877-839-2339 Office of the Inspector General- (NJ) DIVISION OF FAMILY DEVELOPMENT 800-424-9071 Complaint Hotline REVIEWS AND APPEALS 800-792-9773 Health Complaint and Reportable DIVISION OF MENTAL HEALTH SERVICES 800-792-9770 Event Hotline 800-382-6717 Health Information (DOH) 800-367-6543 FOSTER AND ADOPTIVE FAMILY SERVICES 877-NJ-FOSTER (1-877-653-6783) Family Health Line 800-328-3838 MEDICAID FRAUD AND ABUSE HOTLINE 800-792-9745 PAAD/Lifeline Program 888-937-2835 800-701-0710 NJ FAMILYCARE HOUSING Housing and Mortgage Finance Agency 800-654-6873 CHILDREN AND FAMILY SERVICES Division of Children and Family Services HUD (DCF) Info Line 855-463-6323 800-697-6967 Support Service Center Adoption 800-99-ADOPT (800-992-3678) Best Practices Task Force 800-800-5029 877-NJABUSE (877-652-2873) Child Abuse-Report MEDICAL ASSISTANCE 800-331-3937 Office of Advocacy 800-356-1561 MEDICAID 800-221-7437 SIDS Alliance/First Candle MEDICARE 800-633-4227 63

69 APPENDIX 10: Accessible Communication New Jersey Relay municate via a certified Video Interpreter via the A free service administered by the NJ Board of internet, using any device equipped with a front Public Utilities (BPU) in collaboration with Sprint, facing camera or webcam. The interpreter voices the to ensure equal communication access to telephone signed conversation over the phone – in real time – service for people who are deaf, deaf-blind, hard-of- to the standard telephone users. hearing, or speech disabled. The service allows call- Internet Protocol Relay (IP Relay) ers to communicate with standard (voice) telephone Enables individuals to use any device connected to users through specially trained Relay Operators the internet to type their conversation to an OPR (OPR). Dial 711 to use NJ Relay. who then reads the conversation to a standard tele- COMMUNICATION OPTIONS phone user. Spanish translation is also available. AVAILABLE THROUGH NJ RELAY Relay Conference Captioning (RCC) Text Telephone Relay (TTY) Enables individuals to participate in meetings, phone Allows individuals using a TTY to type their con- calls, videoconferences and multi-party conference versation to the OPR, who then reads the typed con- calls using live, real-time text streamed to a comput- versation to a standard telephone user. TTY equip- er connected to the Internet. ment is also available with braille or large visual displays for individuals who are visually impaired. Captioned Telephones (CapTel), Web CapTel, Wireless CapTel Hearing Carry-Over (HCO) Allows users to listen, speak directly to the caller, Allows a speech disabled person with hearing capa- and read captions of the caller’s response either bilities to listen to a standard telephone user and type through a captioned telephone device (CapTel), via his/her conversation to the OPR, who will voice the a computer with internet access (Web CapTel), or message to the standard telephone user. wirelessly using a mobile device. Spanish transla- tion is available. Video Relay Service (VRS) Enables individuals who use sign language to com- For additional information, contact the NJ Division of the Deaf and Hard of Hearing at 609-588-2648 or visit . www.njrelay.com GLOSSARY Amyotrophic Lateral Sclerosis (ALS) : A progres- A sive, degenerative disease of the motor neurons of : Usable to an individual with a disability Accessible the central nervous system, causing muscular weak- Accommodation : An adjustment, alteration, or ness, atrophy, and spasticity. Ten percent of cases addition to an environment, a situation, or a piece of are genetic, the other ninety percent are of unknown equipment, which enables a person with a disability origin to utilize it in a manner equivalent to that of a person : Eating disorder primarily char- Anorexia Nervosa without a disability acterized by an excessive, voluntary loss of weight Acquired Immune Deficiency Syndrome (AIDS): and refusal to maintain minimal normal body weight A defect of the immune system caused by the blood- A communication disorder that results Aphasia: borne HIV virus, causing vulnerability to various from damage to the parts of the brain that contain infections, malignancies, and neurological diseases language. Aphasia may causes difficulties in speak- : Genetically and/or psychosocially Addiction ing, listening, reading, and writing, but does not impaired ability to control the use of a substance, affect intelligence. preoccupation with the substance, distorted percep- : Designated safe place for a person Area of Refuge tions about the substance, and continued use of the with a disability to await assistance during an emer- substance despite adverse consequences gency evacuation of a building or vessel Alzheimer’s Disease : Brain disease of unknown : Disease of the joints and connective Arthritis cause in which nerve cells in the brain die, causing tissues, which can have numerous causes, creating progressive, irreversible deterioration of memory pain, swelling, and limited range of movement and other intellectual functions, language skills, and ability to perform routine tasks 64

70 GLOSSARY the small intestine. This damage can impair absorp- Asperger’s Syndrome: A pervasive developmental tion of nutrients, resulting in malnutrition. disorder in which the individual often has above-av- Cerebral Palsy: Injury to the motor areas of the erage intellectual ability, but may experience ongo- ing difficulties with social interaction, empathy, brain, at or prior to birth, resulting in a non-pro- gressive impaired ability to control movement and logic, and understanding non-verbal cues. Assistive Technology: Equipment or services which posture increase, maintain, or improve the functional capa- Chronic Fatigue Syndrome: Illness of uncertain cause characterized by fatigue, weakness, malaise, bility of an individual with a disability Chronic respiratory disorder characterized Asthma: muscle pain, and lymph node swelling by episodes of coughing, wheezing, and difficulty A condition which is present at birth, Congenital: but which has a non-hereditary cause in breathing because of inflamed and obstructed bronchial tubes. Among the triggers are allergies, Impaired ability to think, con- Cognitive Disability: chemical irritation, and/or emotional stress centrate, reason, and remember Neurological Attention Deficit Disorder (ADD): Condition of unknown origins, Crohn’s Disease: disorder characterized by distractibility, forgetful- characterized by chronic painful inflammation of the intestinal tract ness, inability to concentrate, poor attention span, is impairment in the and impulsiveness Communication Disorder: Attention Deficit/Hyperactivity Disorder (ADHD): ability to receive, send, process, and comprehend Neurological disorder which has the same character- concepts or verbal, nonverbal and graphic symbol istics as Attention Deficit Disorder, but which also systems includes hyperactivity A hereditary disease which affects Cystic Fibrosis: Autism: Neurological disorder of unknown ori- the respiratory system, pancreas, and sweat glands. gin which generally manifests before the age of 3. It is characterized primarily by the excessive produc- Social and communication skills are impaired, and tion of thick mucus, which results in chronic respira- symptoms such as self-injury, aggression, voluntary tory infections and impaired breathing repetitive body movements, intense attachment to D objects, and sensory processing difficulties may be Hearing loss severe enough to prevent, with Deaf: present or without amplification, the processing of linguis- A variety of disorders Autoimmune Disorder: tic information. Specifically, a hearing deficiency which are the result of the body producing an inap- above 25 db ISO in the 500-2000 frequency Hz propriate immune response against its own tissues. range unaided in the better ear The causes are generally unknown, but symptoms Permanent cognitive Developmental Disability: can include episodic or chronic inflammation and and/or physical impairment, which occurs before the pain, as well as tissue and/or organ damage age of 22, and which substantially limits the individ- ual in three or more major life activities B Condition characterized by abnormal Diabetes: Bi-Polar Disorder: A mental disorder which is char- blood sugar levels resulting from impaired function- acterized by alternations between manic and depres- ing of the pancreas sive moods with consequent changes in thinking and Disability: A physical or mental impairment that behavior. Commonly called Manic-Depression substantially limits a major life activity, such as Blind: Legal blindness is regarded as visual acuity walking, talking, seeing, hearing, caring for oneself, of 20/200 or less in the better eye with correction, breathing, learning, or working or a field of vision no greater than 20 degrees at its Down Syndrome: Congenital disorder caused by widest point an extra 21st chromosome, which causes intellectual Eating disorder characterized by episodes Bulimia: developmental disabilities and distinctive physical of binge eating, followed by compulsive purging, characteristics usually through vomiting, consumption of laxatives, Short stature, resulting from a genetic or Dwarfism: and/or excessive exercise medical condition. It is generally defined as an adult C height of 4 feet ten inches or less. A common term A genetic disorder which is charac- Celiac Sprue: for an individual with dwarfism is “little person” terized by an extreme sensitivity to gluten – the pro- tein in some grains – which can produce damage to 65

71 GLOSSARY aphasia, perceptual disabilities, brain injury, and E minimal brain dysfunction, which may disrupt the Eating Disorder: Psychological disorder character- process of listening, speaking, reading, writing, ized by a distorted body image and a dysfunctional spelling, or doing mathematical calculations relationship with food, often resulting from feelings Chronic, progressive disease of unknown Lupus: of low self-worth and powerlessness. The individual cause, which is primarily characterized by scaling may overeat, undereat, and/or purge in an effort to and ulceration of the skin. In about 10% of affected self-soothe and to control body shape individuals, symptoms may also include inflamma- Disease of the lungs, characterized Emphysema: tion of the joints and mucous membranes and disrup- primarily by labored and inefficient breathing, in tion of kidney and nervous system function which the air sacs (alveoli) become distended and therefore limited in their functioning M Chronic condition produced by temporary Epilepsy: Medigap: Insurance which supplements Medicare changes in the electrical functioning of the brain, benefits by paying some of the costs and covering characterized by recurrent brief episodes of convul- some of the services not covered by Medicare sive movements, alterations in consciousness, and/or Multiple Chemical Sensitivity: Condition marked sensory phenomena by a variety of symptoms, such as respiratory dis- tress, migraines, nausea, fatigue, irritation of the F mucous membranes and/or skin, cognitive difficul- Fetal Alcohol Spectrum Disorder: A preventable ties, and/or disordered sleep. The onset generally set of physical, craniofacial, mental, and neurobe- occurs in response to a major or chronic chemical havioral impairments associated with alcohol con- exposure, then broadens to include sensitivity to sumption by the mother during pregnancy common chemicals and irritants found throughout Disease of unknown origin charac- Fibromyalgia: the individual’s environment terized by the persistent presence of non-physically : Disease of the central nervous Multiple Sclerosis damaging pain that moves throughout the muscles, system which generally has its onset in young to joints, ligaments, and tendons of the body mid-adulthood. Degradation of the sheaths of nerves causes relapses and remissions of weakness, pain, G and/or numbness in the limbs, disrupted vision, and A pathological condition result- Genetic Disorder: urinary tract dysfunction. It’s cause is unknown ing from a defective inherited gene Group of genetic diseases Muscular Dystrophy: H characterized by progressive weakness and degen- Hemiplegia: Paralysis of one side of the body eration of the skeletal or voluntary muscles which : Virus Human Immunodeficiency Virus (HIV) control movement which can damage the immune system and lead to O AIDS Obsessive-Compulsive Disorder: Psychological Huntington’s Disease: Genetic disease which caus- condition, which may have a neurological basis, es a pre-programmed degeneration of brain cells. characterized by repetitive ideas or impulses which Initial symptoms, usually appearing in young to may be unwanted, irrational, and performed against mid-adulthood, include mood swings, forgetfulness, the person’s wishes and lack of coordination. They are followed by involuntary movements, deterioration of swallowing P and speaking ability, and loss of cognitive ability Paralysis of the legs and the lower trunk Paraplegia: Chronic disease of the central Parkinson’s Disease: I nervous system characterized by tremors, muscu- Intellectual Disability: A developmental disability lar weakness and rigidity, and an unsteady gait. which is characterized by below-normal intellectual/ Symptoms are caused by a deficiency of the brain cognitive functioning, causing impairment in learn- chemical dopamine, but the cause of the deteri- ing, social adjustment, maturation, and acquisition oration of the dopamine-producing nerve cells is of life skills. unknown L Pervasive Developmental Disorder (PDD): A group of disorders which Learning Disability: Umbrella term for five neurological disor- includes such conditions as dyslexia, developmental ders - Autism, Asperger’s Syndrome, Childhood 66

72 GLOSSARY Disintegrative Disorder, Rett’s Syndrome, and PDD- self-defined goals, and participate fully in society Not Otherwise Specified, all of which impair social Service Animal : Animal trained to provide assis- and communication skills tance to an individual with a disability Array of possible symptoms Post-Polio Syndrome: A genetic disorder of the Sickle Cell Anemia: which occur in about 25% of individuals who have blood, characterized by red blood cells that assume been infected with polio. These symptoms generally an abnormal rigid sickle cell shape. This decreases manifest 20 to 40 years after the onset of the infec- the cells’ functionality, resulting in a variety of tion and after a recovery period of at least 10 years, complications, such as anemia, pain, and frequent and may include muscle pain, weakness, tics, respi- infections ratory difficulties, disordered sleep, gastrointestinal Speech to Speech (STS): Telephone relay ser- and/or swallowing problems, neuropathy, arthritis, vice mandated by the Federal Communications scoliosis, and osteoporosis Commission, which provides translation for indi- Psychological Post-Traumatic Stress Disorder: viduals with speech disabilities. A communication condition which develops in response to an over- assistant, specially trained to understand the speech whelmingly traumatic event which is generally out- of people with a wide variety of speech disabilities, side the range of usual human experience. Symptoms listens to the speaker who has the speech disability can include flashbacks, fear of dying, rage, and panic and restates verbatim to a third party what that per- attacks son has said Spina Bifida: Congenital condition caused by the Q failure of the spine to close properly during the first Paralysis of all four limbs and the Quadriplegia: month of pregnancy. This may result in mobility trunk. Also called tetraplegia impairment, bladder/bowel problems, and/or hydro- cephalis R Damage to the spinal cord, Spinal Cord Injury: Reasonable Accommodation: Modification or which results in temporary or permanent loss of adjustment to a job application process or work sensation, motor control, and/or bladder and bowel environment which allows a person with a disability control to enjoy the same benefits and opportunities enjoyed Stroke: Sudden neurological impairment caused by by similarly situated people without disabilities a hemorrhage or blood clot in the brain. Temporary Chronic Reflex Sympathetic Dystrophy (RSD): or permanent loss of vision, speech, mobility, and/or nerve disorder that generally has its onset in the body consciousness may result at the site of an injury, and which often spreads to other areas of the body. Characterized by burning T pain, extreme sensitivity to touch, tissue swelling, Tourette Syndrome: A disorder of the nervous and pathological changes in bone and skin system which may cause “tics,” which are repetitive involuntary movements and vocalizations. Tics can S vary in severity, frequency, and type, and can be Schizophrenia: Brain disease of unknown cause intensified by physiological and emotional stressors. which typically has its onset in adolescence or Some individuals with this condition may also have young adulthood. Characterized by thought dis- other symptoms, such as obsessive compulsive dis- orders, delusions, and hallucinations. An affected order, anxiety disorder, and attention deficit disorder individual may experience excessive or lack of emo- tional expression, as well as paranoia and disrupted Injury to the brain which Traumatic Brain Injury: interpersonal relationships. Symptoms can in some may impair cognitive or physical functioning, dis- cases be managed by medication and supportive turb behavior or moods, and/or produce an altered counseling state of consciousness Scleroderma : Disease of unknown cause in which Triplegia: Paralysis of three limbs the dermis layer of the skin is replaced by collagen, causing toughness and discomfort. This process can V also involve the heart, lungs, kidneys, and intestinal Vision which is no better than Visually Impaired: tract, interfering with the functioning of these organs 20/70 with correction, but not worse than 20/200 Self-Determination: The entitlement of individuals with correction. To have less visual acuity than with disabilities to control their own lives, pursue 20/200 with correction constitutes legal blindness 67

73 ABBREVIATIONS AND ACRONYMS ivil iberties U nion L A merican C ACLU ystrophy A ssociation uscular M MDA D A ct A isabilities D mericans with ADA clerosis ultiple M MS S eficit D isorder D ttention A ADD erm ervices and T ong L anaged MLTSS M S A ttention eficit H D yperactivity D isorder ADHD S upports D L A iving ctivities of ADL aily ll M I entally NAMI N ational A lliance for the esource R isability D ging and A ADRC onnection C mpaired NI N eurologically I gency for olicy and P are C AHCPR A ealth H C N ational I enter for NICHCY nformation R esearch C isabilities D outh with hildren and Y mmune I cquired AIDS yndrome S A eficiency D F yndrome S atigue NJCFSA N ew Jersey C hronic L A myotrophic ALS ateral S clerosis A ssociation A dult P rotective S ervices APS N pecified S NOS ot therwise O oard of S ocial B S ervices BSS OCD bsessive- D ompulsive C O isorder CAP P C rogram onsumer A ssistance G OIG O ffice of the I eneral (US) nspector B ommission for the C CBVI isually V lind and ecords OPRA O pen P ublic R A ct I mpaired (NJ) OT O ccupational T herapy ommunity C are W CCW C aiver ged A ssistance to the A harmaceutical P PAAD enter for P CDCP D isease C ontrol and revention C isabled (NJ) D and H ealth L C aw P roject ommunity CHLP ndividuals I dvocacy for A rotection and P PAIMI L CIL C enter for iving I ndependent I ental M llness with ervices edicare and M enters for M edicaid S CMS C ndividual P rotection and A dvocacy for I PAIR CNA ssistant A C ursing ertified N R ights onsumers C ealth H ental M oalition of C COMHCO P rogram A PAP harmaceutical P ssistance rganizations O rogram A PASP P ersonal ssistance S ervices P ervices for COSAC C O utreach and S enter for lan to P Social Security Administration PASS utism C ommunity, Inc. the A upport chieve S elf- S A P erebral C CP alsy A are PCA C ersonal P ttendant CWA C gency A elfare W ounty isorder PDD ervasive D evelopmental D P D isability evelopmental D DD D ivision of D evelopmental D isabilities DDD R O rganization PRO P eer eview (NJ) T P PT hysical herapy ervices (NJ) S isability D ivision of D DDS PTSD P D tress S raumatic T ost- isorder H DHS D epartment of uman S ervices (NJ) RHHI R H egional H ealth I ntermediary ome H ealth epartment of D DH egional REIC R C ntervention I arly E ollaborative DOJ D epartment of J ustice RSD ystrophy D ympathetic S eflexive R N isability DRNJ D ew J ersey R ights ealth S ervices A hild and dult C H SCAHS S pecial ehabilitation ocational V ivision of D DVRS R (NJ) ervices (NJ) S SCI S pinal C ord I njury outh and Y ivision of D amily DYFS S ervices F SCORE S ervice C ore of R etired E xecutives E EEOC E pportunity O mployment qual I rogram P nsurance ealth H tate SHIP S ommission (US) C SILC S ouncil tatewide C iving L ndependent I FCC F ederal C ommunications C ommission utritional P rogram SNAP N upplemental S D isability ntellectual I ID dvocacy etwork A arents P SPAN S tatewide N HIPAA H ealth I nsurance P ortability and S ecurity A dministration ocial SSA S A ccountability A ct D isability I ncome SSDI S ocial S ecurity HIV H uman irus I V mmunodeficiency I ecurity S upplemental SSI S ncome rganization ealth M aintenance O HMO H peech S T peech S STS o ervices S R ealth H HRFA esources and ssistive A echnology TARP T rogram P esource R dministration (US) A I njury raumatic TBI T rain B rban U ousing and H Department of HUD elecommunications D eaf evice for the TDD T D evelopment (US) D T elephone TT T ext D ndividuals with I IDEA E ct A ducation isabilities eletypewriter TTY T I ndividual E ducation P lan IEP P ffiliated rogram A niversity UAP U abilitation IHP I ndividual H P lan UCPA U C erebral P alsy A ssociation nited A raining ob J JTPA artnership T ct P dministration A eterans’ VA V L aw A gainst D iscrimination (NJ) LAD isually mpaired I VI V anaged MCO M C VP V ideo P hone are O rganization WIC Supplemental Nutrition Program for uscular M MD D ystrophy W omen, I nfants, and C hildren 68

74 INDEX A 2, 8 Able Act ... Abuse ... 19, 55, 63 Access-A-Ride MTA ... 53 Access Link ... 53 31 ACCESS NJ/CNA ... ADA See: Americans with Disabilities Act ... 34, 36, 62 ADAPT (American Disabled for Attendant Programs Today) ... 27 ADD/ADHD ... 33 8, 33, 58, 63 Addictions ... 14 Adjutant General, Office of the ... Adler Aphasia Center ... 20 56, 57, 63 Adoption/Foster Care ... ADRC (Aging and Disability Resource Center) ... 19 Adult Protective Services ... 19 Advancing Opportunities (formerly Cerebral Palsy of NJ) ... 22, 32 ... 4, 5, 27-30, 36, 52, 63 Advocacy Aging, County Offices on ... 19 Aging Services, Division of ... 6, 19 Agriculture, Department of ... 3 9 AIDS Drug Distribution Program (ADDP) ... 9, 20, 40, 63 AIDS/HIV ... 35, 61 Air Carriers Access Act ... AL-ANON ... 58 58 Alcoholics Anonymous ... Alexander Graham Bell Association ... 23, 32 Alliance for the Betterment of Citizens with Disabilities (ABCD) ... 21 Alliance Center for Independence ... 18 ALS See: Amyotrophic Lateral Sclerosis ... 20, 32 20 Alzheimer’s Association, The ... American Association on Intellectual and Developmental Disabilities ... 32 21 American Autoimmune Related Diseases Association ... American Cancer Society ... 21, 32 American Civil Liberties Union (ACLU) ... 29 23 American Diabetes Association ... 34, 36, 62 Americans with Disabilities Act (ADA) ... 32 American Foundation for the Blind ... American Heart Association ... 22 American Lung Association ... 25 American Self-Help Group Clearinghouse ... 26, 30 American Stroke Association ... 26, 32 American Tinnitus Association ... 32 Amerigroup ... 39 32 Amputee Coalition of America ... 53 Amtrak, Office of Amtrak Access ... 20, 32 Amyotrophic Lateral Sclerosis (ALS) ... Amyotrophic Lateral Sclerosis Association ... 32 Aphasia ... 20, 64 Arc, The ... 22 Arc of New Jersey ... 22 Arthritis Foundation ... 20 Arthritis National Research Foundation ... 33 Arts ... 31 Asperger Syndrome Education Network (ASPEN) ... 20 Assistance Dogs International, Inc. ... 27 69

75 INDEX Assistive Technology ... 32 4, 32, 63 Assistive Technology Advocacy Center (ATAC) ... Advocates for Children of New Jersey ... 29 31 Association of Blind Athletes of NJ (ABANJ) ... Association of Late-Deafened Adults (ALDA) ... 23 ASAH ... 31 Association for Special Children and Families ... 29 ATAC (Assistive Technology Advocacy Center) ... 4, 32, 63 Attention Deficit Disorder (ADD) ... 33 Attorney General, Office of the ... 14 Audient ... 33 Autism ... 20 20 Autism New Jersey (formerly COSAC) ... Autism Family Services of New Jersey ... 20 21 Autoimmune Disorders ... Auto Insurance Assistance ... 43 B Back in Action (Assistive Devices Recycling Center) ... 32 3 Banking and Insurance, Department of ... 10 Barrier Free Sub-Code ... 48 Benefits To Work ... Better Hearing Institute ... 23, 33 Blind/Visually Impaired ... 6, 21, 32-34, 47 Boards of Social Service ... 17 Boggs Center See: Elizabeth M. Boggs Center on Developmental Disabilities ... 5 Brain Injury Association of America ... 33 Brain Injury Alliance of New Jersey ... 24 33 Burn Association of America ... Business Resources ... 48 C 18 Camden City Independent Living Center ... Cancer ... 21-22, 32, 63 31 Canine Companions for Independence ... 31 Canine Hearing Companions, Inc. ... 31 Canine Partners for Life ... CAP (Client Assistance Program) ... 4 Cardiac ... 22 Caregiving ... 51-52 Cash and Counseling See: Personal Preference Program ... 1, 51 Catastrophic Illness in Children Relief Fund ... 42 6, 47 CBVI See: Commission for the Blind and Visually Impaired ... 33 Celiac Support Association ... Center for Disease Control and Prevention ... 38 Center for Health Statistics ... 9 Centers for Independent Living ... 18 Center for Independent Living of South Jersey, Inc. ... 18 Centers for Medicare and Medicaid Services (CMS) ... 38, 63 Central Jersey Spinal Cord Association ... 26 Central Registry of Offenders ... 8 Cerebral Palsy ... 21 Cerebral Palsy League ... 21 Cerebral Palsy of New Jersey See: Advancing Opportunities ... 22, 32 70

76 INDEX Cerebral Palsy of North Jersey ... 21 40 Charity Care ... Child Abuse Prevention, Office of ... 54 55, 63 Child Abuse Report Hotline ... Child Care Helpline ... 54 Child Care Resource and Referral Centers ... 54 Child Study Teams ... 45 Children’s System of Care (formerly Division of Child Behavioral Health) ... 13 Children and Adults with Attention Deficit Disorder (CHADD) ... 33 3, 13 Children and Families, Department of ... Christopher & Dana Reeve Paralysis Resource Center ... 26 Chronic Fatigue and Immune Dysfunction Syndrome Association of America (Solve ME/CFS) ... 33 Chronic Fatigue Syndrome ... 22, 33 27 Chronic Pain ... Civil Rights, Division on ... 14, 30, 36 38 Civil Rights, Office on ... Codes and Standards, Division of ... 10 7, 13, 22 Cognitive Disability ... Colitis See: Crohn’s Disease ... 22 Comfort Partners (See weatherization) ... 42 6, 47 Commission for the Blind and Visually Impaired (CBVI) ... 22 Communication Disorder ... 22 Community Access Unlimited ... Community Affairs, Department of ... 3, 10, 50 Community Discharge Initiative ... 2 Community Health Law Project ... 30 Community Justice Center ... 29 Community Options, Inc. ... 22 Community Services Block Grant ... 50 14 Consumer Affairs, Division of ... Corrections, Department of ... 3 15 ... Corrections Ombudsman, Office of the 17 County Boards of Social Service ... County Offices on Aging ... 19 16-17 County Offices of Disability Services ... 53 County Para-Transportation ... 17 Crisis Intervention ... Crohn’s and Colitis Foundation of America ... 22 Cross Disability ... 22 Cystic Fibrosis Foundation ... 23, 33 D Danielle’s Law ... 35 18 DAWN, Inc. ... DD Council (See: New Jersey Council on Developmental Disabilities) ... 4, 63 DDD (See: Division of Developmental Disabilities) ... 7 Deaf-Blind (See: Sensory Impairments) ... 26 Deaf and Hard of Hearing, Division of the ... 7, 63 Deaf/Hard of Hearing ... 7, 23, 33, 63 Dental Assistance ... 37-38 Dental Care for Persons with Developmental Disabilities ... 38 Dental Provider Database ... 38 Developmental Disabilities, Division of (DDD) ... 7 Developmental Disabilities Assistance and Bill of Rights Act of 2000 ... 34 Diabetes ... 23 71

77 INDEX DIAL, Inc. ... 18 15 Disabilities Management, Office of ... Disability Determinations ... 12 2 Disability Health and Wellness Initiative ... Disability Preparedness Resource Center ... 59 Disability Rights New Jersey (formerly New Jersey Protection and Advocacy) ... 4, 30 Disability Services, Division of ... 1-2, 8 Disability Social History Project ... 27 Disaster Mental Health Helpline ... 63 Disaster Preparedness ... 59-60 Dollar-A-Day Car Insurance ... 43 Domestic Violence Hotline ... 13, 63 Dental Lifeline Network (Formerly Donated Dental Services) ... 37 Down Syndrome ... 23 DVRS See: Vocational Rehabilitation Services, Division of ... 12, 46-47 Dwarfism 23 ... 13, 63 DYFS, See: Division of Child Protection and Permanency ... 24 Dyslexia (See learning Disabilities) ... E Early Intervention Services ... 9, 37, 44 33 Easter Seals National Headquarters ... 22 Easter Seals Society of New Jersey ... Eating Disorders Association of New Jersey ... 23, 24 Education, Department of ... 3, 11 Education Law Center ... 29 EEOC See: Equal Employment Opportunity Commission ... 36 Elizabeth M. Boggs Center on Developmental Disabilities ... 5, 22 Emergency Management, Office of ... 3 25 Emphysema See: Respiratory Disease ... Employment ... 12, 46-49 Environmental Protection, Department of ... 3 24, 33 Epilepsy ... Epilepsy Foundation of America ... 33 24 Epilepsy Foundation of New Jersey ... 36 Equal Employment Opportunity Commission (EEOC) ... F Fair Housing Act ... 34, 36 ... 63 Fair Housing Best Practices Task Force Family Care ... 39, 63 Family Development, Division of ... 8, 63 Family Health Services, Division of ... 9, 37 63 Family Helpline ... Family Resource Network ... 29 Family Support ... 29 Family Support Act ... 35 Family Support Center ... 29 Federal Aviation Administration (FAA) ... 61 Federal Communications Commission (FCC) ... 36 Federal Emergency Management Agency (FEMA) ... 60 Federal Government Contacts ... 38 Federally Qualified Health Centers ... 40 Fibromyalgia (see arthritis) ... 20 72

78 INDEX Financial Assistance ... 42-43 ... 53 NJFindARide Fire Safety, Division of ... 10, 60 Food Addicts Anonymous ... 23 Food Pantries ... 43 Food Stamps (SNAP; See county Board of Social Services) ... 17 Foster Care ... 63 Fragile X-Syndrome ... 33 63 Fraud ... G Gamblers Anonymous ... 58 Guiding Eyes for the Blind ... 31 21 Githens Center (Burlington County Cerebral Palsy Association) ... Governor, Office of the ... 3 58 Governor’s Facing Addiction Helpline ... Greyhound Travel Assistance Line ... 53 2 Guardianship ... Guardianship association of NJ ... 52 H 7, 23, 38, 64 Hard of Hearing ... 1-2, 24, 33 Head Injury/Traumatic Brain Injury ... 45 Head Start ... Health Care Facility Consumer Complaint Hotline ... 9, 63 ... 9 Health Facilities Evaluation and Licensing, Division of Health Information ... 63 Health Insurance Portability and Accountability Act (HIPAA) ... 35 Health Link (NJ) ... 38 38 Health Resources and Services Administration (HRSA) ... Health , Department of ... 3, 9 2, 41, 63 Health and Wellness for People with Disabilities ... 23, 33 Hearing Loss Association of America, New Jersey State Association ... Heart Disease ... 22 ... Heightened Independence & Progress (HIP) 18 Hepatitis Foundation International ... 24 11, 45 Higher Education Student Assistance Authority (HESAA) ... HIPAA (Health Insurance Portability and Accountability Act) ... 35 HIV/AIDS ... 9, 20, 63 HIV/AIDS Services, Division of ... 9 Home Care and Hospice Associations ... 51 Homeownership Preservation Effort (HOPE) ... 54, 50 60 Homeland Security, Department of ... 50 Homelessness Prevention Program ... 15 Homestead Rebate Hotlines ... 39 Horizon NJ Health ... Hospice ... 38, 51 Hotlines/Helplines ... 6, 13, 14, 17, 63 Housing Information Line ... 10, 50, 63 Housing Authority Offices ... 50 Housing, Division of ... 10, 50 Housing and Mortgage Finance Agency (HMFA, NJHMFA) ... 10, 50, 63 HUD (Housing and Urban Development, Department of) ... 36, 50, 63 73

79 INDEX Human Services, Department of ... 3, 6-8 24 Huntington’s Disease Society of America ... Hyacinth AIDS Foundation ... 20 I 2 I Choose Home New Jersey (Money Follows the Person) ... IDEA See: Individuals with Disabilities Education Act ... 34, 36 Independent Living Centers See: Centers for Independent Living ... 18 Independent Living Institute ... 27 34, 36 ... Individuals With Disabilities Education Act (IDEA) Information and Assistance Services, Office of ... 1 Inspector General, Office of the ... 38, 63 27 Institute on Disability Culture ... Intellectual Disability ... 7, 22, 32 24 International Dyslexia Association ... International Paralympic Committee ... 28 27-28 Internet Resources ... J Job Accommodation Network ... 33 Joseph Kohn Rehabilitation Center ... 6 Justice, Department of ... 36 K Katzenbach School for the Deaf ... 11 Kean University Center for Communication Disorders ... 22 Kinship Navigator ... 54 L Labor and Workforce Development, Department of ... 3, 12 LAD See: New Jersey Law Against Discrimination ... 35, 58 LADACIN Network ... 21 Late-Deafened Adults, Association of (ALDA) ... 23 ... 33 Laurent Clerc National Deaf Education Center 3, 14 Law and Public Safety, Department of ... Laws and Rights ... 34-36 Learning Ally ... 34 Learning Disabilities ... 24, 33 Learning Disabilities Association of America ... 24, 33 Learning Resource Centers ... 11, 45 Legal Assistance ... 4, 14, 29, 30, 36 ... 29 Legal Services of New Jersey Legislative Services, Office of ... 3 Libraries ... 34 Lifeline Utility Assistance Program ... 6, 43 Little People of America ... 23 LogistiCare ... 39 Long Term Care Ombudsman ... 38 Low-Income Home Energy Assistance Program (LIHEAP) ... 43 Lupus Foundation of America ... 24 74

80 INDEX M Managed Care ... 39 1, 8 Managed Long Term Supports and Services (MLTSS) ... Marie Katzenbach School for the Deaf ... 11 9, 37 Maternal and Child Health Services ... Medicaid ... 39, 63 Medicaid Fraud and Abuse Hotline ... 39, 63 Medicaid Waivers ... 1, 8, 39 8, 39 Medical Assistance Customer Centers (MACC) ... Medical Assistance and Health Services, Division of ... 8, 39 38, 63 ... Medicare 8, 24, 33, 35, 40, 63 Mental Health ... Mental Health America ... 33 Mental Health and Addiction Services, Division of ... 8, 58 Mental Health Association in New Jersey 24 ... 35 Mental Health Parity Act ... 3, 14 Military and Veteran’s Affairs, Department of ... Minority and Multicultural Health, Office of ... 9 MLTSS (Managed Long Term Supports and Services) ... 1, 8 18 MOCEANS Center for Independent Living ... Mom2Mom helpline ... 51 22 Monmouth University Center for Speech and Language Disorders ... Montclair University Center for Audiology and Speech-Language ... 22 Money Follows the Person (I Choose Home New Jersey) ... 2 Motorized Wheelchair Lemon Law ... 14, 34 Motor Vehicles (New Jersey Motor Vehicle Commission) ... 40, 56 MTA (New York Transportation) ... 53 Multiple Sclerosis ... 25 ... 25 Multiple Sclerosis Association of America (MSAA) Multiple Sclerosis Society ... 25 Muscular Dystrophy Association ... 25, 33 N NAMI (National Alliance on Mental Illness) ... 24 NAR-ANON 58 ... Narcotics Anonymous ... 58 58 National Alcohol and Substance Abuse Information Center ... National Association of the Deaf ... 33 ... 33 National Association for Parents of Children with Visual Impairments National Autism Center ... 33 National Council on Alcoholism and Drug Dependence ... 33 National Council on Disability ... 28 33 National Down Syndrome Society ... National Education for Assistance Dog Services (NEADS) ... 33 National Federation of the Blind ... 21 National Fragile X Foundation ... 33 National Library Services for the Blind and Physically Handicapped ... 33 National Multiple Sclerosis Society ... 33 National Organization on Disability (NOD) ... 28 National Organization for Rare Disorders ... 33 National Resources ... 32-33 Neuromuscular and ALS Center ... 20 Newborn Screening and Genetic Services ... 9, 37 75

81 INDEX New Eyes For The Needy ... 38 25 New Jersey American Parkinson Disease Association ... New Jersey Association of Community Providers, Inc. ... 31 23 New Jersey Association of the Deaf, Inc. (NJAD) ... New Jersey Association for Persons in Supported Employment (NJAPSE) ... 31 New Jersey Center for Tourette Syndrome ... 26 New Jersey chapter of the Association of Late Deafened Adult ... 23 New Jersey Chronic Fatigue Syndrome Association (NJCFSA), Inc. ... 22 New Jersey Commission on Recreation for Individuals with Disabilities (NJID) ... 31 21 New Jersey Council of the Blind ... New Jersey Council on Developmental Disabilities (DD Council) ... 4, 63 New Jersey Health Link ... 38 New Jersey Homeland Security ... 3, 60 52 New Jersey Hospital Association ... New Jersey Law Against Discrimination (NJLAD) ... 35, 58 6, 43 New Jersey Lifeline ... 25 New Jersey Polio Network ... New Jersey Protection and Advocacy, Inc. See: Disability Rights New Jersey ... 4, 30 New Jersey Relay ... 64 New Jersey State Parent Information and Resource Center ... 54 29 New Jersey Self-Advocacy Project ... New Jersey Self-Help Group Clearinghouse ... 26, 30 43 New Jersey Shares ... New Jersey Speech-Language-Hearing Association ... 26 New Jersey State Bar Association ... 29 New Jersey State Library ... 34 New Jersey Subsidized Adoption Program ... 56 New Jersey’s Specialized Child Study Team ... 45 Nicotine Anonymous ... 58 23 North West Jersey Association for the Deaf (NWJAD) ... NJ Addictions Hotline ... 6, 58, 63 9, 63 NJ AIDS/STD Hotline ... NJ Association of the Deaf (NJAD) ... 23 53 NJ FindARide ... NJ Helps ... 17, 43 50 NJ Housing Resource Center ... 6, 8, 63 NJ Mental Health Cares ... 22, 58 NJ Reach Addiction Helpline ... NJ Shares ... 43 NJ Sharing Network ... 26 NJ State Library Talking Book and Braille Center ... 34 NJ Surrogates Court ... 52 NJ Transit ... 53 NJ WINS ... 49 2, 49 NJ WorkAbility ... 36 ADA Information Line ... O ... 52 Office of the Public Guardian Older Americans Act ... 35 Olmstead Decision ... 62 Ombudsman, Long Term Care ... 38 Ombudsman for the Institutionalized Elderly, Office of the ... 15 One-Stop Career Centers ... 47 Open Public Records Act (OPRA) ... 35 Oxygen Emblems ... 60 76

82 INDEX P 6, 40, 63 PAAD See: Pharmaceutical Assistance for the Aged and Disabled ... 4 PAAT (Protection and Advocacy for Assistive Technology) ... 19 PACE (Program of All Inclusive Care for the Elderly) ... PAIMI (Protection and Advocacy for Individuals with Mental Illness) ... 4 PABSS (Protection and Advocacy for Beneficiaries of Social Security) ... 4 PABTI (Protection and Advocacy for Traumatic Brain Injury) ... 4 4 PADD (Protection and Advocacy for Persons with Developmental Disabilities) ... PAGE (Payment Assistance for Gas and Electric) ... 42 PAIR (Protection and Advocacy of Individual Rights) ... 4 PAVA (Protection and Advocacy for Voter Access) ... 4 Paralyzed Veterans of America ... 33 ... 53 Para-Transit See: County Para-Transportation 54 Parent Link (NJ) ... 28 Parent Advocacy Coalition for Educational Rights (PACER) ... Parent Information and Resource Center (NJPIRC) ... 54 Parents Anonymous ... 63 20 Parents of Autistic Children (POAC) ... Parking Laws ... 56 25 Parkinson’s Disease ... 4 Partners In Policymaking ... PASP See: Personal Assistance Services Program ... 1, 2, 51 PASS See: Plan to Achieve Self-Support ... 48 PCA See: Personal Care Assistant ... 1, 51 People First Language ... 57 PerformCare ... 13, 54, 63 1, 2, 51 Personal Assistance Services Program (PASP) ... 1, 51 Personal Care Assistance (PCA) ... Personal Preference Program ... 1, 51 Pervasive Developmental Disorder See: Autism ... 20 Pharmaceutical Assistance ... 6, 40, 63 6, 40, 63 Pharmaceutical Assistance for the Aged and Disabled (PAAD) ... 48 Plan to Achieve Self-Support (PASS) ... Polio/Post-Polio ... 25 Progressive Center for Independent Living (PCIL) ... 18 Project Child Find ... 45 Pro-se Documents ... 52 Property Tax Reimbursement Program ... 15 Public Utilities, Board of ... 42 R Railroad Retirement Board ... 38 Rare Disorders (National Organization of) ... 33 Recreation ... 10, 31 Red Cross ... 60 Reduced Fair Program, New Jersey Transit ... 53 Reflex Sympathetic Dystrophy Syndrome Association ... 33 Regional Early Intervention Collaborative (REIC) ... 44 Regulatory Affairs, Office of ... 10 Rehabilitation Act of 1973 ... 34, 36 50 Rental Assistance ... 77

83 INDEX Residential Disability and Oxygen Emblems Program ... 60 18 Resources for Independent Living (RIL) ... Respiratory Disease ... 25 Rewarding Work ... 52 33 RSD (Reflex Sympathetic Dystrophy) ... Rx4NJ 40 ... S 54, 63 Safe Haven for Infants ... Sandy Relief Modular Ramp Program ... 2 40 SCCAT (Statewide Clinical Consultation and Training) ... Scleroderma Foundation ... 25, 26 50 Section 8 Housing Voucher Program ... Seeing Eye, Inc. ... 31 5, 29 Self Advocacy ... 48 Self-Employment Initiative ... 26 Self Help Clearinghouse ... Senior Freeze ... 43 Senior Gold Prescription Discount Program ... 6, 40 6, 63 Senior Information Line ... Sensory Impairments ... 26 53 SEPTA (Pennsylvania Transportation) ... 27, 31, 58, 61 Service Animals ... 48 Service Core of Retired Executives (SCORE) ... SHIP See: State Health Insurance Program ... 6, 38 25 Sickle Cell Disease Association of America ... 63 SIDS Alliance ... Small Business Development Center ... 48 Snow Removal Act ... 34 Social Security Administration ... 42, 48, 49 42 Social Security Disability Insurance (SSDI) ... Society for Accessible Travel and Hospitality (SATH) ... 28 Society for Disability Studies ... 28, 33 22, 29 SPAN See: Statewide Parent Advocacy Network ... Special Child Health Early Intervention Services (SCHS) ... 9, 37 37 See Also: SCHS Case Management Units ... 11, 45 Special Education Programs, Office of ... 36 Special Education and Rehabilitative Services, Office of ... Special Needs Registry ... 3, 60 Special Olympics ... 31 Spectrum for Living ... 22 Spina Bifida Resource Network ... 26 Spinal Cord Injury (SCI) ... 26, 33 Sports ... 27, 31 42, 48, 49 SSDI (Social Security Disability Insurance) ... SSI (Supplemental Security Income) ... 42, 48, 49 State Assessments, Office of ... 11 State, Department of ... 3 State Health Insurance Program (SHIP) ... 6, 38 State Insurance Department ... 38 State Medical Assistance Office ... 38 State Parent Information and Resource Center ... 54 State Rental Assistance Program (SRAP) ... 50 State Temporary Disability Benefits ... 12 15 State Treasurer, Office of the ... 78

84 INDEX Statewide Clinical Consultation and Training (SCCAT) ... 40 43 Statewide Food Pantries ... 9 Statewide Family Centered HIV Care Network ... Statewide Independent Living Council (SILC) ... 18 22, 29 Statewide Parent Advocacy Network (SPAN) ... Stockton University Speech and Hearing Clinic ... 22 Stroke/CVA ... 26 Student Services, Division of ... 11 6, 8, 33, 58, 63 Substance Abuse See: Addictions ... Substance Abuse Hotline ... 63 Suicide Hotline ... 17, 63 Supplemental Security Income (SSI) ... 42, 48, 49 26, 30 Support Groups See: New Jersey Self-Help Group Clearinghouse ... T 54, 63 Task Force on Child Abuse and Neglect ... 15 Taxation, Division of ... TBI Fund ... 1 32 Technology Lending Center ... Telecommunications Relay Services ... 36 43 Telephone Assistance ... 12 Temporary Disability Benefits ... Ticket to Work ... 48, 49 Total Living Center, Inc. (TLC) ... 18 Tourette Syndrome ... 26 Transportation, Department of ... 3 Transportation Security Administration (TSA) ... 61 1, 4, 24, 33 Traumatic Brain Injury See: Head Injury/Traumatic Brain Injury ... Traumatic Brain Injury Advisory Council ... 2 1 Traumatic Brain Injury Fund ... Traumatic Brain Injury Waiver ... 2, 8 Travel Instruction Program (NJ TIP) ... 53 Traveling with a Disability ... 28, 61 Treasury, Department of ... 3, 15 TRUE (Temporary Relief for Utility Expenses) ... 42 U Unemployment Insurance ... 12 United Cerebral Palsy of Hudson County ... 21 United Health Care ... 39 29 United Spinal Association (Formerly EPVA) ... Universal Service Fund ... 43 42-43 Utility Assistance ... V Veteran’s Affairs, Department of ... 14, 38 Veteran’s Affairs Hotline ... 14 Veteran’s Healthcare Services ... 14 Victim of Crime Compensation Office ... 63 Vision Assistance ... 38 Visually Impaired See: Blind/Visually Impaired ... 6, 21, 32, 33, 34, 47, 48 Vocational Rehabilitation Services, Division of (DVRS) ... 12, 46- 47 31 VSA Arts of New Jersey ... 79

85 INDEX W Weatherization See: Comfort Partners ... 42 WellCare ... 39 Wheelchair Lemon Law ... 14, 34 9, 37 WIC (Special Supplemental Nutrition Program for Women, Infants, and Children) ... 22 William Paterson University Speech and Hearing Clinic ... Winter Termination Program ... 43 WorkAbility ... 2, 49 Work Incentives Improvement Act ... 35, 49 Workers’ Compensation, Division of ... 12 Workforce Development ... 12 Women, Division on ... 13 Women’s Referral Center ... 63 Y 32 Your ReSource (see Goodwill Home Medical Equipment) ... 80

86 NOTES 81

87 The New Jersey Department of Human Services (NJ DHS) complies with applicable Federal civil rights laws and does not discriminate on the basis of race, color, national origin, age, disability, or sex. NJ DHS does not exclude people or treat them differently because of race, color, national origin, age, disability, or sex. The NJ DHS: Provides free aids and services to people with disabilities to communicate effectively with us, such as: l Qualified sign language interpreters l Written information in other formats (large print, audio, accessible electronic formats, other formats) l Provides free language services to people whose primary language is not English, such as: Qualified interpreters l Information written in other languages If you need these services, contact Bonny E. Fraser, Esq., or if you believe that the NJ DHS has failed to provide these services or discriminated in another way on the basis of race, color, national origin, age, disability, or sex, you can file a grievance at: 222 South Warren Street, PO. Box 700, Trenton, New Jersey 08625-0700; phone: 609-777-2026; fax: 609- 633-9610; [email protected] . You can also file a civil rights complaint with the U.S. Department of Health and Human Services, Office for Civil Rights, electronically through the Office for Civil Rights Complaint Portal, available at https://ocrportal.hhs.gov/ocr/ portal/lobby.jsf , or by mail or phone at: U.S. Department of Health and Human Services 200 Independence Avenue, SW Room 509F, HHH Building Washington, D.C. 20201 1-800-368-1019, 800-537-7697 (TDD) Complaint forms are available at http://www.hhs.gov/ocr/office/file/index.html .

88 P ublished by the New Jersey Department of Human Services Division of Disability Services PO Box 705 Trenton, NJ 08625-0705 (888) 285-3036 May 2017 Seventeenth Edition Chris Christie, Governor Kim Guadagno, Lt. Governor Elizabeth Connolly, Acting Commissioner Department of Human Services Joseph M. Amoroso, Director Division of Disability Services Dianna Maurone, Supervisor Information and Referral Services Jayme D’Souza, Managing Editor/Information and Referral Specialist Alexis Flores-Whyte, Managing Editor/Information and Referral Specialist Jeffrey May, Managing Editor /Information and Referral Specialist Nicole Roldan, Editorial Assistant/Information and Referral Support Staff Produced by DHS Office of Publications

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